NATIONAL SOCIETIES’ MEETING NATIONAL PROJECT UPDATE OCTOBER 10-11 2015, INNSBRUCK, AUSTRIA
RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS • Russian Dialysis Soc ie ty joine d with Sc ie ntific Soc ie ty of Russian Ne phr ologists and Russian Assoc iation of Rhe umatologists oje c t : to c re a te a da ta b a se a nd c o lle c t • Aim of the pr info rma tio n a b o ut pa tie nts with ANCA-a sso c ia te d va sc ulitis thro ug ho ut Russia n F e de ra tio n, to e va lua te inc ide nc e , c linic a l pre se nta tio n, tre a tme nt mo da litie s a nd o utc o me s, a nd pub lish da ta in Na tio na l a nd I nte rna tio na l pe e r-re vie we d jo urna ls t date : Ja nua ry 2015 • Star • … A. Andruse v L . K nya ze va P. No viko v T . Be ke to va L . K o zlo vska ya N. Ple sha ko va L . Birjuko va G. L ukina V. So ro tska ya S.Bo ro vo y N. Mukhin N. T o milina F . Dmitrie va R. Mukhina L . Va lishina A. E lo na ko v E . Na so no v E . Za kha ro va
RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS • K a za n Re g io na l Clinic a l Ho spita l • K ursk Re g io na l Ho spita l • Mo sc o w City ne phro lo g y Ce ntre • Mo sc o w City Ho spita l n.a . S.P. Bo tkin • 1-st Mo sc o w Me dic a l Sta te Unive rsity n.a . I .M. Se c he no v • Mo sc o w Re g io na l Re se a rc h Clinic a l I nstitute n.a . M.F . Vla dimirsky • Re se a rc h I nstitute o f Rhe uma to lo g y n.a . V.A. Na so no va • St-Pe te rsb urg Re g io na l Clinic a l Ho spita l • T ula Re g io na l Clinic a l Ho spita l • Ufa Re g io na l Clinic a l Ho spita l • Vo ro ne g j Re g io na l Clinic a l Ho spita l • Ya ro sla vl City Ho spita l • a nd o the r re g io na l Ce nte rs…
RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS • Re g istry wa s c re a te d a nd is susta ine d b y re g ula rly upda te d da ta b a se • Spe c ific a lly de sig ne d c ha rt, c o nta ining info rma tio n a b o ut ma in dia g no sis, c linic a l pre se nta tio n, c o urse o f the dise a se , se ro lo g y, pa tho lo g y, tre a tme nts, VDI a nd BVAS sc o ring b e fo re tre a tme nt a nd 3, 6 a nd 12 mo nths a fte r initia l tre a tme nt, c o mplic a tio ns a nd o utc o me s will b e use d • Ana lysis a nd pub lic a tio ns o f Re g istry da ta will b e pe rfo rme d a nnua lly b y the g ro up o f e xpe rts unde r the a e g is o f thre e pa rtic ipa ting Na tio na l So c ie tie s
RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS Curre ntly 3 c e nte rs (a ll fro m Mo sc o w) • a lre a dy pa rtic ipa te in the Re g istry T o ta l numb e r o f pa tie nts, inc lude d into • the re g istry – 104 Ab o ut 80 pa tie nts a re e xpe c te d to b e • inc lude d to the e nd o f 2015
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