THE EMPLOYMENT ODYSSEY: A VIEW FROM THE CLIFF PRESEN T ED BY ST EPH AN I E M ACK AY, CH I EF I N N OVAT I ON OFFI CER, COLU M BU S
MILLENIALS—THE POST-ADA GENERATION • 1975 Education for all Handicapped Children Act (Public Law 94-142) changed the integration of children into education, the building block for a future • 1990 American with Disabilities Act guaranteed equal access for individuals with disabilities • 2004 IDEA (Individuals with Disabilities Education Act) updated original Public Law 94- 142)
DISABILITY STATISTICS • 1 in 5 individuals in the general population has a disability • 1 in 10 families is impacted by developmental disabilities • 1 in 11 adults ages 16-64 is not in the workforce
LABOR STATISTICS 2014-15 Labor rate participation rate ages 16-64 (either employed or looking for employment (www.dol.gov/odep/): • 68.3% participation rate by adults without disabilities • 19.2% participation rate of adults with disabilities Unemployment rate: • 4.5% unemployment for adults without disabilities • 12.1% unemployment for adults with disabilities Not counted in the labor force: • 10,000,000 with disabilities who aren’t counted 3 generations after 94-142 and ADA, true unemployment rate is 65-90% depending on disability
FEDERAL REGULATIONS THAT PROTECT, FUND, BEFUDDLE FEDERAL AGENCY SERVICES Department of Justice ADA (10 Federal agencies ensure compliance) Public Education Special Education, Vocational Rehabilitation, Ticket to Work, Pathways to Careers Department of Labor 14C wage protection; FMLA Health and Human Services Medicaid funding for IDD support Dept. Agriculture SNAP, EBT, WIC HUD Section 8 Housing Social Security Social Security Disability Insurance (SSDI), Administration Supplemental Security Income (SSI) Transportation Public transportation Executive Branch President’s Committee for People with Intellectual Disabilities, WIOA, Section 503
FEDERAL TO FAMILY Federal funding, statutes, rules, compliance State match, distribution, compliance, case management Local distribution through counties and municipalities Services provided through school districts, social services agencies, nonprofits Families receive services and supplement based on need, income, etc.
THE LIFECYCLE OF A FAMILY WITHOUT A DISABILITY Family & Child Public Education Acquisition of Family (ages 6-18) Income and Tax- Supported Services Employment = Paycheck, benefits, taxes, continuing education
THE LIFECYCLE OF A FAMILY WITH A DISABILITY Family & Child Redistribution of Public Education Family Resources (ages 6-22) for Caregiving Government Entitlements & Social Services
LIFE FROM 0 TO 22 Ages 18-22 Socialization with peers Ages 6-17 Medical care Socialization through family and peers Post-secondary Ages 0-5 education Medical care Socialization through Childhood family Employment development Medical care Public education Childhood development Pre-school
THE CLIFF Ages 23+ Independent living Ages 6-22 dependent on family IDEA/IEPs circumstances Ages 0-5 Medical care/behavior Safety net through Diagnosis intervention entitlements Medical intervention IDD support services Preparation for Behavior intervention employment through VR support services limited resources Family support SSDI and/or SSI Case management Insurance/Medicaid Caregiving Guardianship Insurance Special needs trusts Family finances Sibling relationships Caregiving costs Case management FMLA
A FAMILY THAT FACED THE CLIFF See their stories at: https://www.youtube.com/user/columbuscommunity
CAN WE LEVERAGE INNOVATION? Family with a Family without a disability disability Employment = Government Paycheck, benefits, entitlements & taxes, continuing social services education Can we find innovation in this space?
LEVERAGING INNOVATION IN UTAH TO SHIFT THE PARADIGM • Nearly 0% unemployment in Utah and business leaders need to tap into an emerging labor force • 2% of population with ASD • Government leaders want to respond to the need State funding agencies are talking to each other and service • providers • Social Impact Investing is being operationalized • Social Impact Bonds are shifting funding paradigms • Activist parents are being heard and taking action • Conservative state with entrepreneurial business climate (e.g. “Silicone Slopes”) • University research and resources in cross disciplines • Co-location of services geographically • A strong ethic of service operationalized at all levels of society
FOCUS ON SUSTAINABLE, INNOVATIVE, TRANSFORMATIVE SOLUTIONS Nonprofits Government Employers Family Funding Research sources Education
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