SURVIVE and THRIVE Pablo lo Duran Regio ional l Advi visor in in Perin rinatal l Healt lth PAHO-WHO #EveryNewborn #EveryChildAlive #EveryNewborn #EveryChildAlive
CHAPTER 2. What the numbers say Retinopathy of prematurity worldwide Key findings: • 184,700 (UR: 169,600 – 214,500) preterm babies developed any stage of ROP • >32,200, annually estimated to developed mild/moderate or severe visual impairment. • Two thirds of those visually impaired from ROP were born in middle-income regions • Approx 6.2% (4.3 – 8.9%) of all ROP visually impaired infants were >32-wk gestation. 2 SURVIVE and THRIVE: Transforming care for every small and sick newborn #EveryNewborn #EveryChildAlive
CASE STUDY 4 CHAPTER 2. What the numbers say Retinopathy of prematurity in Latin America and the Caribbean is a major cause of preventable blindness • ~10% of cases resulted in blindness or severe visual impairment, most likely caused by most acute disease stages & absence of advanced treatment Survey of medical/public health experts Assessed 4 government inputs: national policies, guidelines, programs, financing • Findings Only 2 countries had all 4 inputs • Countries w/ 3 or 4 inputs averaged 95% of eligible newborns screened • Countries w/ 1 or 2 inputs averaged 35% • Standard criteria required to identify all eligible newborns to avoid missing potential cases • Health systems need to have capacity to provide follow-up care, improve technology, and develop skilled workforce with trained ophthalmologists 3 SURVIVE and THRIVE: Transforming care for every small and sick newborn #EveryNewborn #EveryChildAlive
CASE STUDY 4 CHAPTER 2. What the numbers say What is PAHO/partners doing? 1. Improved care, clinical guidelines • Development of a Clinical guideline Diagnose (ROP) early and o prevent ROP risk factors in preterm newborns in the neonatal care unit Present the strategies o available for the diagnosis, treatment, and follow-up of newborns with retinopathy of prematurity in LAC. • Dissemination and national https://iris.paho.org/handle/10665.2/51089 adaptation of the guidelines • Strengthening surveillance, M&E (set of indicators) • I-E-C strategies 4 SURVIVE and THRIVE: Transforming care for every small and sick newborn #EveryNewborn #EveryChildAlive
CASE STUDY 4 CHAPTER 2. What the numbers say 2. Improved prevention, especially safe Oxygen use, early detection 5 SURVIVE and THRIVE: Transforming care for every small and sick newborn #EveryNewborn #EveryChildAlive
CHAPTER 2. What the numbers say 3. Improved surveillance, data and use of data • Institutional and Individual QoC and outcomes assessment tools Assessment of Essential Conditions o for Health Servicestal Information System Perinatal Information System o https://hsvce.paho.org/users/sign_in • Basic Minimum set of data for the registry and monitoring of ophtalmological care • Practical diagnostic guide & clinical Atlas of ROP (comparability) • On-line training • Educational guide for parents https://www.campusvirtualsp.org/en 6 SURVIVE and THRIVE: Transforming care for every small and sick newborn #EveryNewborn #EveryChildAlive
SURVIVE and THRIVE #EveryNewborn #EveryChildAlive #EveryNewborn #EveryChildAlive
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