Presentation to Adult Social Care, Health and Wellbeing Sub-Committee Autism Strategy - Update 12 March 2020 Scott Woodhouse Strategic Commissioning Manager
Areas to cover Work undertaken to date � Initial findings � High level themes � Governance � Regional work �
Background Autism Act 2009 � DH – Fulfilling and rewarding lives, national � plan (2010) DH – Think autism, update to national plan � (2014) DHSC – Consultation on a review of the � national autism strategy (2019)
School Census 2019 ASD as Primary Need 2019 382 Children with special education needs in education KS1 to age 18 79% Increase between 2016 -2019
ASD Population level changes Adults 2020 2035 Age 18-64 1197 1158 Male 1071 1039 Female 126 119 Reduction in overall numbers over time Male / female split
ASD Population level changes 65+ 2020 2035 Age 65+ 386 510 Male 338 448 Female 47 62 Increase in overall numbers over time Male / female split
Work to date • Established a Strategy working group of health, social care, education, organisations that support people with autism and their families and also carers of people with autism • Mapped current support, services and gaps and issues • Inclusion North held focus groups with families to share initial findings • Workshop held to agree high level priorities • Draft Action Plan is being developed
What people are telling us - 1 • Need support to access diagnosis faster • Its should be about needs, not diagnosis – the diagnosis gets you nothing • Support people with autism need support to understand what it means to live with the condition and the impact on their families • There needs to be awareness raising in universal and specialist services – so people with autism can be supported appropriately
What people are telling us - 2 • People with autism and families want to be listened to and taken seriously • Want to have inclusive communities - including school communities, where people are welcome, safe and able to contribute • There is support available for people who are going through life changes – small and large
Governance Health and Wellbeing Board Future Care Programme Board Learning Disability / Autism Strategic Group Links to Transforming Care - NHS Parent / Carers Autism Group and User Voice Role of the Autism Group is to progress the action plan, identify gaps and approach, ensure it is wider than adults with a disability and also covers autistic children
Regional work • NHS England / Transforming Care team leading on regional work with a focus on: o Clear diagnostic pathways with timely access o Post diagnostic support is available o Competent staff team in place o Crisis support available (with access to mental health support) o Transition into adulthood o Education, employment and housing opportunities – fair and equitable
Next Steps • Produce draft strategy - May 2020 • Develop Action Plan • Final version - Summer 2020 • Establish task and finish groups
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