AcademyHealth Annual Research Meeting June 25, 2018 To engage with - PowerPoint PPT Presentation

AcademyHealth Annual Research Meeting June 25, 2018

To engage with you about how changes in the ways in which changes in scholarly communication and the generation of new knowledge – open access, open science, open data – are affecting health services research. To inform you about NLM’s vision and engage with you about changing roles and relationships in HSR

 Patricia Flatley Brennan, RN, PhD – Director, National Library of Medicine  Jennifer Hansen -- Senior Officer, Knowledge & Research Services, Bill and Melinda Gates Foundation  Adam Wilcox, PhD -- Chief Analytics Officer and Professor, University of Washington School of Medicine  Lucy Savitz, PhD, MBA --Vice President, Health Research and Director, Center for Health Research, Kaiser Permanente NW Region  Andrew Bindman, MD – Professor, University of California - San Francisco Medical School

Transforming Data into Knowledge and knowledge into health NLM The NIH Strategic Plan for Data Science Patricia Flatley Brennan, RN, PhD NLM Director

NLM Strategic Plan Transforming Data into Knowledge Accelerate Reach more Build a workforce discovery and people in more for data-driven advance health ways through research and through data- enhanced health driven research dissemination and engagement

Accelerate discovery and advance health through data-driven research

Protocols Code Funding Models Clinical Data Library Connect the Study Data resources of a People digital research Instruments enterprise Pathways

Advance research & development in biomedical informatics & data science

Foster open science policies & practices

Create a sustainable infrastructure

NIH Strategic Plan for Data Science: Cross-Cutting Themes • Support common infrastructure and architecture on which more specialized platforms can be built and interconnected • Leverage commercial tools, technologies, services, and expertise ; adopt and adapt tools and technologies from other fields • Enhance the nation’s biomedical data-science research workforce : improved training programs, novel partnerships • Ensure NIH-supported data resources are FAIR • Ensure information security of patient and participant data • Improve the ability to capture, curate, validate, store, and analyze clinical data for biomedical research • With community input, develop, promote—and refine as needed— data standards • Coordinate and collaborate with federal, private and international funding agencies and organizations to promote economies of scale and synergies and prevent unnecessary duplication

Reaching NLM emey87 / IconArchive / CC BY-NC-ND-4.0 @NLM_news patti.brennan@nih.gov @NLMdirector October 12, 2017

Lisa Lang, MPP Assistant Director, Health Services Research Information and Head, NICHSR langl@nlm.nih.gov October 12, 2017

• HANSEN SLIDES October 12, 2017

• WILCOX SLIDES October 12, 2017

• SAVITZ slides October 12, 2017

• Bindman slides October 12, 2017