2/3/2016 Building a Statewide Partnership for Patient Centered Research 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES Why a One F lo rida Pa rtne rship? 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES 1
2/3/2016 T he Numbe r s 17 5% to 15% Ye ar s 1% to 7.6% Afr ic an-Ame r ic an par tic ipation in R e se ar c h to R e ality Hispanic par tic ipation c linic al tr ials 33% in c linic al tr ials Disproportionate Disease Burden ? ? ? ? Wome n’s R ur al R e side nts, par tic ipation in Not Representative of the Se r ious Me ntal Illne ss c linic al tr ials Childr e n Population Olde r Adults 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES So me Que stio ns On the I nstitute o f Me dic ine T o p 100 Prio ritie s a nd Ma ny Re ma in Una nswe re d Colore c tal Canc e r Sc re e ning Should I and how often should I have colorectal cancer Hype r te nsion screening Wha What ar are the the app appropriate le levels of of bloo blood pr pres essure con control? l? For For Afric African Ame Americ icans? Hisp Hispanic ics? Whi White non non ‐ Hispa spanics? s? De me ntia What are the best pharmacologic and non ‐ pharmacologic interventions for individuals with dementia who are living at home with their caregivers? 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES 2
2/3/2016 Cre a te a n E nduring I nfra struc ture F o r Co mpa ra tive Pra g ma tic Clinic a l I mple me nta tio n Co ho rt E ffe c tive ne ss Re se a rc h T ria ls Sc ie nc e Studie s Disc o ve ry Inclusive of Diverse Populations What Works Better for Whom Under Conducted in Real World Settings to The Science of Fostering the Uptake of Evidence ‐ What Circumstances? Accelerate Translation to Practice and Based Best Practices Into Diverse Health Care Adoption Settings 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES Sta te wide Pa rtne rs University of Florida and UF Health Tallahassee Memorial HealthCare Florida State University and the Health Choice Network Regional Campus Practice Partners Bond Community Health Center Inc. University of Miami and UHealth Miami Children’s Health System Orlando Health WellFlorida Council Florida Hospital 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES 3
2/3/2016 Uniting the Sta te fo r Clinic a l Re se a rc h 2009 2010-11 2012 2014 2015 2015 2013 ONE F L ORI DA CL I NI CAL RE SE ARCH CONSORT I UM The University of Florida, the University of Miami and Florida State University unite health systems, health plans, providers and patients to form the OneFlorida Clinical Research Consortium. Uniting the Sta te fo r Clinic a l Re se a rc h 2009 2010-11 2012 2013 2014 2015 2015 ONE F L ORI DA CANCE R CONT ROL AL L I ANCE The OneFlorida Cancer Control Alliance strengthens statewide infrastructure to reduce disparities in cancer control and prevention with funding from the James and Ester King Biomedical Research Program. 4
2/3/2016 Uniting the Sta te fo r Clinic a l Re se a rc h 2009 2010-11 2012 2013 2014 2015 2015 ONE F L ORI DA CL I NI CAL DAT A RE SE ARCH NE T WORK The Patient ‐ Centered Outcomes Research Institute approves a funding award designating the OneFlorida Clinical Research Consortium as one of 13 clinical data research networks nationwide. PCORne t Pa rtne rs Accelerating Data Value Across a National Community Health Center Network (ADVANCE) University of Chicago: Chicago Area Patient Centered Outcomes Research Network (CAPriCORN) Greater Plains Collaborative (GPS) Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) Network Mid ‐ South CDRN PaTH: Towards a Learning Health System Louisiana CDRN (LACDRN) Patient ‐ oriented SCAlable National Network for Effectiveness Research (pSCANNER) National Pediatric Health Learning System (PEDSnet) Patient ‐ Centered Network of Learning Health Systems New York City Clinical Data Research Network (NYC ‐ (LHSNet) CDRN) OneFlorida Clinical Data Research Network Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS) 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES 5
2/3/2016 Sc ie ntific Adviso ry Co mmitte e Electra Paskett, Ph.D. Peter J. Embi, M.D., M.S., F.A.C.P., F.A.C.M.I. Marion N. Rowley Designated Chair In Cancer Professor of Cancer Research, Associate Professor and Vice Chair, Department of Biomedical Informatics Division of Cancer Prevention and Control, Division Director, Division of Clinical and Translational Informatics Department of Internal Medicine, College of Medicine, Chief Research Information Officer, Wexner Medical Center The Ohio State University Associate Dean for Research Informatics, College of Medicine Physician, Department of Internal Medicine, Division of Rheumatology & Immunology, The Ohio State University Ross Brownson, Ph.D. Albert W. Wu, M.D. M.P.H., F.A.C.P. Director, Prevention Research Center Director, Center for Health Services and Outcomes Research Washington University in St. Louis Director, Ph.D. Program in Health Services Research & Policy President ‐ Elect, Faculty Senate Johns Hopkins Bloomberg School of Public Health 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES ONE F L ORI DA ST E E RI NG COMMI T T E E 6
2/3/2016 ALISON FRASE ANDY BRICKMAN BETH KIDDER BILL HOGAN CARL PEPINE BARRY BYRNE BETSY SHENKMAN Joshua shua Fras ase Foundat ndation on Health Cho He Choice Ne Netw twork Un University of of Flo Florida University of Un of Flo Florida University of Un of Flo Florida Agency fo Age for He Health Car Care Ad Admini nistration University of Un of Flo Florida DAVE JANICKE JENNIFER McCAFFERTY JOE NADGLOWSKI LINDA COTTLER MARK ROH MIKE GUTTER CHRIS SCUDERI Un University of of Flo Florida Miam Mi ami Children’ ildren’s He Health Sys System Obesity Ac Obe Action Coa Coalition Un University of of Flo Florida Orlando lando Hea Health University of Un of Flo Florida Un University of of Flo Florida MIKE MUSZYNSKI MYRA HURT OLVEEN CARRASQUILLO PETER CAREK RHONDA COOPER ‐ DeHOFF STEVEN SMITH TEMPLE ROBINSON University of Un of Flo Florida University of Un of Flo Florida Bond Community Bon unity Hea Health Cen Center In Inc. Flo Florida Sta State Un University Flo Florida Sta State Un University Un University of of Mi Miam ami Florida Hos Flo Hospital CHRISTY EVANS DUSHYANTHA JAYAWEERA PRABIR MANDAL RENEE REAMS THOMAS GEORGE MICHAEL WEAVER DAVE NELSON University of Un of Flo Florida University of Un of Flo Florida University of Un of Flo Florida University of Un of Mi Miam ami Ed Edward rd Wa Wate ters Col College Florida A&M Flo A&M Un University University of Un of Flo Florida Pro g ra ms a nd Wo rkg ro ups Patient Population Program Integrated Clinical Research Program Rhonda Cooper‐DeHoff, Julie Johnson, Claudio Harris, David Janicke, Steven Smith, Carl Pepine, Michael Muszynski,,Quintina Crawford, Nadine Zemon Joe Nadglowski, Carlos Maeztu, Myrtle Graham, Krista Vandenborne, Barry Byrne, Alison Frase Community Clinician/Health Systems Engagement Hypertension Practice Facilitation Obesity Integration, Implementation, and MoC DMD Rare Disease Multi ‐ Network Study Support Tobacco Cessation Minority Education Program Data Trust Program Patient and Citizen Scientist Program William Hogan, Nick Tsinoremas, Temple Robinson, Ravi Bhosale Olveen Carrasquillo, Linda Cottler, Carlos Maetzu Data Query & Analytics Participant Recruitment Honest Brokers Information Dissemination PROs IT 1 0 M ILLIO N P A TIEN TS 4 , 1 0 0 P HYSIC IA N P RO V ID ERS 1 , 2 4 0 P RA C TIC ES/ C LIN IC S 2 2 HO SP ITA LS 6 7 C O UN TIES 7
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