Back ckground • First Nations communities are young • Nearly ½ are under 25 years compared to 1/3 for the rest of Canada • Health disparities exist between First Nations youth and non- Indigenous youth in Canada • Poor nutrition and food insecurity are a big factor • FNFNES food insecurity results: • 41% in BC, 47% in Alberta, 38% in Manitoba, 37% in Saskatchewan, 29% in Ontario, and 31% in the Atlantic, 36% in Quebec and Labrador • Compared to 8% for Canada as a whole • Exposure to contaminants worse if nutrition is poor
Knowledge Gap Kn Gap • First Nations children and youth • Dietary intake • Traditional food use • Exposure to chemicals in the environment • Food and built environment • Housing conditions and Indoor air pollution
Overall Goals 1. M ake government policy and community programming recommendations geared towards the improvement of First Nations children’s health. 2. Build capacity within local First Nations and the Assembly of First Nations Regions to address nutrition and environmental health issues through partnerships and community participation.
Study Components Component 1 Food Environment, Food Security, Nutrition, and Health Component 2 Component 4 Housing Community Conditions, Mobilization and Indoor air FEHNCY Integrated Knowledge Quality and Translation for Respiratory Intergenerational Health Capacity Building Component 3 Exposure to Environmental Contaminants and Social Determinants on Health
Study Partners University of Ottawa (Dr. Laurie Chan, Dr. Université Tom Kovesi) Université de Laval Montréal (Dr. Mélanie Lemire, Dr. (Dr. Malek Richard Belanger, Batal, Dr. Dr. Pierre Ayotte) Genevieve Mercille) Participating First Nations communities Assembly Health of First Canada Nations (Dr. Jiping Zhu) (Dr. Tonio Sadik, Irving Leblanc) McGill University (Dr. Treena Delormier, Dr. Mylene Riva)
Adherence to Important Guidelines and Principles Canadian Institute of Health Research (CIHR) guidelines – These ensure that researchers and institutions are carrying out ethical and culturally competent research involving Indigenous people. – Promote health through research that is in keeping with Indigenous values and traditions. Principles of Ownership, Control, Access and Possession (OCAP TM ) – Each community owns its community data and receives a full dataset following completion of the study. – The First Nations Information Governance Center (FNIGC) will securely store a backup copy of the data on behalf of the First Nation and will not use or provide it to anyone unless explicitly directed to do so by the community. – To develop First Nation capacity to conduct and analyze their own data, a Data Training Workshop will be organized in each First Nation to train community members on basic statistics, proposal writing, applying for funds, and to brainstorm on grassroots, regional, and national programs and policy to improve the health and environment of First Nations children and youth.
FEHNCY Study Design
Proposed Sampling over 8 years (2020-2028) # of Year Fiscal years Region # of participants communities 1 2019-2020 Pilot Study 2 200 2 2020-2021 Atlantic 6 600 3 2021-2022 Saskatchewan 6 600 4 2022-2023 British Columbia 6 600 5 2023-2024 British Columbia/Ontario 3/3 600 6 2024-2025 Ontario 6 600 7 2025-2026 Manitoba 6 600 8 2026-2027 Quebec 6 600 9 2027-2028 Alberta 6 600 10 2028-2029 Analysis and writing Total = 50 Total= 5000
FEHNCY Study Breakdown Part 1. Participatory and Qualitative Research • Participatory Mapping with Children and Youth – 12 children 6-11 years and 12 youth 12-19 years – Talk about community, home and school food environments – Determine how these food environment affects individual food choices and community health • Key Informant Interviews – 12-15 adults (19+) from the community, including traditional food harvesters, social workers, policy makers, store managers, school key informants – Discuss the strengths, weakness and opportunities for the traditional, retail and school food systems in the community Food availability, cost, and quality/freshness in most common community • stores
FEHNCY Study Breakdown Part 2. Household Questionnaire and Inspection • Up to 100 Households per community • Questionnaire focusing on data that are not available for First Nations children and youth – Dietary intake – Traditional food use – Access to traditional and store-bought food Housing conditions and indoor air quality • – Thorough Household Inspection including assessment of mold and conditions that could cause mold to form. – Indoor Air Quality Monitors and dust collection
FEHNCY Study Breakdown FEHNCY Study Breakdown Part 3. Mobile clinic FEHNCY Mobile • Clinical measurements: • Hair sample • Urine sample • Blood sample • Weight, height, waist circumference • Body composition • Blood pressure • Lung function test • Health and Lifestyle questionnaire
FEHNCY Study Breakdown FEHNCY Study Breakdown Part 4. Community Engagement • Community Mobilization – Dissemination to communities and using results for advocacy • Integrated Knowledge Translation – Planning for regular community updates to decisionmakers and broader community • Intergenerational Capacity Building – Centering youth voices: participatory mapping – Establishing committees with intergenerational participation
Community Research Agreement 1. Scope of the Project, Methods and Procedures 2. Responsibilities and Involvement 3. Informed Consent and Confidentiality 4. Expected Outcomes, Benefits and Risks 5. Data Management, Ownership, and Dissemination of Results
FE FEHNCY Ti Timeline (P (Pilot ot y year) • Community consultation (November 2019) • Consultation with Local Health Professional for engagement in Mobile Clinic activities (November 2019) • Negotiation of Research Agreement (Dec 2019) • Hiring of Community Research Manager (December 2019) • Hiring of Community Researchers (January 2020) • Data Collection (Jan-May 2020) • Identification of knowledge carriers for intergenerational capacity building (Jan-May 2020) • Meeting with community members: Interpretation of report cards (June 2020) • Discuss Priorities and Recommendations for Action (July 2020) • Community Report and Presentation (May 2021)
Who is funding this survey? Indigenous Services Canada: First Nations Inuit Health Branch (FNIHB) . Indigenous Services Canada (ISC) works collaboratively with partners to improve access to high quality services for First Nations, Inuit and Metis. Our vision is to support and empower Indigenous peoples to independently deliver services and address the socio- economic conditions in their communities.
For more information, email: lbarwin@uottawa.ca Or by phone at: 613-562-5800 ext. 7214
Confidentiality and Anonymity The health, wellbeing, and safety of children and youth is of the utmost importance to the FEHNCY team. If anyone suspects or observes that a child or youth is at risk, a plan has been created to work with the Band Council and local community health centre to identify next steps. It is required by law to report to the appropriate authority for the safety and protection of the child.
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