If this curriculum is targeted for investigators, I think you may - PDF document

From: Robert Oshima To: Senaida Poole Cc: Joan Venticinque; Rose Marie Colbert; Lori Marx-Rubiner; Katherine McKenzie; senaida.poole@gmail.com Subject: Re: Looking for comments on Investigator-advocate collaboration timeline Date: Wednesday, November 16, 2016 1:43:45 PM Attachments: Slide suggestion RGO 11_18_16.pptx If this curriculum is targeted for investigators, I think you may need an early “ buy in” slide before explaining how advocates are involved in the proposal process. Attached is rough idea. Somewhere else it would be great to have documentation available about concrete examples. As I mentioned in our meeting, examples of outstanding and unacceptable proposals would likely be very useful to investigators. How exacting that gets incorporated in current plans is not clear to me. Finally, if there are good examples of institutional support or organization, investigators could take those examples to their own institutes for consideration. By the way, congratulation on the success of improving the advocate involvement as indicated in the data evaluation document. Robert Oshima Professor Emeritus Sanford Burnham Prebys Medical Discovery Institute 10901 North Torrey Pines Road La Jolla, CA 92037 rgoshima@SBPdiscovery.org 858 646 3147 On Nov 16, 2016, at 10:11 AM, Senaida Poole <senaida.poole@ucop.edu> wrote: Joan, is it possible to draft this type of graphic for “during funded project”? Best, Senaida From: Joan Venticinque [mailto:jv.design@sbcglobal.net] Sent: Sunday, November 13, 2016 7:32 PM To: Senaida Poole Cc: Rose Marie Colbert; Lori Marx-Rubiner; rgoshima@SBPdiscovery.org; Katherine McKenzie; senaida.poole@gmail.com Subject: Looking for comments on Investigator-advocate collaboration timeline Hello Everyone, I did a couple of quick timeline graphics for investigator-advocate collaborations on the LOIs and full proposals. I look forward to your comments at our Advocacy

How can advocates help with your research? 1. Does your research address topics important to breast cancer patients? a. Consultation with advocates BEFORE definition of research project if possible. 2. Ensure clear communication of the potential impact of your project with the CBCRP council and the public a. Feedback on lay abstract of LOI b. Feedback on full proposal c. Evaluation and advocate education of normal experimental progress d. Disseminate results of project to public e. Champion how your research will translate into practice .

Advocate involvement in your CBCRP project • There are three main areas: – Letter of Intent (LOI) – Application – Funded project

From: Joan Venticinque To: Senaida Poole Cc: Rose Marie Colbert; Lori Marx-Rubiner; rgoshima@SBPdiscovery.org; Katherine McKenzie Subject: Re: link to slide deck - advocacy involvement technical assistance Date: Sunday, November 27, 2016 4:31:11 PM Attachments: Joan"s comments on slides 11.27.16.docx Hello everyone, I hope you all had a great Thanksgiving and enjoyed a little down-time to rest. Lori, I hope you are out of the hospital and feeling stronger. I spent some time looking at the Advocacy slide presentation. First of all, great job Senaida! It is coming together. I have attached a Word document with my suggestions. Most of it is a reordering of the slides. I think in “like” chunks of information and I organized it as such. Please let me know if I left any out. This is only a suggestion and I would like to hear your thoughts. Senaida, let me know what else you need help with. I will be at the San Antonio Breast Cancer Symposium from December 5-9th. Also has JoAnn Loulan and Stina Singel joined our committee? If they have, please forward this email to them. Thanks everyone for your work on the Advocacy Committee. Best, Joan On Nov 21, 2016, at 1:34 PM, Senaida Poole <senaida.poole@ucop.edu> wrote: Dear Committee Members, I’ve uploaded a copy of the slides in their draft form on google slides: https://docs.google.com/presentation/d/1uxONpnCjIug5cBHWCoT0 D3O8i8e81VrSoeH5NagrWzI/edit?usp=sharing You can click the link above to check them out at any time. I’ll be working directly on the slide deck in google slides. Best regards, Senaida Senaida Poole, Ph.D. Program Officer Community Initiatives and Public Health Sciences California Breast Cancer Research Program University of California Office of the President

Joan ’ s comments on slide November 27, 2016 I would change the order of the slides slightly. My thinking is to put the general information about advocates at the beginning followed by the slides involving advocates in CBCRP research. Then information on the application processes followed by the info on how do I find an advocate. I would suggest adding a quote from an investigator on each title slide throughout the presentation instead of it being a standalone slide (currently slide 11). General information on advocacy and advocates slides Slide 1: What is Research Advocacy? current slide 2 Slide 2: Who are Advocates? (Title Slide) current slide 1 Slide 3: Advocates current slide 3 Slide 4: Patient Advocate Backgrounds Varied current slide 5 Slide 5: Why is Advocacy Involvement Important? (Title slide) current slide 6 Slide 6: How Are Advocates Trained? current slide 34 Slide 7: Multiple Ways Advocates Receive Training current slide 35 Slide 8: How Can Advocates Help With Research (Title slide) current slide 10 Slide 9: Current slide 9 – Add title current slide 9 Slide 10: Roles Advocates Play in Research current slide 13 Slide 11: Resource: Reading List on Advocacy (note: this could go at the end) current slide 14 Slide 12: Advocacy Involvement Strengthens Breast Cancer Research current slide 7 Slide 13: Multiple Organizations and Funders Concur current slide 8 Start CBCRP specific information slides Slide 14: What Do We Mean By Advocate Involvement (Title slide) current slide 15 Slide 15: Requirements for Advocates in CBCRP Funded Research current slide 4 Slide 16: Roles Advocates Play in Your CBCRP Research Project (Title slide) current slide 12 (Make no.16 a title slide and divide the three areas advocates play a role into the following three slides three slides.) Slide 17: LOI & Application Preparation and Submission–List current slide 12 Slide 18: Research Project –List current slide 12 Slide 19: Clinical trials –List new slide Slide 20: CBCRP Advocacy Involvement current slide 16 Slide 21: Steps for Successful LOI & Proposal Submission (Title slide) current slide 27

LOI information slides Slide 22: A Complete LOI Includes current slide 17 Slide 23: Involvement of Advocates current slide 18 Slide 24: Advocate Documentation current slide 19 Slide 25: IDEA LOI Review Criteria Graphic current slide 20 Slide 26: Translational LOI Review Criteria Graphic current slide 21 Slide 27: Steps for a Successful LOI Submission graphic current slide 28 Slide 28: Suggested Timeline for LOI Submission current slide 29 Slide 29: Additional Tips current slide 31 Proposal information slides Slide 30: IDEA &Translational Application Graphic current slide 25 Slide 31: A Complete Application Includes current slide 22 Slide 32: Advocacy Involvement current slide 23 Slide 33: Letter of Commitment current slide 24 Slide 34: Advocacy Involvement in Funded Projects current slide 26 Slide 35: Suggested Steps for Successful Proposal Submission current slide 30 Slide 36: Suggested Timeline for Proposal Submission new slide Slide 37: Additional tips new slide Slide 38: How Should Advocates be compensated? (Title slide) current slide 32 Slide 39: Compensation current slide 33 Finding an Advocate slides Slide 40: Where Do I Find an Advocate? (Title slide) current slide 36 Slide 41: Multiple Resources for Finding an Advocate current slide 38 Slide 42: Start Early current slide 37 (We could possibly omit this slide as the information is covered on the Additional Tips and Timeline sections.) Resources slides Slide 43: Resources: Technical Assistance (Title slide) current slide 39 Slide 44: List Out the Resources current slide 40