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Jun 27, 2023 •284 likes •349 views

Irene Wilson - Group Leader UK Mastocytosis Charity What Happened to me Neuromyelitis Optica happened to me that's what! Diagnosed Edinburgh January 2013 Aguaporin 4 antibody positive 6 lots of Plasma Exchange now on Azathioprine

  1. Irene Wilson - Group Leader UK Mastocytosis Charity

  2. What Happened to me Neuromyelitis Optica happened to me – that's what! Diagnosed Edinburgh January 2013 Aguaporin 4 antibody positive 6 lots of Plasma Exchange now on Azathioprine Complications of Neuromyelitis Optica Complete collapse of T4 and severe anterior subluxation (grade 111/1V) of T3 on T5 with severe stenosis cord compression and myelopathy

  3. January 2013 Paralysed from chest down legs and feet double in size and covered in lesions

  4. 6 lots of Plasma Exchange Four Months in Hospital

  5. Eighteen months on Still undergoing intense physiotherapy Still motor problems Bladder and bowel remain paralysed No relapse Still on Azathioprine

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