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11/2/2018 PARENT/CAREGIVER PARTICIPATION IN THERAPY IMPROVING - PDF document

11/2/2018 PARENT/CAREGIVER PARTICIPATION IN THERAPY IMPROVING OUTCOMES FOR CHILDREN AND THEIR FAMILIES INTRODUCTIONS Maria Jones, PT, PhD mjones1@okcu.edu Cynthia Barger-Fenton, MA, CCC-SLP cbfosu2@gmail.com Tai Allen, OTR/L


  1. 11/2/2018 PARENT/CAREGIVER PARTICIPATION IN THERAPY IMPROVING OUTCOMES FOR CHILDREN AND THEIR FAMILIES INTRODUCTIONS  Maria Jones, PT, PhD mjones1@okcu.edu  Cynthia Barger-Fenton, MA, CCC-SLP cbfosu2@gmail.com  Tai Allen, OTR/L taimtorbett@yahoo.com OBJECTIVES  Understand the importance of parent participation in therapy  Illustrate strategies used to foster parent participation  Reflect on current practices and devise a plan for improving parent participation 1

  2. 11/2/2018 PARENT PARTICIPATION WHAT IS IT? PARENT PARTICIPATION – WHY IMPORTANT?  Honor the parent/family expertise  Parents/families are central to the child’s life  Parents/families have a unique set of values and relationships  Parents/families are in the lead and have ownership  Family life provides rich sources for child learning and development  Improved outcomes when families participate in interventions  Practice opportunities PARENT PARTICIPATION WHAT DO VARIOUS PROFESSIONS SAY ABOUT IT? 2

  3. 11/2/2018 PARENT PARTICIPATION  Oklahoma Parent Organizations  American Occupational Therapy Association  American Physical Therapy Association  American Speech and Language Association  Oklahoma State Department of Education  Oklahoma SoonerStart Early Intervention  Others? PARENT PARTICIPATION – WHEN? Evaluation of Plan Effectiveness Assessment development Intervention /Measuring /Goal Setting Outcomes HOW TO BEGIN THE CONVERSATION  How do you feel about daily routines?  T ell me about….  Child’s participation  your dreams, hopes, and goals  Satisfied  a typical weekday  What works?  a typical weekend  What doesn’t?  special times your family has shared together  Priorities  family traditions and celebrations  Avoid yes/no questions 3

  4. 11/2/2018 PARENT PARTICIPATION – HOW DO YOU IMPLEMENT?  Strategies  Obstacles and barriers IMPLEMENTATION WHAT STRATEGIES DO YOU CURRENTLY USE? IMPLEMENTATION WHAT BARRIERS HAVE YOU ENCOUNTERED? 4

  5. 11/2/2018 PARENT PARTICIPATION WHERE DOES IT TAKE PLACE? EVALUATION THE EFFECTIVENESS Ongoing All phases process Prioritized Measures Goals to Use OUTCOMES 5

  6. 11/2/2018 MYTHS  The strategies discussed don’t work with ALL families  The families I work with are uninterested or disengaged  You are trying to make parents be the therapist  I work in a clinic/school/etc, so this won’t work in my setting  I have to use standardized testing as an outcome measure QUESTIONS 6

  7. References Adams, R.C., Tapia, C., & Council on Children with Disabilities. (2013). Early intervention, IDEA Part C services, and the medical home: Collaboration for best practices and best outcomes. Pediatrics , 132(4), 1073-1088. doi:10.1542/peds.2013-2305 American Occupational Therapy Association. (2014). Occupational therapy practice framework: Doman & process. Amercian Journal of Occupational Therapy, 69 (Supplement 1), S1-S51. Bruder, M.B., & Dunst, C.J. (1999). Expanding learning opportunities for infants and toddlers in natural environments: A chance to reconceptualize early intervention. Zero to Three , December 1999/January 2000, 34-36. Campbell, P.H., & Halbert, J. (2002). Between research and practice: Provider perspectives on early intervention. Topics in Early Childhood Special Education, 22 (4), 213-226. Childress, D., Hill, C., Jackson, S., Miller, T., & Plitt, M. E. (2015). Virginia’s coaching facilitation guide . Retrieved from Virginia Common Wealth University, Virginia Early Intervention Professional Development Center website: http://www.veipd.org/main/pdf/coaching_fac_guide_5.26.16.pdf Cooper-Duffy, K., & Eaker, K. (2017). Effective team practices: Interprofessional contributions to communication issues with a parent’s perspective. American Journal of Speech- Language Pathology, Volume 26 , 181-192. Cosbey, J. & Muldoon, D. (2017) EAT-UP ™ family-centered feeding intervention to promote food acceptance and decrease challenging behaviors in children with Autism Spectrum Disorder: A single case experimental design replicated across three families of children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 47 (3), 564-578. https://doi.org/10.1007/s10803-016-2977-0. Cosbey, J., & Muldoon, D. (2018) EAT-UP ™ family-centered feeding intervention to promote food acceptance and decrease challenging behaviors in children with Autism Spectrum Disorder: Report of follow-up data on a train-the-trainer model using EAT-UP™. American Journal of Speech-Language Pathology , 27 (1). 278-287. https://doi.org/10.1044/2017_AJSLP-17- 0105. Crais, E.R. (1991). Moving from “parent involvement” to family-centered services. American Journal of Speech-Language Pathology, 1, 5-8. Fava, L., Strauss, K., Valeri, G., D’Elia, L., Arima, S., & Vicari, S. (2011). The effectiveness of a cross- setting complementary staff-and parent-mediated early intensive behavioral intervention for young children with ASD. Research in Autism Spectrum Disorders , 5 (4), 1479-1492. Darrah, J., Law, M., & Pollock, N. (2001). Family-centered functional therapy: A choice for children with motor dysfunction. Infants and Young Children, 13 (4), 79-87. Dunn, W., Cox, J., Foster, L. Mische-Lawson, L., & Tanquary, J. (2012). Impact of a contextual intervention on child participation and parent competence among children with autism spectrum disorders: A pretest-posttest repeated measures design. Amercian Journal of Occupational Therapy, 66 (5), 520-528. Dunst, C.J. & Raab, M. (2004). Parents' and practitioners' perspectives of young children's everyday natural learning environments. Psychological Reports, 93 , 251-256. Dunst, C. J. & Trivette, C. M. (2012). Moderators of the effectiveness of adult learning method practices. Journal of Social Sciences, 8 (2), 143-148. Early Intervention Program for Infants and Toddlers With Disabilities; Assistance to States for the Education of Children With Disabilities; Final Rule and Proposed Rule, Volume 76, Number 188, 34 C.F.R. § 303.118 (2011). Foster, L., Dunn, W., & Lawson, L.M. (2013). Coaching mothers of children with autism: A qualitative study for occupational therapy practice. Physical & Occupational Therapy in Pediatrics, 33 (2), 253-263. doi:10.3109/01942638.2012.747581 Friedman, M., Woods, J., & Salisbury, C. (2012). Caregiver coaching strategies for early intervention providers: Moving towards operational definitions. Infants and Young Children , 25(1), 62-82. doi:10.1097/IYC.0b013e31823d8f12

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