Buildin ing the capa pacit ity of of fa faith-ba based communit itie ies to en engage age in in hea ealth rese search initia iatives es Dr. Diana Ingram Dr. Rebecca Johnson Rush University Medical Center Northwestern University Dr. Paris Davis , Executive Director, Triedstone Full Gospel Baptist Church Regina Greer-Smith , MPH, LFACHE, S.T.A.R. Initiative
How it all began …. Academic Partner “ A community advocate and faith-based partners focused on the promise that PCOR (patient centered outcomes research) holds for underserved communities and joined an activated faith-based partner seeking social justice in healthcare and answers to its community health st atus” - Regina Greer-Smith
Why hy Re Rese search “…doing this “So we can activate our enables research Minist stry ry? own research that will that we think benefit our needs to communities and be happen…” part of a partnership that is meaningful real and faith based” “ We identify the research that needs to take place rather than [researchers] coming to us and saying, ‘ we are doing research on this’ “ ...there is value in matching conversations to congregants' interests that leads to education ” “ ..informed congregations lead to greater levels of health awareness and education ”
Gui uiding Patient atient Cente tered Outcomes Research (PCOR) Pr Prin incip iples es • Partnership • Co-Learning • Reciprocal Relationships • Trust, Transparency, Southland Ministerial Health Network Honesty and Academic Partner Planning Meeting Dec 2013
Pathway ay to Engagement: Stage 1 Outcomes Alliance of Researche hers in Chica hicagola land Com ommuni munities es (ARCC RCC) ) See Seed Gra rant nt Fundin ing • 501c3 status for Pastors4PCOR: GLUE • Mission Statement: GLUE • Advisory Board T erms of Reference/ MOU: GLUE • Advisory Board Meetings: PROCESS • Pilot of survey and community asset mapping tools: SKILLS • Eugene Washington Award grant proposal: 2 nd Annual Community Day of Research and Engagement (May 2 2015) SUST AINABILITY Developing “ Research-Ready ” Communities
Pastors4PCOR’s Mission “ To increase the participation of underserved communities of color in comparative effectiveness research and patient centered outcomes research through the design, development and implementation, reporting and dissemination of research. ” We will achieve this by : Partnering with researchers from academic research centers; Fostering relationships to build a robust research infrastructure in the church communities; and Building the capacity of faith-based communities to engage in health research. 6
Pastors4PCOR (P4P) Develop lopment Pr Proce cess Transitioning Focus on decision reaching goal making to as a group – board. delivering an Developing Forming Norming event working roles Partnership Storming Meetings to Performing rules for discuss project working aims/objectives, together are journey of engagement in place. norms for working Board is self directed.
Th Thin ings s we le learn rned together r whil ile dev evelop oping ng P4 P4P Succ ccesse ses Challeng allenges • Time • Open lines of communication • Getting to know each others • Working relationships processes and infrastructure • Complement of skills and • Mapping the geography of faith personalities based communities • Finding funds to sustain project • New partnerships
Pathways to Engagement nt: Stage 2 Outcomes • IRB exempt status: PROCESS • Project Information sheet and contact with pastors: PROCESS Training program Recruiting Next • MOU for church partners: GLUE • Five Step Training Program for Research Ministry Ambassadors: SKILLS
Pastors4PCOR: En Engagi ging fai aith-based ed communities es Guiding Principles • Partners commit to open and honest communication • Major decisions are made inclusively and information is shared • Partners communicate study back to their own communities in meaningful and usable ways 9
P4P BOARD OF DIR IRECTORS First Name Last Name Board Role Affiliations Simon Gordon Advisory Board Chairman Bishop, Triedstone Baptist Full Gospel Church Walter Turner III Advisory Board Co-Chairman Senior Pastor – New Spiritual Light Church Paris Davis, PhD, MBA Executive Director Total Resources Development Corporation- Triedstone Baptist Full Gospel Church Advisory Board Member Buehler Center for Aging, Health & Society, Rebecca Johnson, PhD Academic partner Feinberg School of Medicine Northwestern Memorial Hospital Regina Greer-Smith, MPH, LFACHE Advisory Board Member Healthcare Research Associates, LLC Community Advocate S.T.A.R. Initiative Advisory Board Member Diana Ingram, PhD, MPH Rush University Medical Center Academic partner Gennadyi Voronov, MD Advisory Board Member John H. Stroger Hospital of Cook County Health care systems Health and Hospitals System Ralph Martire Advisory Board Member Community Center for Tax and Budget Accountability Advocate (CTBA) Beverly Rogers, BA, CWA Advisory Board Member Community Community Member – Caregiver Advocate Jeremiah Community Outreach Services Dina Craig Advisory Board Member Community Media
Thin ings we le learned to togeth ther about ut engag aging ng communities es with research Succ ccesse ses Challeng allenges • Time for support and mentoring • Support from pastors • Difficult for participants to attend • Growing confidence of learners every step • Learner enthusiasm and • Finding time when everyone can engagement attend meetings • Engagement research is time • Community based IRB consuming certification • Research is temporary and no • New partnership opportunities substitute for health services for individuals and churches
Conta tact Information ormation Project Le Lead ad Dr. Paris Davis email: drpdavis77@gmail.com Re Resear arch Mi Ministry Ambassador or Tr Trainers rs Regina Greer-Smith email: healthcareresearch@sbcglobal.net Dr. Rebecca Johnson email: rebecca.johnson@northwestern.edu Dr. Diana Ingram email: diana_ingram@rush.edu 20
Thank you for listening to our journey! Pastors4PCOR Research Ministry Ambassadors and Project Team Q & A
Recommend
More recommend
