what happened to me neuromyelitis optica happened to me
play

What Happened to me Neuromyelitis Optica happened to me that's - PowerPoint PPT Presentation

Jun 27, 2023 •284 likes •349 views

Irene Wilson - Group Leader UK Mastocytosis Charity What Happened to me Neuromyelitis Optica happened to me that's what! Diagnosed Edinburgh January 2013 Aguaporin 4 antibody positive 6 lots of Plasma Exchange now on Azathioprine

  1. Irene Wilson - Group Leader UK Mastocytosis Charity

  2. What Happened to me Neuromyelitis Optica happened to me – that's what! Diagnosed Edinburgh January 2013 Aguaporin 4 antibody positive 6 lots of Plasma Exchange now on Azathioprine Complications of Neuromyelitis Optica Complete collapse of T4 and severe anterior subluxation (grade 111/1V) of T3 on T5 with severe stenosis cord compression and myelopathy

  3. January 2013 Paralysed from chest down legs and feet double in size and covered in lesions

  4. 6 lots of Plasma Exchange Four Months in Hospital

  5. Eighteen months on Still undergoing intense physiotherapy Still motor problems Bladder and bowel remain paralysed No relapse Still on Azathioprine

Recommend

Neuromyelitis Optica: Is There Treatment Equipoise? Bruce Cree, MD, PhD, MCR Associate Professor

Neuromyelitis Optica: Is There Treatment Equipoise? Bruce Cree, MD, PhD, MCR Associate Professor

Neuromyelitis Optica: Is There Treatment Equipoise? Bruce Cree, MD, PhD, MCR Associate Professor of Clinical Neurology Clinical Research Director University of California San Francisco Multiple Sclerosis Center What is Neuromyelitis Optica?

475 views • 16 slides
Natural history of neuromyelitis optica EMA Regulatory Workshop on Clinical Trials Designs in

Natural history of neuromyelitis optica EMA Regulatory Workshop on Clinical Trials Designs in

Natural history of neuromyelitis optica EMA Regulatory Workshop on Clinical Trials Designs in Neuromyelitis Optica and Spectrum Disorders London, 10 October 2014 Friedemann Paul NeuroCure Clinical Research Center Clinical and Experimental

645 views • 33 slides
KRISTA BOAN WAIT, WHAT JUST HAPPENED? WAIT, WHAT JUST HAPPENED? WAIT, WHAT JUST HAPPENED? WAIT,

KRISTA BOAN WAIT, WHAT JUST HAPPENED? WAIT, WHAT JUST HAPPENED? WAIT, WHAT JUST HAPPENED? WAIT,

KRISTA BOAN WAIT, WHAT JUST HAPPENED? WAIT, WHAT JUST HAPPENED? WAIT, WHAT JUST HAPPENED? WAIT, WHAT JUST HAPPENED? WAIT, WHAT JUST HAPPENED? 1 in 5 children have mental health problems 43% increase in ADHD 37% increase in teen

552 views • 19 slides
What- -Really Really- -Happened Happened What according to most people, history is

What- -Really Really- -Happened Happened What according to most people, history is

What- -Really Really- -Happened Happened What according to most people, history is what really happened in the past but our understanding of history is often based on the testimony of witnesses and different people see

290 views • 18 slides
Setting the Scene: Neuromyelitis Optica epidemiology, population variability, subgroups:

Setting the Scene: Neuromyelitis Optica epidemiology, population variability, subgroups:

UK Nationally Commissioned NMO team Setting the Scene: Neuromyelitis Optica epidemiology, population variability, subgroups: relapsing/monophasic, Ab +ve/-ve, NMO/SD, treated/untreated Jackie Palace Disclosures J. Palace is partly funded by

446 views • 29 slides
Regulatory Workshop on Clinical Trial Designs in Neuromyelitis Optica and Spectrum Disorders

Regulatory Workshop on Clinical Trial Designs in Neuromyelitis Optica and Spectrum Disorders

Regulatory Workshop on Clinical Trial Designs in Neuromyelitis Optica and Spectrum Disorders United States Perspective Wiley A. Chambers, MD Division of Transplant and Ophthalmology, Office of Antimicrobial Products, Office of New Drugs,

302 views • 13 slides
75 # What happened What went well What needs improvement To your questions Additional Q&A

75 # What happened What went well What needs improvement To your questions Additional Q&A

75 # What happened What went well What needs improvement To your questions Additional Q&A if time permits How might we Curated Q&A per the questions received from What happened IxDA Berlin delivered their fj rst virtual event

1.06k views • 68 slides
The Invest in Kids Act: Tax Credit Scholarships What happened on January 31 st ? What is the

The Invest in Kids Act: Tax Credit Scholarships What happened on January 31 st ? What is the

The Invest in Kids Act: Tax Credit Scholarships What happened on January 31 st ? What is the recovery plan? OCS Leadership Day University of St. Mary of the Lake February 16, 2018 Agenda Review what happened on January 31 st

761 views • 29 slides
2016 legislative update what happened? whats next? What happened? K12 F UNDING 2017 General

2016 legislative update what happened? whats next? What happened? K12 F UNDING 2017 General

B O A L R O D O S H A C S S S O A SCHOOL 2016 C N I A I W L T O I LA O R N A C H CONFERENCE 6 T U 1 0 O 2 S , 8 2 A - 7 U 2 G T U S 2016 legislative update what happened? whats next?

548 views • 15 slides
So we broke all CSPs You won't guess what happened next! whoami and Past Work Michele

So we broke all CSPs You won't guess what happened next! whoami and Past Work Michele

So we broke all CSPs You won't guess what happened next! whoami and Past Work Michele Spagnuolo Senior Information Security Engineer rosettaflash.com bitiodine.net Recap what happened last year Summary CSP is mostly used to

591 views • 47 slides
1 What happened Spring 2020? Moved to virtual visits some institutions having only a few

1 What happened Spring 2020? Moved to virtual visits some institutions having only a few

HLC Guidance in the COVID Era Information for the Michigan Community College Data and Evaluation Committee Conference Linnea A. Stenson, Ph.D. VP for Accreditation Relations Higher Learning Commission| August 4, 2020 1 What happened at HLC?

496 views • 7 slides
1. What happened? 2. What was the response? 3. What were the impacts? 4. What was learnt?

1. What happened? 2. What was the response? 3. What were the impacts? 4. What was learnt?

1. What happened? 2. What was the response? 3. What were the impacts? 4. What was learnt? Prepared by Gavin Fisher, EPA Victoria for NSW health workshop 4 th March2015 Here we will cover.

712 views • 50 slides
1 Suicides in old and new EU Member States: 2007=1 1.35 1.3 1.25 1.2 1.15 We estimate

1 Suicides in old and new EU Member States: 2007=1 1.35 1.3 1.25 1.2 1.15 We estimate

The health effects of a financial crisis: epidemiology on a large scale Martin McKee Hong Kong, August 2016 Twitter: @martinmckee What happened? GDP per capita (2007=1) 1.10 1.05 1.00 0.95 Germany What happened to health? United States

515 views • 12 slides
Fukushima Nuclear Disaster By Andrew Perryman, Caizhi Ming, Ruoheng Pan, William Mitchell, Zan

Fukushima Nuclear Disaster By Andrew Perryman, Caizhi Ming, Ruoheng Pan, William Mitchell, Zan

Fukushima Nuclear Disaster By Andrew Perryman, Caizhi Ming, Ruoheng Pan, William Mitchell, Zan Zhu September 16, 2013 1 Contents 1. What happened? 2. Why it happened? 3. How we prevent it in the future? 2 What happened? 3 Why it

491 views • 13 slides
What will What will we be covering we be covering Who set up the Society What happened

What will What will we be covering we be covering Who set up the Society What happened

What will What will we be covering we be covering Who set up the Society What happened after World War 2 The Society grows Publications The committee and its make up Website A gr A grou oup p of ent of enthu husias

720 views • 47 slides
Whatever Happened To The Indians Not Taxed? And When Did The Congress Say That State

Whatever Happened To The Indians Not Taxed? And When Did The Congress Say That State

Whatever Happened To The Indians Not Taxed? And When Did The Congress Say That State And Local Governments Can Collect Taxes In Our Territories? Tribal Self-Governance Conference Spokane, WA Henry Cagey Lummi Nation Council M +1

191 views • 7 slides
What Happened to D.A.R.E.? Kris Glunt, Prevention Coordinator,

What Happened to D.A.R.E.? Kris Glunt, Prevention Coordinator,

What Happened to D.A.R.E.? Kris Glunt, Prevention Coordinator, EPISCenter Dr. Michael Hecht, Penn State University, Distinguished Professor of Communication Arts

415 views • 18 slides
Washington Water Rights after the Hirst Fix: What Just Happened? And Where Do We Go from

Washington Water Rights after the Hirst Fix: What Just Happened? And Where Do We Go from

Washington Water Rights after the Hirst Fix: What Just Happened? And Where Do We Go from Here? Prepared by Anne Udaloy, LHG 46 th District Democrats Environment and Climate Caucus February 10, 2018 Where to Begin? Water is

275 views • 26 slides
What Do You Know? What do you know about the Roman empire? What happened during the Roman

What Do You Know? What do you know about the Roman empire? What happened during the Roman

What Do You Know? What do you know about the Roman empire? What happened during the Roman invasions? Can you name any key people from the Roman era? What Do You Know? In 55 BC, the Romans already ruled the country that we know today as

151 views • 14 slides
The election happened! Now what? THE ELECTION HAPPENED! NOW WHAT? Cultural factors Fundraising

The election happened! Now what? THE ELECTION HAPPENED! NOW WHAT? Cultural factors Fundraising

The election happened! Now what? THE ELECTION HAPPENED! NOW WHAT? Cultural factors Fundraising as ministry Donor motivations THE ELECTION HAPPENED! NOW WHAT? Cultural factors Fundraising as ministry Donor motivations THE ELECTION

358 views • 23 slides
Sustainable futures What really happened at Rio+20, and what now for Australia? Paul Bateson

Sustainable futures What really happened at Rio+20, and what now for Australia? Paul Bateson

Sustainable futures What really happened at Rio+20, and what now for Australia? Paul Bateson ANZSOG Institute for Governance ICLEI WORLD CONGRESS 14-17 June 2012 Belo Horizonte, Brazil Some historical perspectives: Rio Earth Summit 1992

159 views • 12 slides
TO SEE OR BECOME AWARE OF SOMETHING THAT HAS NOT YET HAPPENED TRAINING THE CRISIS IN CRISIS

TO SEE OR BECOME AWARE OF SOMETHING THAT HAS NOT YET HAPPENED TRAINING THE CRISIS IN CRISIS

TO SEE OR BECOME AWARE OF SOMETHING THAT HAS NOT YET HAPPENED TRAINING THE CRISIS IN CRISIS MANAGEMENT Klas Lindstrm Managing Director 4C Strategies Understand what you need to do to achieve your desired end state Understand Build your

522 views • 30 slides
What Do You Know? What do you know about the Roman empire? What happened during the Roman

What Do You Know? What do you know about the Roman empire? What happened during the Roman

What Do You Know? What do you know about the Roman empire? What happened during the Roman invasions? Can you name any key people from the Roman era? What Would You Like to Find Out? What Do You Know? In 55 BC, the Romans already ruled

518 views • 16 slides
Guided Pathways: Creating a Student-Centered College Convocation Spring 2019 Whats Happened

Guided Pathways: Creating a Student-Centered College Convocation Spring 2019 Whats Happened

Guided Pathways: Creating a Student-Centered College Convocation Spring 2019 Whats Happened Since August? Whats happened since August? - CAGP Institute #4 Redesigning Student Sep Intake and Ongoing Student Support - The 91-Day

434 views • 39 slides

More recommend