OUTLINE • The study • The sample • The findings • The session Conflict of interest: I have no conflict of interest to declare.
THE STUDY • 2 year study (2013-2015) • Funded by CIHR • Conducted in the national capital area • Qualitative study (grounded theory) Lots of research on treatment adherence • • Very little research on the experience of side effects • Goal : gain a better understanding of the experience of side effects • Interviews • Describe the experience with treatment • Describe the experience with side effects • Explain what it means to live with side effects
THE SAMPLE • On average, participants were born between 1960 and 1969 (66%). • Most of the participants were male (74%). • The vast majority of participants had an annual income below $30,000 (86%). • 50% of the participants had a college or university degree.
THE SAMPLE • Year of diagnosis and first treatment were distributed as such within the group
THE SAMPLE • Total side effects experienced
THE FINDINGS
THE SIDE EFFECTS • Context • Historical context • Treatment context • Types • Immediate – Progressive • Transient – Permanent • Hidden – Visible • Minor – Severe • Nature • Unpredictable • Unstable • Highly individual
THE EXPERIENCE • Becoming with • Becoming sick and healthy • Becoming another version of yourself • Becoming a new “normal” Living with • • Living with “powerful drugs in your system” • Living with uncertainties • Living with limitations • Dealing with • Dealing with the side effects • Dealing with the treatment • Dealing with the physician
THE CONNECTIONS • People • Medical specialists • Specialized health care providers • Peers Things • • Drugs • Devices • Objects • Systems • Knowledge systems (dominant and alternative) • Health care system • Welfare system
Instagram: ml_gagnon THE FINDINGS marilou.gagnon@uottawa.ca
THE SESSION Goal: talk about side effects, medications errors, drug interactions and polypharmacy • Michelle Foisy (Northern Alberta HIV Program) • Addressing medication errors in HIV-positive patients • Alice Tseng (University Health Network) • Increase INR after switching from Atazanovir/Ritonavir to Darunavir/Cobicistat in a patient on Warfarin: Boosters are not always equal • Jam Bravo (University Health Network) • Successful use of potent enzyme inducer enzalutamide in a treatment-experienced HIV- positive male with prostate cancer Denise Kreutzwiser (University of Toronto) • • Drug therapy problems in complex HIV/AIDS patients: identification and management by a pharmacist at a community HIV/AIDS hospital
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