University of Hawaii Center on Aging The series is supported in part - PowerPoint PPT Presentation

University of Hawaii Center on Aging The series is supported in part by a cooperative agreement No. 90AL0011-01-00 from the Administration on Aging, Administration for Community Living, U.S. Department of Health and Human Services. Grantees carrying out projects under government sponsorship are encouraged to express freely their findings and conclusions. Therefore, points of view or opinions do not necessarily represent official AoA, ACL, or DHHS policy. The grant was awarded to University of Hawaii Center on Aging for the Alzheimer’s Disease Initiative: Specialized Supportive Services Program 1

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Creating Dementia- Friendly Communities Presented by Terry Barclay, Phd, LP and Michelle Barclay, MA ACT on Alzheimer’s & The Barclay Group, LLC  3

What is dementia? A brain disorder that causes a decline in memory and intellectual functioning from some previously higher level of functioning severe enough to interfere with everyday life Dementia is NOT normal aging! 4

Dementia Causes Alzheimer’s disease: 60-80% FTD Includes mixed AD + VD • Lewy Body Lewy Body Dementia: 10-25% Dementia Parkinson spectrum  Vascular Dementia: 6-10% Vascular Dementia Stroke related  Alzheimer’ s Disease Frontotemporal Dementia: 2-5% Personality or language  disturbance 5

Alzheimer’s Disease (AD)  Scope of the problem  5.3M Americans with AD in 2015  Growing epidemic expected to impact 13.8M Americans by 2050 and consume 1.1 trillion in healthcare spending  Almost 2/3 are women (longer life expectancy) 6

Dementia Facts Of those with Alzheimer’s disease: higher risk: Older African Americans (2x as whites) Older Hispanics and Latinos (1.5x as whites)

Impact on Families

Impact on Community

“Having dementia is very tough, but having a city who excludes dementia – that is really tough. - Bart Deltour Foton Dementia Charity Bruges, Belgium Alzheimer’s Disease International:  Dementia-Friendly Communities: A Global Overview 10

WHO: Age-Friendly Communities  An age-friendly city optimizes opportunities for health, participation and security by adapting it’s structures and services to be accessible and inclusive of older people with varying needs and capacities. 11 http://apps.who.int/iris/bitstream/10665/43755/1/9789241547307_eng.pdf

Age-Friendly Communities 12

What is a Dementia Friendly Community? All sectors are informed, safe and respectful and foster quality of life (age vs. dementia friendly)

Dementia is a global issue. Dementia-Friendly Communities: UK • Scotland – Dementia Friends • Australia • France • Belgium • Italy • Austria • Germany • The Netherlands • Japan • India • UNITED STATES • 14

Minnesota: ACT on Alzheimer’s 15

What is ACT on Alzheimer’s? 500+ 60+ statewide volunteer driven O R G A N I Z AT I O N S I N D I V I D UA L S collaborative I M P A C T S O F A L Z H E I M E R ’ S PERSONAL BUDGETARY SOCIAL

ACT Common Agenda 5 shared goals with a health equity perspective

Sector-Specific Dementia-Friendly Practices Businesses • Community-based • supports Faith communities • Health care community • Legal and financial • services Local government • Residential settings •

DF Health Care  Timely identification and diagnosis of dementia, educate patients and caregivers and refer to community resources  Actions:  Training on dementia  Administer objective assessments  Use ACT on Alzheimer’s clinical practice tools  Offer disease specific information and information on community services and supports

DF Community-Based Supports  Supports that help people maintain independence and quality of life  Actions:  Service providers use best practices in serving people with dementia  Dementia specific education, counseling and support  Meaningful engagement activities: memory café, art, music, dance

DF Financial/Legal Services  Legal and financial advisors may be the first to identify cognitive decline  Actions:  Education on recognizing dementia  Webinars on assessing client capacity, elder abuse, neglect and exploitation  Know the local services to help people with dementia and their caregivers

DF Faith Community  Safe, supportive and welcoming environment for people with dementia  Actions: Offer dementia training to clergy or  staff Support the person with dementia:  offer short devotions, encourage people to talk openly about dementia and participate in services as appropriate Support the caregiver: recognize signs  of caregiver stress and refer to appropriate resources Create a dementia friendly  environment

DF Residential/Memory Loss Services  Residential settings that serve and support people with dementia  Actions:  Identify champions for maintaining dementia readiness across the organization  Educate and train all staff about dementia  Manage dementia across the continuum using best care practices

DF Businesses  Businesses that are meeting the needs of customers and employees  Actions:  Educate staff on dementia and effective communication skills  Become aware of local services to help people with dementia  Ensure the environment is dementia friendly  Offer support to employees who are caregivers

DF Local Government  Dementia awareness in community planning and emergency response  Actions:  Provide dementia training to city/county staff who work with the public, emergency responders, and law enforcement

Equip Communities & Raise Awareness  Develop a Community Toolkit to foster dementia-friendly communities  Support community implementation of the toolkit www.actonalz.org/toolkit Funders: Blue Plus (HMO affiliate of Blue Cross Blue Shield of Minnesota); Medica Foundation; Greater Twin Cities United Way

Community Toolkit Phases Convene key community leaders and members to understand 1. dementia and its implications for your community. Then, form an Action Team. Engage key leaders to assess current strengths and gaps in your 2. community using a comprehensive engagement tool. Analyze your community needs and determine the issues 3. stakeholders are motivated to act on; then set community goals. ACT together to establish implementation plans for your goals 4. and identify ways to measure progress.

Convene Phase: The Action Team

Engage Phase: Actions Needed Sectors:  Define your community Adult day  Caregiver support providers   Determine who to survey and who will survey Employers/businesses  Health providers   Target sectors Legal and financial planners   Include diverse Local government  populations Residential settings  Social service agencies  Transportation  Faith communities 

Analyze Phase: Planning for Action Look for: High Priority, Low Activity areas of need

ACT Together  Dementia Friends awareness and education program  Business, healthcare, government, law enforcement, youth, first responder and faith trainings  New caregiver supports, respite and trainings  New meaningful engagement opportunities for persons living with dementia (e.g. arts)

Spotlight Program: Dementia Friends Dementia Friends Scotland: www.dementiafriendsscotland.org Dementia Friends UK: www.dementiafriends.org.uk https://vimeo.com/109053654 32

Dementia Friends: MN Pilot www.actonalz.org/ dementia-friends COMING SOON: Dementia Friends USA www.dfamerica.org 33

MN Communities in Action 34 Action Communities  Awareness and education: Dementia  Friends Caregiver supports  New, meaningful community  engagement opportunities (arts, music) Cross-Sector Engagement and  Training: business, government, law enforcement, youth, first responder and faith Health system adoption of optimal  dementia care practices

Community: Twin Cities Jewish Clergy training  Caregiver panel  Presentation on dementia-related  behaviors Communication tips  Keeping the Spirit Alive community  gathering Film series: Love, Loss, Dementia  and Family Relationships Teen training  Dementia Friends 

Community: Cambridge  Private screening of “l’ll be Me”  Dementia education for physicians  Guest editorials in local paper  Project lifesaver in partnership with Isanti County Sheriff department

Community: Walker Dementia-friendly businesses:  Education on AD  Communication techniques  Community resources

DF DFA C Communities Early Adopters Committing/Preparing Inquiring Minnesota Boston Montgomery County Prince Georges West Virginia County, MD Denver, CO Santa Clara County, CA Tempe, AZ 

Desired Impact: Is There a Finish Line? Person with Community System Dementia Capability: Capability: Well-Being Adoption of dementia Adoption of optimal Care Partner friendly practices dementia care and Efficacy within and across all supports in health, community sectors long term care and Care Partner (e.g., faith, business, community services Support and government, health Family Health care)