Sustained and Meaningful Involvement in Health Research • Warning: This session is Agenda highly interactive! • Introductions: to each • Please help us get other and to the topic started. • A series of exercises to • Please sit at tables with explore: a min of 4 people and a • Research Design max of 6 • Research management PPI / governance • Data Collection • Dissemination PREPARE TO ENGAGE!!
Sustained and Meaningful Involvement in Health Research Maura Adshead Alphonse Basogomba
1 Find a stranger… • And ask • Who they are? • Where they’re from? (in terms of this workshop) • Are they involved in a project? • What is the project?
What is Engaged Research? Engaged Research describes a wide range of rigorous research approaches and methodologies that share a common interest in collaborative engagement with the community and aim to improve, understand or investigate an issue of public interest or concern, including societal challenges. Engaged research is advanced with community partners rather than for them. See: https://goo.gl/NPxHJz
Engaged Research Framework
PPI : – engaged research practice in health research • PPI shares a common values base with all Engaged Research in its focus on research: • Co-design • Governance • Data collection • Dissemination
Who is ‘the community’? A great deal of engaged research refers to ‘community engagement’ Community refers to a range of Identifying your research stakeholders, project including public or stakeholders professional service & product users, policy makers, and civil society individuals or organizations
2 Project Stakeholders? • Who is interested in your research? • Who might be interested in your research findings? • Who could benefit from your research? • Whose insights could your research benefit from?
Implementing Engaged Research • For the remainder of the workshop, we will explore our project as a case study to help you think about your own potential PPI project. We’ll look at: • Research Design • Research management / governance • Data Collection • Dissemination
3 Choose a case study • Take 10 minutes to view the projects. • Put a green sticker on the one you’re interested in developing. • Red on the one that you are not interested in – explain why • Yellow on the one that you wouldn’t mind • => this is the typical modus operandi for co- design in engaged research
Count Me In Governance Structures
4 Project Management • Design the governance structure • Does it benefit from all relevant insights? • How have you gained access to relevant insights? • Do you need specialist support? • How are stakeholders represented?
5 Agreeing Project Outputs For your chosen project – assign role play for your key stakeholders… • what do you each want? • what can you each deliver? • do you need additional supports to deliver some outputs? => Does the project structure need to change to accommodate this?
6 Data collection • What will you do? • Case study / Questionnaire Survey / Focus groups / data analysis / pilot study • How will you do it? • Who will collect the data needed? How will they be recruited? • What methods will you use? • How inclusive and/or representative is your study?
7 Dissemination • How will you get the results of your research to all stakeholders? • Compare the list of stakeholders from Exercise 2 with the list of outputs you agreed in Exercise 5 • Are project findings being delivered to all of your stakeholders? How? • Do you need to think of additional outputs to ensure a reach to all stakeholders?
8 • What evidence will there be for the impact of your work?
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