THE EUROPEAN INSTITUTE FOR INNOVATION THR~UGH HEALTH DATA Dipak Kalra President Electronic Health Records for Clinical Research
Common challenges to the use of health data for person-centred care, and the reuse of health data for clinical research Data security, privacy Scalability and Interoperability Data quality & ethics sustainability and utility 2
In the last 5 years, more scientific data has been Complete generated than in the entire history of mankind Accurate 90% of the data in the world today has been created in the last 2 years Faithful Global Electronic Health Records Market Consistent expected to reach USD 29.81 billion by 2022 Computable 44 million health related smartphone apps Provenanced were downloaded worldwide in 2011 Monitoring services will account for 65% Interoperable of the global mHealth market by 2017 Shareable A culture that puts health data to good use, for… Trustworthy clinical decisions health service management commissioning and reimbursement population health and research Busy junior staff… patient empowerment …need data quality incentives Claims databases …and more investment in training Disease registries Electronic health and care records EHR systems need to improve… Cohort studies and biobanks …clinical collaboration, and Personal health records Clinical trials data, electronic case report forms … patient -centred care Mobile health apps Reimbursements need to incentivise the Wearable sensors Geo-sensors Air quality procurement of quality labelled EHR systems Lab on a chip Climate Social networks 3 and personal health apps
i~HD aims to foster that culture Healthcare providers and provider organisations Clinical and Citizen and biomedical patient research associations companies bringing stakeholders together to share learning, agree common priorities, Multi-national Health data decision aggregators & develop enablers, work makers consumers towards a convergence of best practices Health system ICT vendors payers, and SDOs commissioners Scientific centres, Reference Networks 5
Organisational governance President representing the Institute Vice President and legally responsible nominates Treasurer reports to elects Director Executive Board Centres of Excellence Secretary (CEO) establishes 14 elected members plus endorses Research Use of Health Data plus Administrative staff Semantic interoperability reports co-opted observers as needed plus to dealing with: Advisory Boards supporting the committees, meetings and events reports, finance, communications infrastructure elect Clinical and Healthcare Scientific Citizen and biomedical Health data ICT vendors EuroRec providers (academic) patient research consumers and SDOs Institute and funders centres associations companies General Assembly 6
Enabling value from the use of health data Value Value to patients and Value to society to healthcare to research Develop value assessment programmes, to demonstrate: Promote and • outcomes evidence to improve care Grow a Network collaborate • faster and more efficient clinical research of Excellence globally • better information for public health decisions • improved quality of EHR data • good practice in privacy protection • positive patient and societal acceptance towards a more value-driven outcomes-focused learning health ecosystem 7
Enriching knowledge and enhancing care through health data
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