My daily job Slvia Rodrguez Torres CF-reference nurse June 2017 - PowerPoint PPT Presentation

The CF-specialist nurse My daily job Sílvia Rodríguez Torres CF-reference nurse June 2017

The CF-nurse at Sant Joan de Déu´s hospital CF-Diagnosis Successive visits IV home treatment Others Sputum control Sweat test: - Vital signs monitoring First time: (heart rate, breath rate, Newborn screening program - Negative: discharge - Hospitalisation 24h-48h x pulse oximetry- SpO2,…), database control PICC and education weight, height. - Positive: blood test + ANF Successive IV treatments: Telematical assistance - Anamnesis - Coordination with CF- - Short stay unit admission: E-Health portal - Treatment control Team visits PICC, educaction and Research - Education discharge (at home). - CF-nurse contact Continous learning - Sputum Visits weekly with the CF- - New ST team - Annual blood test except OGTT (lab) PAC

My warriors Carla 7 years old F508del homocygosis Pancreatic insufficiency Neonatal screeening diagnosis PS.A since 05/16

Lucia 10 years old 1811+1 1,6kbAG / 3272-26>G Pancreatic insufficiency Neonatal screeening diagnosis PS.A since 2007 ABPA since 2015 M. Avium Pancreatitis + Hepatitis

Xavi 19 years old F508del / Q890X Pancreatic insufficiency Neonatal screening diagnosis SA + PS.A + ABPA + Mycobacterium abcessus Gluten intolerant PAC

Thank you!