Show Me the Data! Research Department United Network for Organ - PowerPoint PPT Presentation

Show Me the Data! Research Department United Network for Organ Sharing 1

UNOS Research Department Clinical Data and Registries Data Analytics Team Scientists and Analysts Matthew Prentice, MPH Julia Barnhart, MS Wida Cherikh, PhD Alex Garza Jeremy Winslow John Rosendale, MS Brooke Chenault, CCRA Eric Beeson Darren Stewart, MS Tiffany Hardy Tim Baker Amber Wilk, PhD Mohamed Roshanali Jude Maghirang, MS Laura Cartwright, MPH, PhD Yulin Cheng Jennifer Wainright, PhD John Beck, MSME Read Urban, MPH Data Scientists Denise Tripp Amanda Robinson, MS Andrew Placona, MSPPM Wes Rosson Rebecca Lehman, PhD Harris McGehee Alice Toll Samantha Noreen, PhD Aparna Sadavarte, MS Gabe Vece, MSPH Leadership Anne Zehner, MPH Chris Custer, MS Ryan Ehrensberger, PhD, FACHE Heather Lansdell, MS Julia Foutz, MPH David Klassen, MD Ginny Grafton, MS Kelsi Lindblad, PhD Bob Carrico, PhD Victoria Garcia, MPH Sarah Taranto Cherri Taylor

Outline / Agenda  Current UNOS Data Services Portal Reports  UNOS Benchmark Reports (Center and OPO)  RUM Report  Kidney Waiting List Management Tool  Big Changes Coming SOON : Data Services 2.0  Other ventures with Data  Offer Filters  SimNet  How Else Can We Help? 3

UNOS Data Services Portal 4

UNOS Data Services Portal  Benchmark Report  Kidney Waiting List Management Tool  Report of Organ Offers (ROO)  Recovery & Usage Maps (RUM)  Center STAR files  Data Quality & Submission Monitoring Tools  Commonly Requested Reports 5

6

Benchmark Report 7

8

9

10

11

12

Kidney – KDPI of Transplants 13

Liver – WL Status 14

Demographics 15

16

Interactive: Kidney Transplant Benchmark Report 17

OPO Benchmark Offer Efforts Supply Demand How far Donors Waiting do we go recovered list in DSA to place or Region organs? attempted Nation 18

OPO Benchmark Report 19

Offers – Center Offers 20

Supply – Utilization and Discard Rates 21

Interactive: OPO Benchmark Report 22

Customization Options Corporate Branding Additional Fields Different Comparison Groups External Data Integration 23

24

The Recovery and Usage Maps (RUM) Report 25

Recovery and Usage Maps (RUM) Report 26

Recovery and Usage Maps (RUM) Report 27

Recovery and Usage Maps (RUM) Report 28

Interactive: RUM Report 29

Kidney Waiting List Management Tool 30

Challenges of Kidney Waiting List Management Almost 40% of kidney waiting list currently inactive Need ability to focus on those patients (active and inactive) with high chance of transplant based on total allocation points. Identify patients most likely to get an offer Need ability to monitor candidates inactive for specific reasons (insurance, weight, etc.) 31

32

33

Interactive: Kidney Waitlist Management Tool 34

35

Data Portal 2.0 Coming September 2018! (in a couple weeks!) 36

Data Services Portal 2.0 OPO or Center- • High-level overview of activity when Specific Dashboard log into portal • Transplant, Waiting List, Organ Offer Data Self Service Report • Design, Save, and Reuse a Custom Report Specifying Generation Data Elements and Cohort • Filtering of Reports Improved Function • Easily see what is new or updated 37

38

39

40

41

Custom Report Builder 42

43

Offer Filters Project 44

Increase Transplants Get to YES Faster • Reduce Unwanted Offers • Decrease Cold Time • Increase Organ Acceptance 45

46

Recursive Partitioning KDPI ≤ 30 vs. > 30 (Decision Tree Analysis) 3/50 0/72 Cross-clamp – Pre vs. Post Kidney offers to ABCD-TX1 47

Offer Filters Explorer 48

Impact  ~5,000 Data Derived Filters  ~30% Reduction in Kidney Offers  ~60 fewer offers required for each allocated kidney donor  Low allocation risk 49

UNOS Labs 50

 Virtual center for experimental research in transplantation Behavioral Science Predictive Analytics Big Data Translational Research Information System Innovations Optimize User Experience Decision Support Tools Experimental Design Machine Learning Idea Incubator  Collaboration with the most innovative minds in healthcare, technology and research

Kidney Offer Simulation Studies  Over 100 kidney surgeon & physician participants in 2017  Review and respond to ~20 hypothetical offers (1-2 per day)  Participate by smartphone or PC  Receive a personalized response pattern analysis 52

Offer Simulation Study #3: Are You Interested in Participating (Oct 29 – Nov 16)?  Must be a kidney surgeon or physician responsible for offer acceptance decisions  Must be available to respond to offers during study period, Oct 29 – Nov 16 Or here!  Must be willing to respond to 24 offers  Sign up by Oct 5 here: https://labs.unos.org/study3 Questions? Email us at UNOS.Labs@unos.org 55

Other Products and Services  Living Kidney Donor Follow-up Dashboard  Data Quality and Submission Monitoring Reports  Custom Center Tableau Dashboards  Statistical Consulting 56

UNOS Research Department Clinical Data and Registries Data Analytics Team Scientists and Analysts Matthew Prentice, MPH Julia Barnhart, MS Wida Cherikh, PhD Alex Garza Jeremy Winslow John Rosendale, MS Brooke Chenault, CCRA Eric Beeson Darren Stewart, MS Tiffany Hardy Tim Baker Amber Wilk, PhD Mohamed Roshanali Jude Maghirang, MS Laura Cartwright, MPH, PhD Yulin Cheng Jennifer Wainright, PhD John Beck, MSME Read Urban, MPH Data Scientists Denise Tripp Amanda Robinson, MS Andrew Placona, MSPPM Wes Rosson Rebecca Lehman, PhD Harris McGehee Alice Toll Samantha Noreen, PhD Aparna Sadavarte, MS Gabe Vece, MSPH Leadership Anne Zehner, MPH Chris Custer, MS Ryan Ehrensberger, PhD, FACHE Heather Lansdell, MS Julia Foutz, MPH David Klassen, MD Ginny Grafton, MS Kelsi Lindblad, PhD Bob Carrico, PhD Victoria Garcia, MPH Sarah Taranto Cherri Taylor

58

Extra Slides 59

Data Services Portal Products Data Report of Recovery Kidney Quality and Commonly Benchmark Organ and Usage Center Waiting List Submission Requested Report Management Offers Maps STAR Files Monitoring Reports Tool (ROO) (RUM) Tools 60

Living Kidney Donor Follow-up Dashboard 61

Background  OPTN Policy 18.5.A: Reporting Requirements after Living Kidney Donation  “….report accurate, complete, and timely follow -up data ….”  Question from Centers: What does that actually mean, how can I figure out how I am doing, and how do I improve? 62

Data Quality and Submission Monitoring Reports 79

Data Quality Report

Data Submission Compliance Report 81

Data Submission Compliance Report 82

Follow-up Forms Expected Report 83