A nationwide campaign to spread the correct information for rheumatoid arthritis (RA) 2nd Gold Ring Campaign – Love for Women in RA Jung-Soo Song, M.D., Yeong-Wook Song, M.D. National Action Network, South Korea. 1
Contents 1.Introduction of the 2nd Gold Ring Campaign. 2.Programs • Nationwide lecture on arthritis. • Nationwide Free Clinics: Anti-CCP/ Ultrasound Test for Arthritis • Analysis of Patient clinical data • Media program • Homepage/ Campaign materials 3. Evaluation of the 2nd Gold Ring Campaign. 2
1. Introduction to the 2nd Gold Ring Campaign (Hope, Promise, & family) 3
2nd Gold Ring Campaign • Annually from 2008 to 2012, the campaign is in progress. (In 2011, this campaign was named as Gold Ring Campaign) • Programs support increasing willingness of patients coping with the disease and provide substantial benefits to patients with RA. • The enhancement of awareness of the seriousness of RA based on statistics and inventory. 4
Concept of the 2nd Gold Ring Campaign • Combine ‘hope,’ the tagline of previous ‘Love for Women’ campaigns, & ‘promise’, the meaning of Gold Ring. • Promise refers to commitment to effort and action for aggressive treatment with a hope for complete recovery (Take your life back) beyond the awareness of the seriousness of RA. • It also means a patient’s willingness and action to treat herself aggressively and ‘promise’ between various stakeholders - promise between ‘patients and doctors’, ‘patients and patients’, ‘doctors and doctors’ and ‘patients and family members’. 5
Overview (1) 1. Objective • Raise the importance of early detection & aggressive treatment patients with RA. • Expand social & political support for treatment in RA patients. • Increase the awareness of RA in the general public 2 . Date :March ~ July, 2012 3 . Target : RA patients and their families, the public, doctors, government officials. 4 . Strategy • Providing practical benefits for patients through Programs such as arthritis lectures and free check-up for arthritis. • Discovering potential RA patients through the Anti-CCP test. • Exposing media through data from cohort study of Korean RA 6 patients
Overview (2) 5. Key Messages • Early diagnosis & active treatment is important. • It is important that RA patients set a treatment goal with their doctors and discuss and determine treatment information and modality. • RA is a disease that requires active support for adequate treatment. 6. Host * Korean College of Rheumatology (KCR). 7
Campaign Sponsors Ministry of Health and Welfare Women News (newspaper company) Host: KCR (Korean College of Rheumatology) Penguin Association Korean Women’s Association United (RA patients association) Pharmaceutical company Pharmaceutical company 8
Campaign main programs Media Program Nationwide arthritis lecture Homepage Free Check-up Analysis of for the patients diagnosis Of RA clinical data 9
Campaign Program Strategy Concentrated for Patients’ Benefits !!! • Understanding real condition through Data Analysis Data analysis • Delivered message to patients and publics through using Media • Solution of Curiosity for patients through Use of Homepage Specialist consultation (Specialist • Increase a patient’s willingness by establishing Consultation /Treat treatment guidelines • Raise the awareness of the campaign over SNS Regulation/ Exercises) • Effect of education on disease and illness treatment using patients’ access program Nationwide • Delivering detailed messages about treatment arthritis lectures/Free of potential patient through free check-up check-up 10
2. Programs 11
Program timeline March 5 Press Release on Data about pregnancy March 14 Press Release on July 23 Nationwide Disease Media Lectures ·Free check-up Press Release on Activity Data about Comorbidity March 28 ~ April 4 Media Plan(TV) Media plan (Feature Article) March May June April July April 6 ~ April 27 March 8 ~ March 31 • Progression Nationwide Disease Lectures· Free • Launched Website Check-up for Campaign • Lecture on Exercises with Chairman of association, • Online Specialist Mrs.Lee(April 6, Chung-Ang University) Consultation • Deliver Results of Anti-CCP Check-up Programs • Development for Campaign Poster • Purchased Gimmick for patients and KOL • Preparing banner for Nationwide Disease Lectures • Delivery Schedule about Ultrasound Machine for Arthritis • Preparing Anti-CCP Check-up 12
Introduction to Main Program � Nationwide arthritis lecture � Nationwide Free Clinics � Update Website � Press release on analysis of DATA / Online Specialist / Media Program Consultation 13
Nationwide Arthritis Lectures 1.Objective • Increase awareness of RA & emphasize the importance of early detection . • Deliver useful information for the patients with RA. 2. Date/Place * April, 2012 / Nationwide 15 hospitals. 3. Target * RA patients, their families and public. 4. Agenda • Subject : RA treatment and management • Arthritis lecture – Q&A session/ Hospitals prepared their own program. 5. Results • Help patients understand the arthritis. • Deliver correct information about RA • Reinforced awareness of the campaign through arthritis lectures. 14
Nationwide Disease Lectures 15
Free Check-up on Anti-CCP & Ultrasono in Arthritis Reduction of economic burden on RA patients by supporting the cost of 1. Objective diagnostic test. April, 2012 2. Date • Anti-CCP test : 13 University & general hospitals 3. Place • Ultrasound test for arthritis : 12 University & general hospitals 3. Target RA patients and attendees of the arthritis lecture. • Anti-CCP test: blood sampling on the day of free exams 4. Program → deliver results after analysis • Joint ultrasound exams: ultrasound exams on the day of free exam → deliver printed ultrasound images on site. • Among 244 patients who had an anti-CCP test, 52 were diagnosed with RA 5. Results • Joint ultrasound exams were performed at each hospital independently • To reduce an economic burden from RA and offer an opportunity to discover potential patients 16
Free Check-up about Anti-CCP & Ultrasound in Arthritis 17
Analysis of Patient’s clinical data-Pregnancy On international Women’s Day (March 8th), to attract media attention to RA and raise 1. Objective the awareness of the importance of RA for the patients and the public 99 in 1,358 RA patients who report whether they have experience of pregnancy 2. Target after the onset of RA • Analysis on the outcome of pregnancy in women with planned and unplanned 3. Contents pregnancies • Analysis on drugs used by women with planned pregnancies • Women with a planned pregnancy maintained a pregnancy three times higher rate 4. Results compared to those with an unplanned pregnancy. • Drugs used by women with a planned pregnancy include steroids (50%), DMARDs (17.9%) and NSAIDs (8.9%) • For press release, deliver T2T messages for female patients with RA. 18
Analysis of patients’ clinical data-related to co-morbidities By attracting media attention to RA, raise the awareness of the disease among patients 1. Objective and the public Among 4,672 RA patients, the risk of cardiovascular disease (1,228 patients) / 2. Target hypertension (4,646 patients) / hyperlipidemia (1,089 patients) / metabolic syndrome (1,161 patients) was analyzed • The risk of cardiovascular disease in RA patients was analyzed 3. Contents • Prevalence of hypertension and drug use/goal achievement were analyzed • Prevalence of hyperlipidemia and drug use/ goal achievement were analyzed • Gender difference in RA patients with metabolic syndrome was analyzed • An analysis shows that RA patients are more at risk of cardiovascular disease 4. Results than healthy people, and the risk of cardiovascular disease increases with longer disease duration. • In case of hypertension and hyperlipidemia, a high percentage of patients receive drug therapies after diagnosis, but the percentage of patients who reach treatment goals is low, indicating the disease is undermanaged • In case of metabolic syndrome, male patients were higher than female patients, 19 co-morbidity rates are higher in severe RA patients or with longer disease duration
Media Program To deliver key messages using diverse media 1. Objective April ~ July, 2012 2. Date • Press Release: 3. Contents - Data on Pregnancy and Comorbidity, Nationwide Disease Lectures and Free Check-up. - Pregnancy Data: Analysis on the maintenance of pregnancy in women with planned and unplanned pregnancies. - Co-morbidity Data: Through the analysis on the risk of co-morbidity, the importance of aggressive treatment is delivered to patients. • Interview/Feature Article: Kuki News(Interview on Prof. YW Song, Chairman of KCR), The Kukmin Ilbo, The Ajnews • TV: MBC News, KBS News SBS News (Interview of Choi, Chan-Beum, part of the Korean College of Rheumatology's Publicity Committee ) • Highlight the situation of RA patients through news releases on data analysis 4. Results • Encourage patients’ participation through health lectures, free health checkups and news releases • Raise the awareness of RA and campaigns through interviews and press articles. 20
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