Public Involvement Research Design Service North West (RDS NW) Emma Halliday, Specialist Public Involvement adviser, RDS NW Dr Aaron Poppleton, NIHR Academic Clinical Fellow in General Practice, Centre for Primary Care, University of Manchester
What is public involvement? Where members of the public, patients, people using health and social services are actively involved in research organisations and projects. Examples: • public member of a funding panel • joint grant holders or co-applicants on a research project • identifying research priorities • as members of a project advisory or steering group • commenting and developing patient information leaflets • undertaking interviews with research participants • lay researchers carrying out the research. Involve, Briefing Note 2 Research Design Service North West
How the RDS NW can help • Advisers - advice included in every case. • Specialist Advisers - extra help with complex issues. • Signposting to Public Involvement Resources. • RDS NW Public Involvement Fund (PIF). Research Design Service North West
The Public involvement Fund Who is it for? • Researchers in the North West. • Developing a proposal for national, peer-reviewed open call funding competitions for applied health or social care research. • In receipt of advice from RDS NW on this proposal. • At any stage prior to final submission. www.rds-nw.nihr.ac.uk/public-involvement/fund Research Design Service North West
My experien ences o of… RDS Support and PPI Dr Aaron Poppleton GP In Practice Fellow, University of Manchester
Dr Aaron Poppleton Who am I? BSc (hons) MBChB (European Studies) PGDip MSc MRCGP Current Position Salaried GP - Reedyford Healthcare, Nelson, East Lancashire NIHR In Practice Fellow - Centre for Primary Care Research, University of Manchester - Masters in Public Health (Global Health) student Global Mental Health research group (GMHRG) - University of Manchester
“To build the evidence base to explore how primary care can effectively meet the mental health needs of the UK Central & Eastern European (CEE) migrant community”
Eastern European Mental Health – A Primary Care Need Empirical PPI observations Support Risk Evidence Factors of Need
Application to the PPI fund Aims: 1. Improve understanding of PPI 2. Funding for PPI meetings (£350) Who was involved: Paula Holland (University of Lancaster) The activities: 1. Forumul Romanesc despre Sanatate (Romanian Health Forum) 2. Geresnė lietuvių sveikata - diskusijų forumas (Lithuanian Health Forum) What I got: ● Agreement for funding ● PPI set up advice ● Research career / fellowship advice
Forumul Romanesc despre Sanatate Imbunatatirea sistemului medical pentru Romani (The Romanian Health Forum: Improving the medical system for Romanians) What we did : • Saturday morning meeting • Romanian Orthodox Church, Preston • Refreshments • Facilitators (myself, 2 Romanian junior doctor colleagues) • Discussion questions • Post-meeting team debrief
Discussion Questions What would Romanians think about a research project on: a) Their experiences of going to the GP? b) How to make healthcare easier to use for Romanians? c) How doctors can help those finding life hard in the UK? (Stress, anxiety, low mood, depression, thoughts of suicide) What would be the best way to: a) Invite people to take part? b) Undertake this research? What would make Romanians more/less likely to take part?
Reflection on the event Costs • Venue hire, refreshments, participant transport costs Retrospective advice • Relationship building ( key community figures ) • Early planning/promotion ( with reminders ) • Refreshments ( check are appropriate ) • Empathetic facilitators • Have a scribe • Be flexible ( technology, start time, character/group dynamics )
PPI Outcomes Impacts/benefits gained from the PPI meeting Insight into: ● Individuals’ lives, challenges, needs perspective! ● Research practicalities / barriers (recruitment, methods, desired outcomes) ● Funding / study applications (viewed very positively) ● Need to integrate PPI throughout research process Outcomes: ● Oral + poster presentation at SAPC (national) ● Successful SPCR/NIHR fellowship applications ● Directing research theme + study grant application
NIHR In Practice Fellowship NIHR In Practice Fellowship • Scoping Review • Expert Survey • PPI Development • Meet Training Needs NIHR Doctoral Research Fellowship Application
Resources for Public Involvement • RDS NW Public Involvement pages http://www.rds-nw.nihr.ac.uk/public-involvement/ • INVOLVE http://www.invo.org.uk/ • People in research https://www.peopleinresearch.org/ • Public involvement impact assessment framework http://piiaf.org.uk/index.php Research Design Service North West
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