CANCON - WP 5 Dissemination meeting CANCON and Member States: How can we collaborate Giovanni Nicoletti Brussels | 23 February 2016
KEY DELIVERABLE A set of “Policy (Position) Papers” focusing “hot themes” on cancer control policies (rather than “scientific” issues) Agreement: Due to restriction in time/resources a limited number of topics will be handled (5 topics in total).
WP 5 Objective • The overall objective of the platform is to invite Member States (MSs) to share about the different challenges they are facing and their experiences, which are a valuable lesson for others. • In addition, sharing knowledge and information can help to solve some of the difficulties that MSs are facing in an ever more complex cancer prevention and control area.
PARTNERS OF THE WP Belgian Cancer Centre, Scientific Institute of Public Health , WIV-ISP (CO-LEADER) Università di Roma La Sapienza-Italy (Supporting MoH IT) Federal Ministry of Health, FOD National Institute of Public Health – Slovenia SloveniaInstitute of Oncology Cluj - Napoca IOCN – Romania [Riga University Hospital REUH - Latvia ] • Ministry of health, social services and equality MSSSI– Spain • Portugal : TBD; CP IPOS host of a subgroup workshop
KEY DELIVERABLE A “policy (position) paper” * is an essay that presents an opinion/appraisal about an issue . As a deliverable of the platform, it: • summarizes the main aspects of a given topics that makes explicit the aspects MSs agree to consider important • openly identifies possible issues in defining a policy at a MS level, • suggests recommendations about advocated policies * Final wording to be adjusted in agreement with all MS: may be Policy Paper
SELECTION OF TOPICS Criteria for selection • MS Scoring Survey • Singular MS willingness to carry a topic out • Stakeholder suggestions
SELECTED TOPICS Writing Group leader Slovenia Common European objectives for National Cancer Control Plans (T. Albreht) Italy A system for assessing and promoting the disinvestment process for re-allocation A. Federici Belgium A Public health genomics approach to “omics” in M. Van oncology denBulcke An impact evaluation system to assess prevention Italy outcomes G. La Torre Spain Equity mainstreaming in the cancer control in Europe Rosana Peirò
SEARCH THE EVIDENCE Accordingly to the mandate of the WP, evidence is OUTPUT relevant in the perspective of making a “policy”; therefore it should include ( when appropriate ): • Secondary level scientific evidence (guide-lines etc): hopefully not primary or not-confirmed data DRAFT 1 • Qualitative data, mainly about the policies already put in place by Countries • Possible economic or socio-demographic data
DELIVERABLES Search of Contents Evidence Policies relevant agreed with and issues submitted to evidence ind.experts established Platform PRE DRAFTING DRAFT 1 DRAFT 2 DRAFT 3 Position paper We are: here GENERAL DISCUSSION
WP 5 Interaction with MS • MS Representatives in CANCON • The Commission Expert Group on CANCER CONTROL • The MS Platform e-tool
POLICY PAPER ON PUBLIC HEALTH GENOMICS Key points: The target group of this position paper is senior policy makers! Thus: provide guidance on how to install a system that brings research into the health care system - who pays what - clinical utility driven approaches
POLICY PAPER ON PUBLIC HEALTH GENOMICS → Translating New Genomic Discoveries into Practice and assessing their Impact on Providers, Patients and the Public's Health: need for an EU approach Belgian test case → Stratified cancer screening? → Germany → “Direct to consumer” cancer testing ?
POLICY PAPER ON NATIONAL CANCER CONTROL PROGRAMMES • EPAAC provided two important deliverables in its exploration of national cancer control plans/programmes/strategies: • A survey of all MS, EEA and candidate countries on their current status of these documents • A European guide on how to approach the preparation of a planning document for cancer care and management • CANCON is going to review the developments and experiences of MSs
POLICY PAPER ON NATIONAL CANCER CONTROL PROGRAMMES • New survey carried out , more systematically prepared • Afterwards a report will be prepared encompassing the current state- of-play and also the difference between the situation in 2011 and today • Finally, the policy paper will build on the positive experiences and developments of MSs in order to provide recommendations and guidance in cancer plans and strategies for both the European Commission and the MSs
POLICY PAPER ON DISINVESTMENT AND REALLOCATION • “..the process of (partially or completely) withdrawing resources from any existing health practices, procedures, technologies or pharmaceuticals that are deemed to deliver little or no health gain for their cost, and thus are not efficient health resources allocation”
DISINVESTMENT AND REALLOCATION : THE GOALS • To provide participating countries with a document outlining the issues to be considered when adopting disinvestment policies in oncology • A general guidance on how disinvestment policies could be framed, to maximize their potential
DISINVESTMENT AND REALLOCATION : THE ISSUES • Distinguishing “disinvestment for reallocation” from mere resource cutting • Definition of diagnostic/therapeutic interventions of interest • Stakeholders’engagement and motivation (health professionals, patients/citizen) • The relevance of international collaboration • Possible priority areas in cancer care (i.e those that could benefit the most from disinvestment policies)
POLICY PAPER ON WP 5 PREVENTION OUTCOME The draft will be presented at the beginning of April. The report contains the first data that synthetize some characteristics of polices/interventions reviewed in the literatures for each four topic. The data will be focused on: Policy/intervention typology • • Setting • Target population • Outcomes: behavior, knowledge or health. • Indicators applied to measure the effectiveness Effectiveness of polices/intervention found with the different • indicators (yes, no, unclear) - At the end of April the draft will be agreed with the Experts - In September the final position paper.
POLICY PAPER ON TACKLING INEQUALITIES IN CANCER PROGRAMMES This policy paper aims to provide very practical • recommendations to embed equity actions within • This policy paper aims to provide very practical National Cancer Plans, cancer prevention and cancer recommendations to embed equity actions within control policies in Europe , underpinned by the experiences National Cancer Plans, cancer prevention and cancer that have been learned in different Member States (MS). control policies in Europe , underpinned by the experiences that have been learned in different As a parallel objective all the compiled evidence will be • publish in a scientific paper Member States (MS). • As a parallel objective all the compiled evidence will be publish in a scientific paper
Scope potential health disadvantaged groups; asses the Impact of cancer prevention programmes, care and rehabilitation services on each of To develop a European European the populations affected ; strategy that provides Level Develop a Comprehensive visibility and awareness of Citizen-Focused Strategy ; the existence of cancer Monitoring and Evaluation inequalities in the cancer continuum. Patient centred Policy recommendations related Human rights Tackling to Research Programmes, Social Benchmarking Quality linked Best experiences and Professional Inequalities to equity. Dignity Exchanges for the improvement of in Cancer Professional Competences. prevention and control for Public European citizens Health and Member Health States Care Health equity level provision Life course approach Key issues of the policy paper Equity in cancer strategy ; Cancer inequalities evidence; Health promotion and cancer prevention policies; Health in all policies ; Train Cancer professional in equity; Community and patients participation
WP 5 Next Steps • Finalizing discussion with MS (late Autumn) • Presentation in Malta CANCON Final Conference (Malta 2017) • Information to the Council (WPPH-SL ?)
Thank You
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