Regional Leadership Forums on Advanced Illness Care The Coalition To Transform Advanced Care Eugene Washington PCORI Engagement Award
• C-TAC’s Vision: all Americans with advanced illness will receive comprehensive, high-quality, person- and family-centered care that is consistent with their goals and values and honors their dignity • Approach: empower consumers, change the health delivery system, improve public and private policies, and enhance provider capacity • Partners: 140+ members, including foundations, health systems, payers, etc.
Background • C-TAC is widely recognized as a leading organization for empowering stakeholders in the field of advanced illness care. • PCORI’s Eugene Washington Engagement Award provides C-TAC the opportunity to disseminate PCORI-funded research relevant to advanced illness to health system leaders, patient advocates, and other key stakeholders around the country.
Objectives & Format Four presentations (one by each PCORI lead researcher), followed by a Q&A, then a networking reception. Forums Highlight evidence-based, person-centered models of care for people with advanced illness to engage stakeholder leaders, healthcare practitioners, and are patient advocates who can facilitate dissemination and implementation. intended Spark enduring partnerships between researchers and regional leaders. to: Deepen our ties with the communities we aim to empower through engagement. Support PCORI’s commitment to capacity building by developing awareness, infrastructure, and partnerships that lead to implementation of PCORI-funded research results.
Only considered completed projects or projects with posted results that have entered peer review for inclusion in the forums Healthcare leaders, content experts, and patient representatives reviewed and approved research projects that would be Selection & highlighted in each forum All projects were screened for actionable and meaningful results Design Criteria Emphasis was placed on current research Preferences were given to those studies with potential for widespread applicability rather than disease-specific research
Review Process C-TAC convened a committee of healthcare leaders to review and provide feedback on the scan and categorization of project-relevance: • John Mulder, Medical Director, Trillium Institute • John Richardson, Vice President of Payment and Policy, Healthsperien • Maggie Rogers, Director of Research, CAPC • Don Casey, President, American College of Medical Quality • Suzanne Mintz, Independent Consultant • Grace Whiting, CEO, National Alliance for Caregiving • David Brown, CEO, Curadux • Angela Overton, Senior Advisor to the Interfaith & Diversity Workgroup, C-TAC
• Communication & Decision Making Communication was chosen as the leading forum topic because it is an essential component of all advanced illness care. Final Final • Supporting Caregivers Forum Fo This forum will focus on developing a positive image of caregivers, Topic To providing resources in communities where they are needed most, and strengthening caregiver and patient voices in the treatment Se Select ction ons decision process. • Quality / Models of Care C-TAC is committed to disseminating effective care models and supporting their implementation wherever possible.
Final Selected Studies Communication & Decision Making Supporting Caregivers Quality / Models of Care Seattle Boston Dallas • Preparing Spanish-speaking Older • Do Palliative Care Teams in Nursing • Identifying Which Transitional Care Adults for Advance Care Planning Homes Improve the Quality of End- Services Matter Most to Patients and Medical Decision Making | of-Life Care for Nursing Home and Caregivers – The ACHIEVE Study Rebecca Sudore, UCSF Residents? | Helena Temkin-Greener, |Mark V. Williams, MD, University of University of Rochester • Health System Intervention to KY Improve Communication About End- • Evaluating a New Patient-Centered • Equipping You for Success: Training of-Life Care for Vulnerable Patients | Approach for Cancer Care in J. Randall Curtis, Cambia Palliative for Family Caregivers in Team-Based Oncology Offices | Sarah Scholle, Care Center of Excellence DrPH, MPH, National Committee for Medical Decisions | John Schall, Quality Assurance MPP, Caregiver Action Network • A Multicenter Trial of a Shared Decision Support Intervention for • The Role of Multidisciplinary Care • Improving Communication for Patients and Their Caregivers Planning on Survival, Care Quality, Chemotherapy: Addressing Offered Destination Therapy for and Satisfaction for Patients with Concerns of Older Cancer Patients End-Stage Heart Failure: The Lung Cancer | Raymond U. and Caregivers | Supriya Mohile, DECIDE-LVAD Trial | Larry A. Allen, Osarogiagbon, MD, Baptist Memorial MD, MHS, University of Colorado, Hospital-Tipton MD, MS, University of Rochester Denver • Care Align Initiative: A Pilot Project • Testing a Way to Help Patients • Pilot Project: Improving Patient Care on Coordination of Care for Frail with Dementia and Their by Helping Patients and Doctors Elderly | Caroline Blaum, MD, MS, Caregivers Set Goals for Care | Communicate Better | Ming Tai- NYU Langone David B. Reuben, MD, UCLA Seale, PhD, MPH, Palo Alto Medical Foundation Research Institute)
Example of Impact ct: Preparing Spanish-speaking Older Adults for Advance Care Planning and Medical Decision Making • Dr. Rebecca Sudore’s project; an example of person-centered, actionable research related to advanced illness care • Compared the effectiveness of two approaches to advanced care planning among Spanish-speaking older adults • Findings: the addition of a culturally-tailored, Spanish version of a website resulted in more Spanish-speaking patients to have their wishes documented in their health record and engage in advance care planning activities
Save Th The Date! September 2019 July 25, 2019 September 6, 2019 (TBD) Supporting Caregivers Forum Communications & Decision Making Quality / Models of Care Dallas (American Heart Seattle (Cambia Grove) Boston (Petrie-Flom Center at Association Headquarters) Harvard Law School)
Summary C-TAC is partnering with PCORI for six This series of Regional Leadership Forums To ensure that impactful research was regional forums in major cities around the is designed to put evidence-based, selected, a committee of healthcare country. (3 forums in 2019, 3 forums in person-centered models of care for leaders, experts, and patient 2020) people with advanced illness in the hands representatives convened by C-TAC of stakeholder leaders, healthcare reviewed and approved the PCORI-funded 2019 Cities: Dallas, Seattle, and Boston practitioners, and patient advocates who research projects to be highlighted during 2020 Cities: Currently Under Development can see them implemented. each forum
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