Gateway Hemophilia Association & Missouri HTC Update Bridget - PowerPoint PPT Presentation

Gateway Hemophilia Association & Missouri HTC Update • Bridget Tyrey, Executive Director

Questions Type questions into Q&A Phone: Text: (314) 482-5973 You may also submit questions through email info@GatewayHemophilia.org

GHA Calendar of Questions Text: Events (314) 482-5973 First in person GHA event is FEW July 10-12, 2020 ***depending on CDC, national, state, and local guidelines

National Updates: https://www.hemophilia.org/Newsroom/NHF-Community- News/Supplemental-MASAC-Statement-Regarding-Home-Delivery-and- Refill-Under-State-of-Emergency-Declaration

GHA’s COVID -19 Resource Page https://gatewayhemophilia.org/covid-19/ Questions Text: (314) 482-5973

Patient Assistance Questions Programs Text: (314) 482-5973

Stay Connected Email: info@GatewayHemophilia.org (314) 482-5973 Facebook, Instagram, & Twitter www.GatewayHemophilia.org https://gatewayhemophilia.org/covid-19/

The John Bouhasin Center for Children with Bleeding Disorders Cardinal Glennon Children’s Medical Center St. Louis University Department of Pediatrics 1465 South Grand Blvd., St. Louis, MO 63104 Phone: (314) 577-5332 Fax: (314) 577-5309 After Hours: (314) 577-5600 Request the Hemophilia doctor on call to be paged Contacts: John Puetz, MD and Chris Hugge, MD – Pediatric Hematologists Lydia Johnson, RN, BSN – Nurse Coordinator Valerie Akerson, LMSW – Social Worker https://gatewayhemophilia.org/resources/treatment-centers/

Saint Louis University Center for Bleeding and Thrombotic Disorders Hemophilia Treatment Center, Adult Program St. Louis University Hospital – West Pavillion 3655 Vista Avenue, 2nd Floor, St. Louis, MO 63110 Phone: (314) 268-7029 Fax: (314) 977-1190 After Hours: (314) 577-8000 Ask the hospital operator to immediately page the Hemophilia Nurse Coordinator or the on-call physician. Contacts: John Richart, MD – Director Azadeh Golkar, RN, MSN, FNP-C – Nurse Coordinator https://gatewayhemophilia.org/resources/treatment-centers/

Missouri Hemophilia Treatment Center University of Missouri Health Care 400 N. Keene Street, Suite 111, Columbia, MO 65201 Phone: (573) 882-3961 Fax: (573) 884-4277 Pediatrics After Hours: (573) 875-9000 Ask for the pediatric hematologist on call Contacts: Barbara Gruner, MD – HTC Medical Director Erin Gillespie, RN – Nurse Coordinator Jessica Wheeler – Data Coordinator https://gatewayhemophilia.org/resources/treatment-centers/

Washington University Center for Bleeding & Blood Clotting Disorders-Adult Program 660 South Euclid Avenue, Campus Box 8125, St. Louis, MO 63110 Barnes-Jewish West County Medical Office Building #2 Center for Advanced Medicine 10 Barnes West Drive, Suite 200 5201 Midamerica Plaza, Suite 2300 Creve Coeur, MO 36141 St. Louis, MO 63129 Phone: (314) 362-8814 Fax: (314) 969-1391 After Hours: (314) 362-1242 Ask for hematologist/resident on call Contacts: Elaine Majerus, MD, PhD – HTC Medical Director Morey Blinder, MD – Adult Hematologist Jaclyn Jump, RN, BSN – Nurse Coordinator Ruth Geronsin, RN, BSN – Nurse Coordinator Sue Pardeshi, RN, BSN – Nurse Coordinator Kate Rogers, ANP Lynn Golec, APRN Katy Peterson, RN, BSN Bill Berger, Special Program Administrator/Social Worker Makenzie Sledd, Physical Therapist https://gatewayhemophilia.org/resources/treatment-centers/

Saint Louis Children’s Hospital One Children’s Place, St. Louis, MO 63110 Phone: (314)454-6018 Fax: 844-621-4392 After Hours: (314) 454-6000 Ask for hematologist/resident on call Contacts: David Wilson, MD, PhD – Pediatric Hematologist (Medical Director) Melanie Fields, MD – Pediatric Hematologist Surbhi Saini, MD – Pediatric Hematologist Angie Kaminski, RN, BSN – Nurse Coordinator Kevin Donze, RN, BSN – Nurse Coordinator Alison Towerman, CPNP – Pediatric Nurse Practitioner https://gatewayhemophilia.org/resources/treatment-centers/

Washington University/St. Louis Children’s Hospital HTC Update By: Bill Berger • We’re open and accessible* to all patients with a safe clinic environment • Many staff are working remotely and only present on campus for clinics • Clinic appointments are being deferred except for urgent needs. Don’t hesitate to call with questions. • For in-person visits, patients will be screen by phone for COVID- 19 prior to appointment and at POC. Please follow physical distancing and wear a face mask at visit.

Update, continued • T elemedicine Visits are being encouraged (see NHF Webinar, 4/10 for details and how to prepare) • MDs and RNs are on-site for both hospital and outpatient • Elective Surgery/Procedures are being deferred • Sign up for patient portal to facilitate communication with your healthcare providers at Wash U/SLCH • COVID-19 infection, hospitalizations, treatment rates are currently at “best case scenario” !

Update, continued • There are no Industry supply/distribution Issues • We’re following recent MASAC #242 Recommendation and Revision regarding home delivery and refills during emergencies (see NHF Website for details) • Call early to request factor refills or discuss your situation, if necessary • BJH and Wash U Clinics currently have adequate PPE and supplies (masks, protective gear, ventilators, etc.)

April 17 is World Hemophilia Day Wear Red, Post a photo, & #WHD2020

Gateway Hemophilia Association & Missouri HTC Q & A Questions Text: (314) 482-5973