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Methods and Uses in Care Settings Roxanne E. Jensen, PhD - PowerPoint PPT Presentation

Current PRO Collection Methods and Uses in Care Settings Roxanne E. Jensen, PhD AcademyHealth Annual Research Meeting June 26, 2017 Rapid Adoption in Clinical Care Settings New Methods Item Response Theory Computer Adaptive Testing


  1. Current PRO Collection Methods and Uses in Care Settings Roxanne E. Jensen, PhD AcademyHealth Annual Research Meeting June 26, 2017

  2. Rapid Adoption in Clinical Care Settings • New Methods – Item Response Theory – Computer Adaptive Testing • New Tools – Patient-Reported Outcomes Information System (PROMIS) • New Technology – April 3, 2010

  3. New Technology: The iPad Era (2010) Before After • Often Paper • Electronic • Closed Systems • Web-Based • High Hardware Costs, • Lower Costs & Patient in-house development Awareness • Patient-Level Use Only • Clinic & Population-Level Monitoring

  4. PRO Use in Clinical Care • Individual Care – Patient fills out a PRO – Scores are reviewed by Clinician – Examples: Depression Screening, Symptom Monitoring during Chemotherapy, Decision Support • Clinic-Level Evaluation – Quality of care evaluation – Quality Improvement – Example: % Screened for Depression

  5. Data Collection Methods 1. Paper Collection 2. Independent Electronic System 3. Internal Collection within EHR system

  6. PRO Collection Method #1 • Paper Collection – Patient fills out a paper PRO measure – All scoring is done manually by staff • Care Integration – Discussed in care visit – Uploaded to EHR • Scanned Paper Form • Manual Data Entry • Manual PRO Documentation in the Clinic Note

  7. Strengths/Weaknesses • Best suited for simple screening tasks – Quick Scoring Screening Measures for Immediate documentation or use. – Quality Evaluations based on screening tasks being performed. • May be preferred by some patients • Score review and reporting options are limited

  8. Paper Assessment MRN:_______

  9. Paper Assessment MRN:_______

  10. Paper Assessment MRN:_______

  11. PRO Collection Method: #2 • Independent Electronic System – Stand-alone system – Electronic PRO collection – 3 rd party vendor – Developed internally • AKA… – ePRO – Side Car – Wrap Around

  12. ePRO Care Integration • Highly Customizable • Visual Formats and Measures • Collection Methods (Apps, Web) • Staff Management Support and Tools • Communication with EHR systems • Data pushed to the EHR in real-time • Data linked to discrete EHR data fields • EHR data pulled to inform assessment

  13. Strengths/ Weakness • Often built with symptom monitoring and decision support goals. • Systems require more steps to log-on, administer and review content. • Data Integration with an EHR system is often limited – Difficulty identifying eligible patients – Difficulty pushing information into EHR system

  14. External System: Care Prompter

  15. Lombardi Electronic Distress Screening Program • All new patients screened in clinic after check-in • High scores are: – Followed up on by a social worker – Available for review in the EHR.

  16. Integration into EHR

  17. PRO Collection Method #3 • Internal Collection within EHR system – PRO assessment is collected as an integral part of the EHR – Often assessed through a patient portal – Structured data (responses and total score) are accessible

  18. Strengths/ Weakness • Allows for real-time integration of content for clinical decision-making • Easier aggregation of PROs alongside other standard performance measures • PRO content and display options can be limited. – Assessment – Score Report and Interpretation

  19. Lurie Screening Initiative

  20. In-Clinic Assessment Using iPads

  21. Lurie Screening Initiative • PROMIS CAT • Practical Needs & Other Concerns: – Pain – Social work needs – Fatigue – Informational – Physical Function needs – Depression – Nutritional status – Anxiety Total Length: ~ 40 items (8-10 mins) Frequency: Once every 30 days paired with visit Pearman et al, 2016; Wagner et al, Cancer, 121(6): 927-934, 2015

  22. Integration Into Clinical Care • Assessment results populated in Epic – Other Orders tab – .dot phrases for charting • Messaging for severe symptoms – Based on PROMIS T-Score Severe Cut Points. – MD & RN messages when Anxiety > 65 – MD & RN messages when Pain > 70

  23. Discussion & Conclusion • Strengths and Weaknesses of each PRO system depends on: – Purpose – Availability – Cost & Expertise Available – Workflow Considerations

  24. Further Reading: Snyder C, Wu A (Eds). Users’ Guide to Integrating Patient-Reported Outcomes in Electronic Health Records. Patient-Centered Outcomes Research Institute, 2017. Available at: https://www.pcori.org/document/users-guide-integrating- patient-reported-outcomes-electronic-health-records

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