ONTARIO SCI ALLIANCE RETREAT APRIL 13, 2018 AN ORGANIZED & - PowerPoint PPT Presentation

ONTARIO SCI ALLIANCE RETREAT APRIL 13, 2018

AN ORGANIZED & MOBILIZED ONTARIO PRESENTED BY: Peter Athanasopoulos Executive Director Ontario SCI Alliance Ontario Spinal Cord Injury Alliance Retreat Friday April 13, 2018

Our Membership

Bold New World 2014-2017 HEALTH SYSTEMS HEALTH SYSTEMS HOUSING HOUSING PEER & FAMILY SUPPORT ILY SUPPORT TRANSPORTATION EDUCATION INFORMATION PORTALS TECHNOLOGY EMPLOYMENT COMMUNITY INCLUSION KNOWLEDGE & INTEGRATION MOBILIZATION

Powerful Partnerships POWERFUL PARTNERSHIPS for Ontarians with Spinal Cord Injuries Community Mobillization Research into Advocacy Practice Capacity Ontario SCI Public Policy Program Research Network CO-LED BY Co-led by • Conducts policy analysis and • Globally renowned, multi-site research SCI clinical research • Engages government • Research and implementation collaboration • Oversees Peer Activists Program SCI Knowledge • Provide strategic advice Mobilization Network • Facilitates information and resource sharing among researchers, service providers, SCI leaders, policymakers and other stakeholders Insurance Bureau of • Implements evidence-based Canada • Coordinates partner activities and initiatives in a strategic fashion Best Practices • Premier Partners • Acts as a network of expertise on spinal cord injury in Ontario • Addresses and resolves systemic barriers that impact Quality of Life

What our Community Achieved • Community Engagement • Synergy and Integration among people with SCI, their families, researchers, service providers, and policy makers • Policy Change • Ideas to put research in practice faster

ONTARIO’S NETWORK OF NETWORKS THE SCI COMMUNITY Community Sexual Participation & Health Employment SCI HIGH People With SCI Urinary Tract Pressure Infection Injuries ONTARIO KNOWLEDGE MOBILIZATION NETWORK SCI Community Organizations Self Management Private Industries PHYSICIAN ENGAGEMENT Bladder NETWORK Health Researchers ONTARIO SCI RESEARCH Wheeled NETWORK Mobility Acute & Rehab Centers Walking ONTARIO Service Providers SCI ALLIANCE Emotional Pain Well Being Management Policy Makers SCI ONTARIO PUBLIC POLICY PROGRAM Reaching, Cardiovascular Grasping & Health Manipulation CROSS Engagement of Research Peer Data People With Lived Implementation CUTTING Training & Activists Management Experience In Spinal Science Mentoring PLATFORMS Cord Injury

SCI-HIGH Project SPINAL CORD INJURY REHABILITATION CARE HIGH PERFORMANCE INDICATORS www.sci-high.ca sci-high@uhn.ca @SCIHighProject

SCI-HIGH AIM To advance SCI rehabilitation care for Canadians in the first 18 months after inpatient rehabilitation admission by 2020. 18 months

SCI-HIGH Mission Statement “Establish a comprehensive framework of structure, process & outcome indicators to improve standards of spinal cord injury rehabilitation in Canada.” THIS WILL BE ACCOMPLISHED THROUGH: Consultation with relevant stakeholders including Accreditation Canada, HSO, RHI, ONF, scientists, health policy makers, leaders, administrators, health care providers and leaders with lived experience in SCI.

DOMAINS Sexual Wheeled Health Mobility Skin Integrity Emotional Well Being Bladder Health Urinary Tract Infection Walking Community Participation & Employment Self Reaching, Management Grasping & Manipulation Cardiovascular Health

Ontario SCI Knowledge Mobilization Network (KMN) E N M T E A L T P I O M N I Implementation Science Science Evidence-Based Service Practices IMPLEMENTATION: Purposeful activities at the practice, program, and system level designed to put into place a program or intervention.

Ontario SCI Knowledge Mobilization Network (KMN) Site Implementation Site Site MANAGEMENT Mentorship DATA Site Site

PHYSICIAN ENGAGEMENT NETWORK

Join our Network • Connect you to knowledge, expertise, and resources • Access tools and physician support for your patients – Mobility Clinic • Provide direct consult to specialists in spinal cord injury Best Practice • Access our VIP4SCI Application • Advocate for your examining room to be fully accessible • Address gaps in support, like physician billing, with the MOHLTC • Learn about progress we are making under the Patients First Act • Become a member of the Spinal Cord Injury Ontario community

Mobility Clinic THE BEST PRACTICE MODEL IN ONTARIO

Outreach Efforts • Creating a Community of Practice • Establishing a network among Primary Care, Rehabilitation, and individuals with SCI • Development of Mobility Clinic manual, and primary care modules/toolkits • Establishing physical Mobility Clinics throughout Ontario and virtual support options

Join our Network VIP4SCI PEER SUPPORT PEER EMPLOYMENT CONNECTIONS SERVICES FAMILY & SPINAL CORD CAREGIVERS INJURY ONTARIO YOU RESOURCE CENTRE EXTERNAL FAMILY DOCTOR SUPPORT AND SERVICES REGIONAL MOBILITY CLINIC SERVICE COORDINATOR ACCESS TO REHAB SERVICES (VIA PATIENT PORTAL)

Ontario Sci Research Network • Globally renowned, multi-site SCI clinical research • Research and implementation collaboration

Sci Ontario- Public Policy Program 54 22 00 00 DAYS HOURS MIN SECS ELECTION DAY IN ONTARIO IS JUNE 7, 2018 www.yourmoveontario.ca

Today’s Focus ENGAGEMENT • Involve our community in the work that we do • Strategies and ideas to keep us all connected around a topic area • Our community is bigger than people with SCI • Hospitals, Service Providers, Researchers, Policy Makers are a part of our community • Our broader community outside this room also needs to feel connected

COMMUNITY ENGAGEMENT COMMUNITY ENGAGEMENT LEADERSHIP Engagement Engagement Engagement in Engagement Engagement in Media - in Peer SCI Awareness in Peer Clients at Info Other Peer Support & Knowledge Facilitation Sessions Spokespersons Engagement in Research Engagement in Public Policy and Government Relations

Questions CO-LED BY IN PARTNERSHIP WITH

Hearing Our Community’s Voice Summit Consensus Survey Results Emily E. Giroux MSc Student, School of Health and Exercise Sciences – University of British Columbia Okanagan Peter Athanasopoulos Senior Manager, Public Policy & Government Relations – Spinal Cord Injury Ontario Dr. Shane N. Sweet Assistant Professor, Department of Kinesiology and Physical Education – McGill University Dr. Heather L. Gainforth MSc Supervisor, Assistant Professor, School of Health and Exercise Sciences – University of British Columbia Okanagan

AIM • Develop survey to capture the voice of the SCI community • Reach consensus using Delphi Methodology • Primary Care & Community Supports • Neuropathic Pain • Bladder Management • Pressure Injuries

What is Delphi Methodology? Survey 1 • Evidence-Based Strategies and Supports • Likert Scale (0-10)

What is Delphi Methodology? Survey 1 ANALYSIS • Evidence-Based • Average Rating Strategies and Supports • At least 8 • Likert Scale (0-10) • Consensus: • 66% • At least 8

What is Delphi Methodology? Survey 1 ANALYSIS Survey 2 • Evidence-Based • Average Rating • Re-Iterate Survey Strategies and Supports • At least 8 • Present Survey 1 Results • Likert Scale (0-10) • Consensus: • 66% • At least 8

Benefits of Delphi Methodology Self-Administered Equal Group Consideration • Reach across the province Interactions • Overbearing Voices • Positive Attributes • Negative Attributes

Development Methods Co-Develop Refine Piloting of Consensus Consensus Survey Methods Methods

Survey Methods Disseminate Survey #1 Analyze Survey #1 Disseminate Survey #2 Analyze Survey #2 Develop Action Plan

Results

Participants (Survey 1) • 374 Participants (74% living with SCI) • Average Age: 54.8 years, Gender: 32% women, 26% tetraplegia

Participants (Survey 2) • 118 Participants (74% living with SCI) • Average Age: 54.7 years, Gender: 33% women, 24% tetraplegia