Disclaimer I have nothing to disclose. What is CEID? The Hearing - PDF document

UCSF Developmental Disabilities Conference Communication Options A Bay Area Model Program: Family Centered Early Intervention Jill Ellis, M.Ed. Founder Center for Early Intervention on Deafness . Disclaimer I have nothing to disclose. What is CEID? The Hearing Society & First Congregational Church  Student photos

NHS in the 1970’s & 1980’s Average age of ID: 2.5 years No state NHS 50% unknown etiology 1/2000 babies Body hearing aids No Early Start  1035 Grayson Street West Berkeley Services available at CEID  Home Visits  Comprehensive Audiology  Parent ‐ Child Playgroups  Sign Language  Diagnostic and Dispensing  Deaf ‐ Blind  Community Hearing  Listening & Spoken Screenings Language  Down Syndrome  Pediatric Provider Training  Toddler & Preschool Classes  Other Consulting  Deaf Mentors  Family Support Activities  Charter Schools  Speech Therapy  Medical Providers  Occupational Therapy  Early Start Professionals  First 5 – Home Visit (3 ‐ 5)

The CEID Team Toddler & Preschool Pediatric Residency Training Sunshine Preschool & Childcare First Step: California NHS Program: Legislation  AB2780 ( passed 1998 – December 2002 full implementation )  NHSP: Assembly Bill 2780, Chapter 310, Statutes of 1998.  Required: Establishment of a comprehensive hearing screening program for the early detection of hearing loss in newborns and infants, with access to diagnostic evaluations and follow ‐ up services, and provisions for data collection and reporting.  Department of Health Care Services (DHCS), specifically the Children's Medical Services (CMS), holds responsibility for the implementation and oversight of this program  1 ‐ 3 ‐ 6 Goals  70% of babies (400,000 of 520,000 births) ** 1993: Early Start implemented in California California NHSP Hearing Coordination Center Staff  Director  Registered Nurse  Audiologist (Paneled)  Administrative Support  Parent Advocate  IT Support Screen all infants  FDA approved to screen hearing  Must be capable of detecting mild hearing loss (30 ‐ 40 dB)

Hearing Coordination Centers (HCCs) NHSP: 1 ‐ 877 ‐ 388 ‐ 5301  Bay Area/Northern Cal HCC (Region A & B yellow and white) 800 ‐ 645 ‐ 3616 #3  Southern California HCC (Region D ‐ blue) 866 ‐ 609 ‐ 5439  South Eastern California HCC ‐ Loma Linda Medical Center (pink) 877 ‐ 388 ‐ 5301 Referral and Eligibility  Ages 0 ‐ 5 who are deaf or hard of hearing (DHH)  Any type or degree (including unilateral, mild, moderate, severe, profound, auditory neuropathy, conductive, sensorineural, mixed, or fluctuating)  A child who has a severe language delay and needs a visual language  A child who qualifies for IDS with ASL as their home language  A child who is High Risk Faces at CEID  8 student faces

Family Support  Home Visits  Hearing Support  Early Special Education  Family Events  Swimming at Silliman; Day at Crab Cove; Camping; Deaf Plus Family Picnic; Kindergym; Habitot  Parent Education  Sign Classes; Support Groups; Speech and Language Topics  Panels: High School Students, Parents, Deaf Adults  Parenting Strategies; Storytelling; Importance of Play!  Understanding IFSPs and IEPs Parent ‐ Identified Essentials of Appropriate Early Intervention  Contact with other parents  Unbiased information  Time to process information  Skillful and supportive professionals Parents and Their Deaf Children: The Early Years Kathryn P. Meadow ‐ Orlans ‐ Marilyn Sass ‐ Lehrer ‐ Donna M. Mertens – Gallaudet University Press ‐ 2003 DHH Specialized Instruction Topics  Understanding hearing loss: cause, prognosis, and impact on the child and family  Reading an audiogram  Decision making regarding communication options  Language instruction services including: teaching American Sign Language (ASL), Signed Exact English (SEE), Cued Speech, and auditory/oral language ( IDEA 303.13(b)(12)).  Visual technologies, including alerting systems, safety systems, and communication technologies  Adapting the home to make it a visual environment.

DHH Specialized Instruction Topics  Hearing aid care, maintenance, tolerance, monitoring, and troubleshooting  Cochlear implant decision making, candidacy process, preparation, use, care, maintenance, follow ‐ up  FM System use, care, decision making  Cognitive development issues related to hearing loss  Emergent literacy in deaf and hard of hearing children  Social–emotional development and identity issues. Deaf/Hard of Hearing Specialized Instruction Topics  Deaf culture and communities  Advocacy and empowerment issues related to hearing loss  Current research in deaf education  Special concerns related to mild, unilateral, and conductive hearing losses  The synergistic effect of hearing loss and other disabilities, including visual, motor, social, or cognitive impairments Communication Possibilities  Listening and Spoken Language  Cued Speech  American Sign Language (ASL)  Signing Exact English (SEE)  Conceptually Accurate Signed English  Sign Supported Speech  Total Communication (TC)  Bi ‐ Lingual/Bi ‐ Cultural

Toddler Class Music Time: Parents and Children in Action  Video Deaf Plus & SENSORY INTEGRATION The ability to take in  Student/class photo sensory information from one’s body and the environment, to organize this information, and to use it to function in daily life A Sensory Diet incorporates: Tactile Proprioceptive Vestibular Tactile : Deep Touch: Light Touch: Bear hugs; Bouncing a big ball on a child  2 students with different experiences

Accommodations in Classroom and Therapy Sessions Salient Considerations for a child who is Deaf Plus: * Positioning/Motor * Control Processing Time Attention Eye Contact Peer Lead Speech Therapy ‐ Preschool  Video with Ron and Izzy Audiology Services • Hearing Screenings – For infants under 3 months old who have been referred from an initial screening or who have never received a screening – Preschool students (HeadStart, Private Preschools) • Diagnostic Hearing Evaluations – For children and adults • Hearing Aid Dispensing – Hearing aids and devices, ear molds, hearing aid accessories

Alameda Sacramento Butte (158 miles/2hrs 39 mins) San Francisco Calaveras (118 miles/2hrs 3 mins) San Joaquin Contra Costa San Mateo El Dorado (115 miles/1hr 51 mins) Shasta (213 miles/3hrs 8 mins) Fresno (181 miles/2hrs 47mins) Solano Kern (291 miles/4hrs 32mins) Sonoma Lake (133 miles/2hrs 26mins) Stanislaus (89.6 miles/1hr 31mins) Mendocino (155 miles/2hrs 53 mins) Sutter (112 miles/1hr 55mins) Monterey Yolo (77.6 miles/1hr 14mins) Napa Yuba (109 miles/1hr 51mins) Placer & Rising Harte Wellness Center A Collaborative Model for Alameda County  School ‐ linked health center and collaboration serving students at Bret Harte Middle School and Transition Age Youth (young adults, ages 16 ‐ 25)  Almost 50% of BHMS students and 87% of transition age youth report experiencing barriers to accessing adequate, affordable, and competent health care.  Screening for key risk factors  Provision of treatment and services  Preventative services and dental examinations  Health education, recreation and social programs  Case management and linkage CEID Fundraising Activities Annual Walk ‐ A ‐ Thon Benefit Golf Tournament  Add photo  Add photo

Ron’s Message on Behalf of CEID  Ron’s personal Bio and video clip CEID Publications Pediatric Resource Guide CI Prep to Infant and Childhood  DVD Hearing Loss  Book  Photo of GUIDE cover  Home Visit Kit Thank You!  Photo of 3