You are welcome to add your name onto this presentation if you are presenting. • Introduce yourself and your involvement with BCNA • Explain your attendance at BCNA’s National Summit and why your are sharing this information 1
• BCNA is Australia’s peak national organisation providing information and support to people affected by breast cancer. • BCNA was established 16 years ago. • BCNA’s mission is to inform, support, connect and represent Australian affected by breast cancer. • BCNA is represented by the Pink Lady • The network is made up of over 100,000 member and more than 300 support groups 2
In 2012 BCNA identified that they were reaching 84% of Australians affected by early breast cancer with their key resource- My Journey Kit. BCNA identified that it was likely that some of the women being missed would be those from non-English speaking backgrounds. At this point BCNA made it a priority of the organisation to provide accessible and appropriate information and support for women with breast cancer from diverse cultural backgrounds. To identify what was currently available to these women and what the needs were BCNA consulted with the breast cancer, cancer and multicultural sector and also surveyed Breast Care Nurses from around Australia. It was clear that there was a need for comprehensive information and support for women affected by breast in languages other than English and BCNA developed a cultural diversity strategy to help address this gap in Australia. In order to identify the top 5 priority languages BCNA looked at breast cancer incidence by country of birth and English language proficiency. Based on this data, BCNA’s current priority languages are Italian, Greek, Arabic, Chinese and Vietnamese. 3
To find out what information and support was required, BCNA held focus groups with women who had been affected by breast cancer or knew someone who had been affected by breast cancer from each of the priority languages groups. BCNA asked the women: -What information would you have liked to received in your language at the time of your diagnosis? -What was the most important information for you? -How would you have liked to receive information? Written, face to face, audio? -What were the challenges that you faced at time of your diagnosis? -What was your personal experience and what information/messages would you like to pass onto other women who are diagnosed with breast cancer? 4
Based on what women told BCNA in the focus groups and the outcomes of BCNA’s consultation with other organisations and health professionals BCNA developed some key projects to help improved information and support for women from diverse cultural backgrounds who are affected by breast cancer. You will cover these projects off in more detail over the next few slides so be brief here. • Booklets and audio files in the five priority languages with important information as identified by the women who participated in the focus groups. • Easy English version of the booklets and audio for women from other language backgrounds who have some English language skills. • Information in priority languages other on BCNA’s websites • Volunteer BCNA Community Liaisons from different cultural backgrounds • Information days in languages other than English • Community connects and partnerships 5
BCNA developed four booklets. The content of the booklets was developed based on key themes from the focus groups. These booklets also include quotes throughout from women who participated in the focus groups. The booklets have been translated into the 5 priority languages. The booklets are provided as a full set and come with a CD with audio of a women reading the booklets in language. The booklets are in a bilingual format. The English text runs alongside the translations so that health professionals and English speaking family members can also refer to the information. Run through what information is covered in each of the booklet topics. 6
Italian booklet set with Italian CD 7
The Chinese resources are written in Traditional Chinese. The Chinese CD comes with both Mandarin and Cantonese audio files in the one CD cover. 8
Arabic booklet set with Arabic CD 9
Greek booklet set with Greek CD 10
Vietnamese booklet set with Vietnamese CD 11
Key messages: • All resources were translated by professional and accredited translators who are based in Australia and understand the Australian context within the booklets such as the Australian health care system and the Cancer Council. • All content and translations were checked by at least 2-3 women from each language group to ensure that the resources were culturally appropriate, to ensure that what BCNA wrote in English was translated accurately and that the booklets are easy to read. • The booklets are in a bilingual format. The English text runs alongside the translations so that health professionals and English speaking family members can also refer to the information. • The booklets and CD come as a set and are not ordered individually • There is an Easy English version of the resources available for women who speak other languages but have some English language skills • BCNA encourages for the resources to be ordered with the English resource called My Journey Kit . This resources is more comprehensive and the woman may have a family member or friend who can assist with this information. 12
• All BCNA resources are free. There is NO cost for postage. • Resources can be ordered on BCNA’s website using the My Journey Kit order form or directly from the language specific pages which will be explained shortly. • Alternatively resources can be ordered by phoning BCNA. • If an interpreter is required, BCNA as free access to the National Translating and Interpreting Service. 13
BCNA now has information on their website in languages other than English. This information can be accessed from BCNA’s home page by clicking on the scrolling languages banner at the top of the page in the middle. 14
When the scrolling banner is clicked on a list will drop down. Select the language you require. 15
• This will take you to the language specific page. From this page you can download the Greek booklets, listen to the Greek audio files and order hard copies of the resources. • You can also be directed to information about cancer in Greek from other reputable organisations such as Cancer Council VIC and NSW. • The English version of the text is directly below. 16
• BCNA has 270 volunteer Community Liaisons nationally. • Community Liaisons speak about their personal experience with breast cancer and represent BCNA in their local communities. BCNA provides a 2 and a half day training to all Community Liaisons. • BCNA has always welcomed women from diverse cultural backgrounds to join the Community Liaison program. However since 2013 BCNA has been actively seeking women from diverse cultural backgrounds to join this program. • BCNA currently has 16 active Community Liaisons from diverse cultural backgrounds and they speak 9 different languages all up. • These women also help strengthen links between BCNA and different communities which is integral to the success of all projects. 17
• BCNA has been holding information session for women affected by breast cancer in English all around Australia for many years. Recently BCNA has been working on extending this program and working with other community organisations to hold information sessions in languages other than English. • BCNA held an information day for 100 Greek women in Melbourne in November 2014. All presenters, including an oncologist, social worker and support group leaders, presented entirely in Greek. • These events are a great opportunity for BCNA to work collaboratively with other community organisations that represent different cultural groups and make lasting connections with women affected by breast cancer in these communities. 18
• BCNA needs your help to reach the women in your community who need these resources. • Please think about how you can promote these resources and the support that BCNA can provide to women from diverse cultural backgrounds affected by breast cancer through your networks • Make contact with BCNA if you would like more information, if you would like to stay in touch with BCNA to keep up to date or if you know of opportunities for partnership or collaboration 19
Feel free to also provide your contact details on this slide if you feel comfortable 20
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