your life tells a story and there is someone out there
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Your life tells a story and there is someone out there who needs to hear it. You may think that your story is not sensational, but it does not have to be sensational, it just has to be sincere. Mark Brown, the Toastmasters International 1995


  1. Your life tells a story and there is someone out there who needs to hear it. You may think that your story is not sensational, but it does not have to be sensational, it just has to be sincere. Mark Brown, the Toastmasters International 1995 World Champion of Public Speaking

  2. The I Impor ortance o of T Telling Y Your S Story: REACHIN HING S STATE P E POL OLIC ICY-MAKERS RS THE G GRASSROOTS P PERSPECTIVE Marion Holmberg, Alliance for Citizen Directed Supports

  3. Policy Matters

  4. If we want to create systems that improve peoples lives and advance their rights and freedoms we need to work together!

  5. Advocacy Must Be Anchored by Values Individuals who receive services and supports know their needs best and are in the best position to plan and manage their own services (ASD website) People are experts of their own lives Self-direction and full citizenship are fundamental human rights

  6. To change p policy, tell g good s stori ries a and w work rk to together her w with a h all s stake e holders

  7. Eff ffective ve A Advo voca cacy- How t ow to Tell Y Your S Story This Photo by Unknown Author is licensed under CC BY-NC-ND IF YOU’RE NOT AT THE TABLE, YOU’RE ON THE MENU

  8. The Four Advocacy Essentials Why is your issue Who are you? What is your issue? important What do you want the elected official/policymaker to do about it?

  9. A stor ory i y is the l e lived ed e exper erien ience o e of a per erson o or group t that explain lains h how p pol olicy af y affec ects the e lives o of rea eal p peop ople le “We are hard wired to listen to stories” • Stories capture attention--bring people to the table—create collations and collaboration—create policy changes that improve a person’s life—their story gets better. • Sharing a personal story is available to everyone. You don’t need years and years of advocacy experience to tell your story • Stories bring everyone to the table • Stories are about personal connection This Photo by Unknown Author is licensed under CC BY

  10. How do you tell a powerful story? • Have a story that is relatable • Show policy makers the conflict between policy and people’s lives • Have a clear ask! What do you want the policy maker to do and how would that change your story?

  11. In 2015, self- direction (IRIS) in Wisconsin was on the menu. Grass roots sprang into action.

  12. Everything but the kitchen sink  Social media  Phone calls  Stories through surveys  Legislative visits  One pagers  Press releases  Rally This Photo by Unknown Author is licensed under CC BY-SA And if we thought it would be effective, we would have thrown that in too!

  13. It i is All a about t the St Stor ories a and t the “ “Ask.”

  14. One story is good Two stories are better When we work together to share our stories we are unstoppable Build Alliances

  15. Alliances Survival Coalition Save IRIS AARP Wisconsin BPDD Long-term Care Coalition InControl

  16. This Photo by Unknown Author is licensed under CC BY-SA-NC In the end all our efforts

  17. Advocacy Never Ends Reorganize Work with coalitions Influence new system Create a blue print Testify at hearings for new system AND SOMETIMES YOU WIN!

  18. Advocacy Continues Work to improve the system Build relationships Grow more advocates This Photo by Unknown Author is licensed under CC BY

  19. Bec ecome a an advocat ate Share your story and help others share their story. When we as stake holders work together to tell our stories, we change policy!

  20. Questions? Marion Holmberg Communications/Member Engagement Coordinator The Alliance for Citizen Directed Supports Thank y ank you! u! marionholmberg@hotmail.com 262-527-4375 https://citizendirectedsupports.org/

  21. Advocacy and Self-Direction I T ’ S A B O U T S U R V I V A L

  22. Lobbying  Lobbying – synonyms:  Smoke-filled room  Back Room deals  Corrupt  Dirty  Part of the problem

  23. Lobbying – Perceptions

  24. Lobbying – Wu-Tang Style

  25. Lobbying - Reality

  26. Lobbying vs. Advocacy  Lobbying is a tool in our Advocacy toolbox  Advocacy – education on a specific issue or issue topic  Lobbying – attempts to influence specific legislation or regulations at the local, state, or Federal level

  27. Without advocacy and lobbying, you are not acting in the best interest of your agency, your consumers, or the program overall

  28. What is your role as an advocate  Raise awareness  Improve outcomes  Inform a constituent base  Be an expert  Influence the discussion

  29. Creating a Campaign Plan  An advocacy campaign without a plan is a waste of time and energy.  Remember, lobbying is one tool in the advocacy toolbox, it is NOT the entire toolbox.  It's not even our greatest tool.

  30. Midwest Academy Strategy Chart From Organizing for Social Change, Midwest Academy

  31. Other Tools in the Toolbox  Lobbying  Press/Media  Organizing  PACs  Electoral Work

  32. Tools in the Toolbox Image from re:power

  33. Organizing  Your most effective advocates are your consumers and their workers.  Always build your list.  Stories from those who rely on the program create a narrative.  Consumers and workers are more compelling than you.

  34. Organizing – Harsh realities  Organizing is hard.  You cannot just pay lip service or be perceived as using your consumers and their workers – it has to actually be about them.  You will not organize overnight. Build now for what you will need tomorrow.  Sustain communication with your grassroots.

  35. Media Earned Media Unearned Media  Human interest stories  Paid - TV, Radio, Billboards  Reports  Who are you targeting  Support from high profile allies  Include an "ask"  Op-Eds  Build your campaign  Letters to the Editor  Know your budget – once you start, you can't stop.  Be Creative!

  36. Social Media  Have a staff person responsible for social media  Know how social media fits into your campaign  Always be building – consistency is key  The best unearned media is now social media  Highly specific targeting  Affordable on a low budget  Builds your network for future organic campaigns  BE CAREFUL

  37. Electoral Work 501(c)3 work Partisan work  Candidate forums  Endorse candidates  Strategic/transactional  Issue based  Candidate questionnaires  Embed with campaign  Turn out volunteers  Education  Materials that speak to your  Candidates grassroots  Your grassroots  GOTV  GOTV

  38. Lobbying  Pulls it all together  Use your grassroots  You are the experts – they need you.  Have paper – one pagers  Talk from consumer and worker perspectives.  Tell a story, it's sales!

  39. QUESTIONS? B R Y A N O ’ M A L L E Y E X E C U T I V E D I R E C T O R B R Y A N @ C D P A A N Y S . O R G C O N S U M E R D I R E C T E D P E R S O N A L A S S I S T A N C E A S S O C I A T I O N O F N E W Y O R K S T A T E 5 1 8 - 8 1 3 - 9 5 3 7 W W W . C D P A A N Y S . O R G

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