The All Party Parliamentary Group (APPG) on Spinal Cord Injury Dan - PowerPoint PPT Presentation

Feb 20, 2024 •1.05k likes •1.2k views

The All Party Parliamentary Group (APPG) on Spinal Cord Injury Dan Burden, Head of Public Affairs, SIA (UK) What is an APPG? An informal cross- party group of politicians No official status within Parliament However can be a

The All Party Parliamentary Group (APPG) on Spinal Cord Injury Dan Burden, Head of Public Affairs, SIA (UK)
What is an APPG? • An informal cross- party group of politicians • No official status within Parliament • However can be a powerful campaigning tool
History of APPG on SCI • Launched May 2008 • 100 members from both Houses of Parliament and all political parties. • Chaired by Ian Lucas, MP for Wrexham • SIA is secretariat • Over 100 observers
Past work • Established National SCI Strategy Board • SCI Care Pathways • Specialist training for SCI consultants • Andy Burnham, Shadow Health Secretary, attended group February 2014
Establishing the APPG • ‘Preserving and Developing the SCI Centres’ research project • Launch event in Parliament • Finding suitable chair was key • Members key to continued increase interest of politicians
Current work • National SCI Centre, Stoke Mandeville – Prime Minister’s Questions, July 2014 – 12 Parliamentary questions asked, July 2014 – Letter to Secretary of Health, Jeremy Hunt MP, raising group’s concerns
Current work • NHS Continuing Healthcare – Westminster Hall debate, September 2013 – Minister asked NHS England to produce report on the issue – 5 Parliamentary Questions asked in 2014 – Letter to Care and Support Minister, Norman Lamb MP, voicing concerns over the ‘Care Act 2014’
Future work • Parliamentary Inquiry • Joint meeting with into local health APPG on Stem Cell services for SCI Research
Any questions? Dan Burden d.burden@spinal.co.uk www.spinal.co.uk

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