Services Available to Missourians Affected by Autism Linda Miller 10/12/2018 Department of Mental Health Division of Developmental Disabilities Office of Autism Services
Learning Objectives Identify five key facts about autism spectrum disorder (ASD) Identify Missouri’s service systems for ASD Describe the process in Missouri for accessing services and supports through the Division of Developmental Disabilities Identify autism resources that help individuals, families, and professionals navigate the service system
Fast Facts about Autism Spectrum Disorder (ASD) • ASD occurs in all racial, ethnic, and socioeconomic groups • Autism is almost five times more common among boys (1 in 54) than among girls (1 in 252) • There is no medical test or cure for autism • Autism is cited as fastest growing disability in the US
Autism Prevalence 2000 - 2018 1 in 59 CDC Prevalence Statistics for ASD 1 in 68 1 in 88 1 in 110 1 in 125 1 in 150 1 is 166 2000 2002 2004 2006 2008 2010 2018
About ASD • ASD refers to a cluster of neurobiological disorders that develops during childhood before the age of three • Diagnosis of ASD is based on symptoms, currently or by history, in these two areas: o Impairments in social communication/interaction o Restricted, repetitive behaviors
Core Characteristics of ASD Impairments in Social Communication/Interaction Problems reciprocating social or emotional interaction, including difficulty establishing or maintaining back-and forth conversations and interactions, inability to initiate an interaction, and problems with shared attention. 3 of 3 Severe problems maintaining relationships – from lack of must be interest in other people to difficulties in pretend play and present engaging in age-appropriate social activities, and problems adjusting to different social expectations. Nonverbal communication problems such as abnormal eye contact, posture, facial expressions, tone of voice and gestures, as well as an inability to understand these. The diagnosis of ASD is based on symptoms, currently or by history, in the two areas highlighted above. Symptoms may begin in early childhood but not be recognized fully until social demands exceed capacity. Symptoms must cause functional impairment. Source: American Academy of Pediatrics
Core Characteristics of ASD cont. Restricted, Repetitive Behaviors Stereotyped or repetitive speech, motor movements, or use of objects. 2 of 4 Excessive adherence to routines, ritualized patterns of must be verbal or nonverbal behavior, or excessive resistance to present change. Highly restricted interests that are abnormal in intensity or focus. Hyper or hypo reactivity to sensory input or unusual interest in sensory aspects of the environment. The diagnosis of ASD is based on symptoms, currently or by history, in the two areas highlighted above. Symptoms may begin in early childhood but not be recognized fully until social demands exceed capacity. Symptoms must cause functional impairment. Source: American Academy of Pediatrics
Service Systems for ASD in Missouri • First Steps - Birth to 3 years • Early Childhood Special Education - 3 to 5 years • MO HealthNet - Early and Periodic Screening Diagnostic and Treatment (EPSDT) - Birth to 20 years • Division of Developmental Disabilities (DD) - Birth to Life • Children and Youth with Special Health Care Needs Program - Birth to 20 years • Private Insurance
State Service Systems: Eligibility First Steps MO HealthNet (Department of Elementary and (Department of Social Services) Secondary Education) Eligibility criteria for any state system may be based on one or a combination of factors, including but not limited to age, disability/delay, income, functional levels. Children and Youth with Special Division of Developmental Health Care Needs Disabilities (Department of Health and (Department of Mental Health) Senior Services)
About Educational Supports School-aged children (K-12) with ASD • May not always have an Individualized Education Program (IEP) • Those who have IEPs with behavioral goals have greater protection under Individuals with Disabilities Education Act (IDEA) than they would have without behavioral goals • Do not have to be provided with accommodations unless an educational evaluation for eligibility reveals that accommodations are necessary to receive a fair and appropriate public education (FAPE) For more information about IEPs, IDEA, and Section 504 of the Rehabilitation Act see http://ptimpact.org/
Applying for Medicaid Apply for Medicaid through the MO HealthNet Division at: https://dss.mo.gov/mhk/accept.htm • If approved for Medicaid, individuals are able to access Medicaid (MO HealthNet Division) Services (sometimes referred to as State Plan Services) or might be eligible to receive a Medicaid Waiver. • Early and Periodic Screening, Diagnostic and Treatment (EPSDT) – Federal statutes and regulations state that children under age 21 who are enrolled in Medicaid are entitled to EPSDT benefits and that states must cover a broad array of preventive and treatment services.
Children and Youth with Special Health Care Needs (CYSHCN) • CYSHCN Program (Missouri Department of Health and Senior Services) provides assistance for children with special health care needs – Birth to 21 years • Program focuses on early identification and service coordination for children who meet medical eligibility guidelines • As payer of last resort, program provides limited funding for medically necessary diagnostic and treatment services for children whose families also meet financial eligibility guidelines For more information about the Children and Youth with Special Health Care Needs Program, visit: https://health.mo.gov/living/families/shcn/cyshcn.php
Private Insurance On June 10, 2010, Governor Nixon signed a law requiring private insurance companies operating in Missouri to provide coverage under group health insurance policies for care to children diagnosed with autism – including coverage for Applied Behavioral Analysis (ABA) Given that ABA is considered a best-practice treatment for autism, this law can potentially provide a substantial and positive impact to thousands of Missouri families affected by autism For more information about the insurance law, visit: https://insurance.mo.gov/consumers/autismFAQ/
DD’s Office of Autism Services (OAS) Department: Mental Health Division: Developmental Disabilities (DD) Statute: 633.210 RSMo: • “The office of autism services, under the supervision of the director of the division of developmental disabilities, shall provide leadership in program development for children and adults with autism spectrum disorders, to include establishment of program standards and coordination of program capacity.” • OAS works closely with Missouri’s five Autism Projects, Missouri’s Autism Centers’ diagnostic and intervention clinics, and the Missouri Commission on Autism Spectrum Disorders
DD’s Office of Autism Services (OAS) End of 2017 - 13,720 (37%) with ASD enrolled in DD (out of total DD population of 37,067). • 6,873 with ASD aged 4-17 (63%) • 4,253 served in the Missouri Autism Projects
Two Funding Streams Autism Project Medicaid Waiver Most services provided by the General Revenue Division of Developmental Missouri tax dollars; no federal Disabilities are Medicaid Waiver match; every service provided Services. The federal government under Missouri Autism Projects is reimburses the state 100% funded by General approximately 2/3 of every dollar Revenue. spent on those services. Home and Community- Autism Projects Based Medicaid Services Central Missouri Autism Project East Missouri Autism Project Comprehensive Waiver Northwest Missouri Autism Project Lopez Waiver Southeast Missouri Autism Project Support Waiver Southwest Missouri Autism Project Partnership for Hope Waiver https://dmh.mo.gov/dd/autism/autism https://dmh.mo.gov/dd/progs/waiver/in dex.html projects.html
Applying for DD Services • To apply for services from the Division of Developmental Disabilities (DD), contact the intake department of the Regional/Satellite Office in your area • Individuals do not need to be eligible for Medicaid to apply for DD services • The link to the Regional/Satellite Offices is: http://dmh.mo.gov/dd/facilities/
Regional/Satellite Offices Department of Mental Health, Division of Developmental Disabilities Regional and Satellite Offices Central Missouri Regional Office Springfield Regional Office 573-441-6278 417-895-7400 Kirksville Satellite Office Joplin Satellite Office 660-785-2500 417-629-3020 Rolla Satellite Office Sikeston Regional Office 573-368-2200 573-472-5300 Hannibal Satellite Office Poplar Bluff Satellite Office 573-248-2400 573-840-9300 Kansas City Regional Office St. Louis County Regional Office 816-889-3400 314-587-4800 Albany Satellite Office St. Louis Regional Tri-County Office 660-726-5246 314-244-8800 (City, St. Charles, Jeff Co.)
Becoming Eligible for DD Services • Must have a qualifying diagnosis (ASD is one) • Disability must have manifested before the age of 22 and is likely to continue indefinitely • Must have functional limitations (2 to qualify for Missouri Autism Project services; 3 to qualify for a Medicaid Waiver) For complete information about eligibility for services, refer to 9 CSR 45-2.010 https://www.sos.mo.gov/cmsimages/adrules/csr/current/9csr/9c45-2a.pdf
Recommend
More recommend
