Ru Rule les o s of E f Eng ngage gemen ment t wit ith September 17, 2019 | 3:30 – 5:00 pm Eastern
jack@tamarackcommunity.ca Online : tions: pport or Questions Tech Suppor the webinar We will post the poll results onscreen live during Typing your response on the screen polls during this webinar. You can do this by: ls: Polls: Tec line Po recommended. echn tions: io Options: Audio s your computer’s speakers. Headphones are tions eratio Consider cal hnical • VoIP: You may choose to connect your audio using • You may be invited to participate on one or more ▪ ▪ • Use the Chat Box on the Zoom control panel or email 2
Ru Rule les o s of E f Eng ngage gemen ment t wit ith September 17, 2019 | 3:30 – 5:00 pm Eastern
Foundation Consulting leahstephenson@gmail.com Camille e Quenneville Canadian Mental Health Association, Ontario Division Le Leah ah St Step ephen henson son Leah M. M. Stephenson Kimbe Principal Consultant berly rly Moran C hildren’s Mental Health Ontario Christa Haanst stra The Change Foundation Harpr preet et Bass ssi The Change Leah M. M. Stephenson Consulting enson Today’s Webinar Hosts cquenneville@ontario.cmha.ca Kimb mberl rly y Mo Moran Chief Executive Officer C hildren’s Mental Health Ontario kmoran@cmho.org Camille Quennevil ville le Chief Executive Officer CMHA, Ontario Division Christa Stephens sta Haanstr tra Executive Lead, Strategic Communications The Change Foundation chaanstra@changefoundation.com Harpree eet Bass ssi Executive Lead, Program Implementation The Change Foundation hbassi@changefoundation.com Leah h St 4
This webin inar ser serie ies is is hos hosted by: y: Ada daptatio ion an and In In colla llaboration wit ith: : co co-development by: Community Health Ontario (CHO) is the voice of the LHIN-funded community sector, a strategic partnership between : 5
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Today’s Webinar sign patients and caregivers happen. Demysti stify fyin ing g Co Co-Desi gn in make measurable Healthcar thcare The session provides the what, why, and how of co-design by providing practical approaches for implementation. Sept 24, 201 change for engagement that …To a 9 -Part key elements for art Webina inar r Series Buildi ding ng Collab aborati tion n Ca Capac acity ity for Ontari ario Hea ealth th Tea eams Rules of Engagem emen ent We will share the 019 ries !Webinar
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Web ebinar nar Go Goal als practical tips for engagement that can make measurable change for patients and caregivers happen Foundation’s direct experience with made-in-Ontario success stories ✓ Share key elements and ✓ Hear insights from Change 9
Rules of Engagement 10
#HowNotToDoPtEngagement
Meet Pat. A family caregiver. Pre-engagement.
Meaningful Patient & Caregiver Engagement = Better health care and quality of life
Building our Engagement Muscle 15
The ori rigins of f the
https://www.youtube.com/watch?v=XjevlQDE2is 17
1 Consider a range of engagement formats A number of ways exist for patients and caregivers to help improve the quality of health care and the health care experience exist. 18
Focus groups Face-to-face meetings Surveys Patient & Caregiver Advisors Storytelling – verbal, in writing, visually Engagement Formats Shadowing Online Discussions Virtual Panels Experience mapping Boards, Committees, Working Groups
Province-wide Caregiver and Provider Engagement Spring 2016
2 Choose the best timeframe for meaningful input Some successful engagements last three to six months, others bring people together just once. It’s a highly individual assessment. 21
3 Consider partnering By having more than one organization working with the same participants, you can “share the wealth” of wisdom and experience they bring. Or piggy-back on an existing event to make it easier for participation. 22
4 Recruit wisely Aim for a mix of people who are new to public engagement and those who are experienced or even seen as champions in the role. 24
Wha hat is is your • What community engagement activities exist now? la launching point • How can you extend that? for eng ngagement • What recruitment strategies can you use? and nd co-design? • What barriers exist? Can they be removed? 25
5 Be clear about your purpose and objectives From the start, give your participants clear understanding of the engagement’s purpose, objectives, conditions for success, and level of involvement. 26
6 Be clear about your scope of influence Tell the participants the level of influence or authority your organization has to implement changes, and be clear about the of your organization’s power from the start. 27
7 Develop a code of conduct together Creating and agreeing on rules together as part of the initial team-building builds solidarity and commitment. 28
8 Have an exit strategy In the course of a long-term engagement, it can be expected that some people will leave. The engagement may not be a good fit for them, but they may have to leave because of changes in their circumstances over time. 30
9 Give participants the tools they need Provide participants with accessible, relevant, and balanced resources and support, so they can build their knowledge and skills. This will also increase their confidence and capacity to engage. 31
10 Expect the unexpected… And be open to it! It’s important in patient engagement work to have clear objectives, but because this is a dynamic process, it’s important to expect and embrace new ideas and opportunities that may emerge. 32
11 Give participants the recognition they deserve Always acknowledge the contributions and impact of participants when reporting to the public and other audiences. 33
12 Report back Commit to a feedback loop at the beginning, and follow through. After gaining information or advice from participants, tell or show them what you did, or didn’t do, with it, and tell them why. 34
13 Be prepared for lulls, and how to navigate them If you’re planning an extended engagement, tell your participants to expect lulls in the activity and intensity. 35
14 Be aware, and careful, of people’s emotions Sensitivity, empathy, and consideration will obviously be needed if your discussions bring up sadness, grief, or anger. You may want to consider special training or support for staff and access to mental health supports for participants. 36
15 Carry it forward When things are coming to a close, act as a bridge for your participants. Encourage them to join other groups or advisory boards, or as a fitting last gesture, you may want to provide suggestions or even contacts and introductions. 37
Th The Questio ion of f Co Compensatio ion
Meet Pat. A family caregiver. Post-engagement.
Engagement resources
Online toolkit Access our online toolkit. www. changefoundation.ca/toolkit Regardless of where your organization is in terms of caregiver involvement we’re confident there’s something in this toolkit to help you out.
Thank you
• Comments? Questions?
To Follow… FAQ in September that responds to frequent and unanswered questions we received throughout the series. www.communityhealthontario.ca 48
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