Building a Palliative Care Program From the Inside Out Patsy Astarita, LCSW-C, OSW-C Michelle Abramowski, CRNP 1
Driving Factors Population Health Cost of Oncology Care Choosing Wisely (ASCO & ASTRO) Better qualityof life at EOL (Temel, 2010) Standard of Care — NCCN, ASCO, CoC 2 University of Maryland Upper Chesapeake Health
Population Health in Oncology University of Maryland Upper Chesapeake Health 3
Studies Listed Glare, P.A., et al. (2011). Palliative Care in the Outpatient Oncology Setting: Evaluation of a Practical Set of Referral Criteria. Journal of Oncology Practice, 7(6) , 366-370. May, P., et al. (2015). Prospective Cohort Study of Hospital Palliative Care Teams For Inpatients with Advanced Cancer: Earlier Consultation Is Associated With Larger Cost-Saving Effect. Journal of Clinical Oncology, 33 , 1-8. Temel, J.S., et al. (2010). Early Palliative Care for Patients with Metastatic Non-Small-Cell Lung Cancer. New England Journal of Medicine, 363(8) , 733-742. University of Maryland Upper Chesapeake Health 4
Choosing Wisely ASTRO Recommendations ASCO Recommendations Don’t use therapy for: Don’t routinely: Solid tumor pts with low Use extended ECOG fractionation schemes (>10 fractions) for No benefit from prior palliation of bone interventions metastasis Not eligible for clinical trial Use non-curative therapy No strong evidence without defining goals of supporting clinical value treatment and considering palliative care referral University of Maryland Upper Chesapeake Health University of Maryland Upper Chesapeake Health 5
Challenges Identified within KCC Inadequate communication between department/treatment teams Lack of education related to PC or EOL No budget, use existing resources Lack of documentation/ data mgmt on Advance Directives Hospital PC team focused on ICU Focus of CLN team was on newly diagnosed patients, not on PC or EOL care Reactive versus proactive use of resources 6 University of Maryland Upper Chesapeake Health
Starting Point In-patient PC team Limited out-pt PC clinic with the KCC Cancer LifeNet Program in place Updating Advance Directive policy and in-servicing all team members Physician Champion--Oncologist board certified in oncology & PC and Medical Director on-board NP expertise Leadership with background in PC/Hospice care University of Maryland Upper Chesapeake Health University of Maryland Upper Chesapeake Health 7
Workgroup Established workgroup Summer 2014 Identified key TMs/leaders Included physicians in the early planning phases Literature review as to what has been done Reviewed national metrics and determined outcome measures Looked at various existing models Developed our model 8 University of Maryland Upper Chesapeake Health
Palliative Care Models Embedded Specialist RN/MD Inpatient Consult Service • Dedicated Inpatient Unit Outpatient Clinic • Home-Based Care Existing at UM UCMC 9 University of Maryland Upper Chesapeake Health
Hallmarks of an Integrated Program Advisory Board, 2013 Oncologists trust the palliative care team Palliative care team scrupulous about care coordination Advance Care Planning routine for all cancer patients Palliative care team highly visible in cancer center Clinicians share responsibility for initiating palliative care Oncology clinicians trained to provide palliative care 10 University of Maryland Upper Chesapeake Health
Integrated Palliative Care Model, Kaufman Cancer Center • Patient -Centered Care • Patient & Family • Advance Care Planning • KCC Providers & Team Members • AD & MOLST • Body, Mind, & Spirit--Integrative • Community-Based Health Care Health--Meditation, Yoga, massage, Providers MBSR, exercise • Goal of Care Meetings • Support Groups • PC Case Conference • Individual & Family Counseling • EMR Documentation Support • Community Resources--Hospice, Communication Hooper House, Palliative HC • ST Bereavement Coordination Symptom of Care Management • KCC Treatment Teams -- Infusion, • Assessing symptoms--physical, Radiation , Surgery, & Support Care emotional, psychological, financial • Multi-D Providers toxicity • In-patient Care Teams--Palliative • Recommendations from PC Case • Out-Patient Palliative Care Clinic Conference- • Community-based Providers--home • Medication Management care, hospice, other MDs • Specialist Referral • Choosing Wisely • Behavioral Health & Supportive Care • PC Case Conference University of Maryland Upper Chesapeake Health 11
Palliative Care Decision Process • Evidence of non-curative disease and/or • Performance Status Assessment 2 or > Physical • Nurse Navigator reminder • Palliative Care 5-Item Questionnaire in ARIA • Names forwarded to Multi-D secretary for conference Trigger • Palliative Care Conference • Communicate with oncologist the PCC recommendations PC • Goals of Care Meeting with MD & MSW, other disciplines prn Confirmed • Practice schedules appointment • Notifies Multi-D secretary to reserve consult room Schedule Appt University of Maryland Upper Chesapeake Health 12
Palliative Care 5-Item Questionnaire Glare, P.A., et al. (2011). Palliative Care in the Outpatient Oncology Setting: Evaluation of a Practical Set of Referral Criteria. Journal of Oncology Practice, 7(6) , 366-370. University of Maryland Upper Chesapeake Health 13
Palliative Care Conference Model PC CC Team Members PC Conference • Nurse Practitioners Weekly at 8am Palliative Care • Conference Summary Sheet • Nurse Navigators completed • Infusion Center Nurses Interdisciplinary team reviews • • Radiation Nurses newly identified patients • Social Workers Recommendations • communicated to oncologist for • Nutritionist further direction and/or • Pharmacists schedule Goals of Care meeting • Hospice House rep Started meeting October 2014 • • In-pt PC nurse practitioner • Physicians ad hoc University of Maryland Upper Chesapeake Health University of Maryland Upper Chesapeake Health 14
Palliative Care Conference Overview Patient Presented--review of current status Understanding of the disease status ,treatment response & overall prognosis of patient Current functional status of patient Patient/family dynamics Discipline Report MD/NP Nurse Navigator & Treatment Nurse SW RD Summary & Recommendations: Symptom management Goals of Care/Advance Care Planning Patient & Family meetings Document in EMR University of Maryland Upper Chesapeake Health 15
PC Specialists Workgroup Moving towards — Self-selected group with Subject Experts i.e: interest in PC Pharmacist – pain Agree to attend meetings mgmt./conversions and commit to additional ONN – Goals of Care educational development meetings Education module Palliative Care developed Certifications Invite subject experts to present University of Maryland Upper Chesapeake Health University of Maryland Upper Chesapeake Health 16
Goals of Care Meeting Pt/Family understand current medical status Summarize “big picture” Respond to emotions Decision-making Goal Setting Document and update team 17 17 University of Maryland Upper Chesapeake Health
Goals of Care & AD Resources & References S etting up the interview SPIKES protocol (CMAJ, 2013) The Mount Sinai Hospital P assessing patient’s Palliative Care Goal-Setting- Conference Pocket Card Perception http://emupdates.com/wp- I obtaining the patient’s content/uploads/2009/11/goal-setting- conference-pocket-card-mssm.pdf Invitation Palliative Care and the Human Connection: Ten Steps for What K giving Knowledge and To Say and Do (Video from, information to the patient CAPC) The One Slide Project E addressing the Respecting Choice patient’s Emotional with The Conversation Project Empathic responses Advance Care Planning Canada S Strategy & Summary University of Maryland Upper Chesapeake Health University of Maryland Upper Chesapeake Health 18
A Shift in Culture in the KCC Proactive vs reactive Expanded awareness & language sensitivity Palliative care & hospice Advance Directives/MOLST & Advance Care Planning Population Health & Value- based care 19 19 University of Maryland Upper Chesapeake Health
Community Partnerships Hospice and Palliative Care Agencies Meet and Greet-Dec 2014 Hospice House Rep March 2015 20 20 University of Maryland Upper Chesapeake Health
Palliative Care Dashboard Advisory Board, 2013 University of Maryland Upper Chesapeake Health 21
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