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Global COVID-19 Symptom Survey. A Facebook partnership JPSM/MPSM Seminar October 7, 2020 Motivation Responding to the Need for Syndromic Surveillance Syndromic surveillance enables policymakers and public health systems to make decisions


  1. Global COVID-19 Symptom Survey. A Facebook partnership JPSM/MPSM Seminar October 7, 2020

  2. Motivation Responding to the Need for Syndromic Surveillance Syndromic surveillance enables policymakers and public health systems to make decisions before diagnosis data are available, especially in low resource areas with limited testing capabilities. Facebook can reach large segments of the target population daily with the technical infrastructure to provide bias correction. And, the speed and scale of the symptom surveys allow them to act as early warning systems. 2 Facebook company 10/7/2020 JPSM/MPSM Webinar

  3. Agenda 1. Project Structure 2. Survey Instrument and Weights 3. Early Insights 4. Reflections on Data Collection Challenges 5. Data Access 3 Facebook company 10/7/2020 JPSM/MPSM Webinar

  4. Project Structure Facebook company 10/7/2020 JPSM/MPSM Webinar 4

  5. Project Overview Facebook invites a new, random Users are sent to the survey hosted Using the aggregated data, sample of users to participate each by UMD or CMU using Qualtrics. Facebook created a map visualization day. to help policymakers and public Facebook does not receive health systems make decisions. responses, but does calculate weights to correct for non-response The non-aggregate data are available bias and sampling frame coverage to eligible academic and nonprofit bias using internal Facebook data for researchers by request. 115 countries or territories. 5 Facebook company 10/7/2020 JPSM/MPSM Webinar

  6. Survey Instrument and Weights Facebook company 10/7/2020 JPSM/MPSM Webinar 6

  7. Survey Instrument and Weights UMD Global Survey Instrument Available in 50+ languages Survey Instrument has 5 Sections: Consent ● Health symptoms ● Contacts with others ● Mental health and economic ● security Demographic characteristics ● 7 Facebook company 10/7/2020 JPSM/MPSM Webinar

  8. Survey Instrument and Weights CMU US Survey Instrument Available in 6 languages Survey Instrument has 5 Sections: Consent ● Household symptoms ● Personal symptoms ● Contacts with others and ● other risk factors Demographic characteristics ● 8 Facebook company 10/7/2020 JPSM/MPSM Webinar

  9. Survey Instrument and Weights 20.3 million Completed the UMD global survey launched in 200+ countries or territories, including 114 for which we provide weights 10.6 million Completed the CMU survey launched in the United States Note: sample size as of 9/7 9 9 Facebook company 10/7/2020 JPSM/MPSM Webinar

  10. Survey Instrument and Weights Adjusting for Sample Bias Facebook calculates analytic weights to correct for random sampling, non-response, and coverage errors. This ensures that the sample more accurately reflects the characteristics of the target population represented. Survey weights are available for 115 countries but may be revised as Facebook and partners assess sample coverage. The weight value does not identify the survey respondent. 10 Facebook company 10/7/2020 JPSM/MPSM Webinar

  11. Early Insights 11 Facebook company 10/7/2020 JPSM/MPSM Webinar

  12. Early Insights Early Insights for Forecasting CMU Delphi Research Center is developing short term hospitalization forecasts in the US and deepening its partnerships with public health agencies. The symptom survey also shows noticeable correlation with confirmed case numbers, though the correlation varies across geographies. 12 Facebook company 10/7/2020 JPSM/MPSM Webinar

  13. Early Insights Early Research Insights 15 institutions are working with the non-aggregate data from at least one of the surveys. IHME is mapping the prevalence of regular mask wearing, using the global Symptom Survey in conjunction with data from Premise. 13 Facebook company 10/7/2020 JPSM/MPSM Webinar

  14. Early Insights Early Research Insights 15 institutions are working with the non-aggregate data from at least one of the surveys. IHME is mapping SoDa has the prevalence of produced an interactive regular mask dashboard of wearing, using mask-wearing the global behavior. Symptom Survey in conjunction From April 2020 to with data from present, we asked, Premise. “In the last 7 days, how often did you wear a mask when in public?” 14 10/7/2020 Facebook company JPSM/MPSM Webinar

  15. Data Collection Challenges 15 Facebook company 10/7/2020 JPSM/MPSM Webinar

  16. Data Collection Challenges Challenges of Syndromic Surveillance at Scale There are numerous challenges to a global daily tracking survey, which requires broad support and coordination across partners as well as with the survey platform itself. For example, pretesting is difficult due to translation needs, changes to sampling pipelines, and the wide variety of device types used to complete the survey across contexts. 16 Facebook company 10/7/2020 JPSM/MPSM Webinar

  17. Data Access Facebook company 17 10/7/2020 JPSM/MPSM Webinar

  18. How to Access Symptom Survey Data Publicly Available, Aggregate Non-Aggregate Data for Data Research Global Survey Data: Researchers from academic and https://covidmap.umd.edu/api.html non-profit institutions can request access. US Survey Data: https://cmu-delphi.github.io/delphi-e Signed Data Use Agreements are pidata/api/covidcast.html required. Central portal for project documentation and data access requests is on Facebook’s Data for Good website: dataforgood.fb.com. 10/7/2020 Facebook company JPSM/MPSM Webinar 18

  19. Additional Resources Other Complimentary Data Headline over two lines Sources Through Data for Good Type size 18 pt in Medium Population Density Maps This small body copy, Type size is 18 pt in Normal, line spacing is 1.1 lines Social Connectedness Index Large amounts of text require a small Movement Range Maps type size to ensure readability. More information on Facebook’s Data for Good website: dataforgood.fb.com. Locally Globally 20% 80% COVID-19 Symptom Data Challenge: symptomchallenge.org/. 10/7/2020 Facebook company JPSM/MPSM Webinar 19

  20. About Us Team Members Frauke Kreuter Adrianne Bradford Samantha Chiu Xiaoyi Deng Kathleen Stewart Andres Garcia UMD - Joint Program in UMD - Joint Program in UMD - Joint Program in UMD - Joint Program in UMD - Center for UMD - Center for Survey Methodology Survey Methodology Survey Methodology Survey Methodology Geospatial Information Geospatial Information Science Science Alex Reinhart Elizabeth Stuart Elena Goicoechea Ting-Hsuan Chang Esther Kim Christoph Kern Delphi Group JHU - Bloomberg School JHU - Bloomberg School JHU - Bloomberg School Sarah LaRocca Brian Kim Carnegie Mellon of Public Health of Public Health of Public Health Katherine Morris UMD - Joint Program in University Facebook Survey Methodology 20 Facebook company 10/7/2020 JPSM/MPSM Webinar

  21. Questions? You can also email: COVID19symptomsurvey@fb.com Frauke Kreuter JPSM/MPSM, 2020

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