France Aurélie Untas, Careum, Zurich, November 12 th 2019
1. Recognition and Specific Support for Young Carers • 2014: Artistic respite care for YC created by Françoise Ellien • 2017: • Research project on French YC «JAID» • Collaboration between University and French National Association for YC (JADE) • Results of a 1 st survey on 501 YC or former YC (IPSOS/Novartis) Research in progress • 17% YC (N=1448) • 88% did «not know YC» • 76 YC • 72.2% girls • Report few actions to help YC, • Many benefits reported • 51.9% help a parent and many barriers and need help by YC, parents and 28.6% a sibling from specialists professionals Careum School of Health, 12.11.2019, EOPC YC in Switzerland 2
2. Definition of Young Carers Definition used by the “JAID team” and the French National Association for YC (JADE) : • A YC is someone under 18 years old who provides significant care, assistance or support to another family member or significant relative. The person receiving care has a physical or mental illness, or a disability. • Between 18 and 25 years old, we label them Young Adult Carers Careum School of Health, 12.11.2019, EOPC YC in Switzerland 3
3. Current policy and services in France • Policy 23 rd of October 2019: French Prime Minister announced a strategy for carers’ mobilisation and support «AGIR pour les aidants» It includes a specific part for YC ! • Increase awareness of school professionals to identify and support YC • Specific arrangements for YAC students • Complementary measures to screen YC, increase respite and health monitoring • Services • Since 2014, only one service for YC through an artistic respite care Spread from the region of Paris to 2 others in 2019 • Work in progress Careum School of Health, 12.11.2019, EOPC YC in Switzerland 4
4. Specific legislation for YC • No specific legislation for YC • According to a law published in may 2008: YC can be considered as included in a global definition of family caregivers, but they are not explicitely named • In may 2019: a new law was enacted but only for adult family caregivers Careum School of Health, 12.11.2019, EOPC YC in Switzerland 5
5. Key factors for promoting policy & practice for YC • Since 2014: Artistic respite care for YC • 2016: Creation of the French National Association for YC (JADE) • 2017: • Results of a first survey on YC in France (IPSOS/Novartis) • 1 st funding for a scientific research on YC in France and JAID project • Collaboration between JADE and Université de Paris • 2019: 1 st French Conference on YC • The huge energy of Françoise Ellien and her knowledge of oncology Careum School of Health, 12.11.2019, EOPC YC in Switzerland 6
Young Carers Classification achievements within the last 3 years 2016 2019 1 1 2 2 3 3 4 4 5 5 6 6 7 7 7
To sum it all up A lot of energy A growing dynamic But there still is a long way… Careum School of Health, 12.11.2019, EOPC YC in Switzerland 8
Contact details Aurélie Untas and Géraldine Dorard Université de Paris 71 Avenue E. Vaillant 92100 Boulogne-Billancourt France Phone: +33 1 76 53 30 50 / +33 1 76 53 29 60 Emails: aurelie.untas@u-paris.fr / geraldine.dorard@u-paris.fr Website: https://jaid.recherche.parisdescartes.fr/ Careum School of Health, 12.11.2019, EOPC YC in Switzerland 9
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