The Business of Government: Make It an Experience adobe.com/government @AdobeGov
Adobe Summit: Government The My Health Record Digital Journey Rachel de Sain Executive General Manager, Innovation & Development Australian Digital Health Agency www.digitalhealth.gov.au
Hey, I’m Rachel Χ ε λ λ ο G’day Kia ora Hallo www.digitalhealth.gov.au
www.digitalhealth.gov.au
About Us The Agency is a Corporate Commonwealth Entity funded by all Australian Governments. It designs and operates national digital health services and set data standards that: Give consumers more control of their health and care when they wish it • Connect and empower healthcare professionals • Promote Australia’s global leadership in digital health and innovation • The Agency reports to its Board, appointed by the Minister. The Agency is the system operator for the My Health Record, and a number of other clinical information systems and standards, and commenced operations on 1 July 2016. “ “ Australia is well placed The digital health globally to take market will grow at advantage of this over 25.9% compound growth as a test bed annual growth rate to for health innovation reach $379bn by 2024 and research ” ” Global Market Insights, Hendersen et al. (2016) Inc 23 Nov 2016 www.digitalhealth.gov.au 5
www.digitalhealth.gov.au
Older Australians are the highest increase in uptake, usage and engagement with both internet usage, mobile apps and online services. Figure 1: Accessing the internet, by age, 12 months to June Figure 2: Devices used most often to go online, six (2011 and 2015) months to May (2014 and 2015) Base: Australians (aged 18 and over, and 65 and over) who are internet users. Base: Australians aged 18 and over. Note: Relates to the most often used device to access the internet in the six Note: Relates to ever accessing the internet in the 12 months to June of each year. months to May of each year. Source: Roy Morgan Single Source, June 2011 and 2015. Source: ACMA-commissioned survey, May 2014 and 2015. www.digitalhealth.gov.au
In Australia, 15 per cent of older internet users accessed Figure 3: Health and government information online, July government services, and health and medical information online. 2014 to June 2015 These proportions were closely aligned with the adult Australian online population as a whole. A review of international data showed that the number of older online Australians who access health and government information is significantly lower than their UK and US counterparts. In 2015, 30 per cent of older UK internet users looked up information and services on government or council websites, and 35 per cent accessed information on health-related issues. The proportion of older users of government services online was even higher in the US, where 74 per cent of US internet users aged 65 and over had used a government website for transactions or information in 2010. In comparison, 2013 data on use of health information online Base: Australians (aged 18 and over, and 65 and over) who are internet users. Note: Relates to undertaking one or more internet activities online in the last indicated that only 30 per cent of US adults aged 65 and over had four weeks (July 2014 to June 2015). gone online for health information in the past year. Source: Roy Morgan Single Source, June 2015. www.digitalhealth.gov.au
National Digital Health Strategy Australians value our high quality healthcare practitioners and workers, and generally experience affordable and accessible care Over 65% of respondents say the Australian Over 45% of respondents had difficulty accessing healthcare system is difficult to navigate. People want healthcare when they needed it. Top reasons given: to know the cost, quality, and availability of services - Cost, - Location, and - Couldn’t get an appointment The top three activities people want to be able More than four times as many people want to access to do on their mobile device: their personal health information on their smart 1. Manage their medications phone than do currently 2. Track their health 3. Request refill prescriptions www.digitalhealth.gov.au
www.digitalhealth.gov.au
Delivery themes emerging from consultation Peer-reviewed Interviews Forums S History Evidence u b m Research We are undertaking broad scoping reviews of the international peer reviewed s y i e s e c v s n and grey literature, including publications from key digital health r u i e o S d n organisations, policy and media, as well as conducting targeted interviews i v s E with digital health thought leaders Consultation & Evidence Consultation overview • 3,193 attendees Analysis & Review • 1050 written and survey submission from general public, organisations, PRIORITY technology sector etc. AREAS • 103 forums, meetings and workshops User Needs • Interviewed thought leaders across different sectors • Deep engagement with jurisdictions to understand their strategies and priorities Themes CONSOLIDATED THEMES • Vision 2 3 4 1 Preserve my trust in the • Priority Areas Create an environment where my Support me in making the right Help all the people who care for healthcare system and protect healthcare providers and I can use healthcare choices, and provide me to understand me, and • Initiatives my rights and benefit from innovative me with options together, provide safe and technologies personalised care www.digitalhealth.gov.au
Delivery themes emerging from consultation Support me in making the right healthcare Help all the people who care for me to understand me, choices, and provide me with options and together, provide safe and personalised care “It is vital that medical professionals have access to a holistic view of patient data “[I want] better culturally diverse resources, health literacy and personalised to fully understand the client’s needs…” support” – Healthcare Provider, Female, Qld • 91% of people living with dementia live in the community rely on an informal carer • 11.7% of people >15 years of age in in rural/remote experienced difficulty to support them with 22% relying solely on informal care accessing a doctor Create an environment where my healthcare providers and I Preserve my trust in the healthcare system can use and benefit from innovative technologies and protect my rights "I need to be confident that my information is securely held and that it is not “Our smartphones and tablets need to be an extension of access to the healthcare going to be accessed by unknown people.” system and customizable to our individual needs.” • In the UK, based on a cost to the NHS of £45 per GP visit, ensuring everyone • 7% make an appointment online to see a doctor or organise a hospital appointment had the basic digital skills to access health information online would provide • 83% complete doctor or hospital registration details online before visit savings of around £120 million a year by 2025 • 70% order prescription drug refills using mobile apps on your phone. www.digitalhealth.gov.au
www.digitalhealth.gov.au www.digitalhealth.gov.au
My Health Record An electronic summary of an individual’s health information that can be shared securely online between the individual and registered healthcare Key Facts providers involved in their care to support improved decision making and continuity of care. • There are 230,000 hospital admissions due to medication adverse events per year, costing up to $1.2 “ “ billion annually. My Health Record will reduce this My Health Record is the future of medicine. number. Dr Michael Gannon, President, Australian Medical Association • Empowering people with health care information to support self-management could save $1,300 to $7,515 “ per patient per year. One of the recurring contributory factors identified during health-related coronial investigation and inquests is a failure in • Sharing information electronically about tests could communication, particularly in documentation, discharge and reduce unnecessary duplication by approximately 18% and significantly lower hospital re-admission rates. handover…lapses in communication can have the potential for serious outcomes for patients. I cannot overstate the Ms Ros Fogliani, State Coroner, Western Australia “ importance of effective communication in a health care setting. www.digitalhealth.gov.au
My Health Record The My Health Record is a secure electronic summary of a patient’s health records. It provides an active online record from different sources that over time will follow patients as they move through Australia’s health system. www.digitalhealth.gov.au
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