Steve Badham Director, Integrated Care Portfolio eHealth NSW
Strategic Partnership in Support of Children’s Health and Wellbeing
Federal and Jurisdictional Partners
The Collaborative Vision • Harnessing the power of digital technology to: • Make Australia the best place in the world to raise healthy children, and to be raised; • Ensure all Australian children, irrespective of location, socioeconomic status, or cultural background, have the same opportunity to be healthy, safe and thriving.
National Digital Solutions supporting pregnancy, childhood and early adolescence Child Child Digital Digital Digital Pregnancy Research Health Health Health Record Record Record (5-14)
Clinical and Consumer Co-design Child Digital Health Record: • 335 co-design workshops and interviews / 118 participants. • Research with Aboriginal and Torres Strait Islander communities, as well as culturally and linguistically diverse (CALD) consumers. • Leading to: • 27 Personas • 10 Journey Maps • Business Requirements & User Stories • 31 Wireframes
Health Interactions • Health interactions represent a point in time exchange of information, aligned with a function of care delivery or information management. Child Digital Health Record Newborn Discharge Consumer Entered Hearing Screening Health Assessment Update Family Assessment View Record Newborn Milestone History Birth Hospital Visit (Birth) GP Visit Consumer Interaction
Informatics Co-Design Eight State & Territory One National Paper-Based Child Health Records Digital Child Health Record Harmonisation Record Clinical Information Model Fast Healthcare Interoperability Resources (FHIR)
✓ Nationally agreed core ✓ Review of every components of a child paper-based child health record health record ✓ Every jurisdiction is around Australia. ✓ Harmonising the represented in the national dataset. clinical & consumer content. ✓ Extensive To a consultation. From Harmonised Paper Dataset e ) U s 0 % < 3 w ( W / S L o % N a t m e c o O u t e U s Records E 3 e ) 1 U s 9 % 0 - 4 o n E ( 3 / S a t i u m W o r m 2 5 d i % I n f M e N a t h i l d c e ) e C r e n c o m R e f e O u t u e e n i q U s ( U U R E e a m r N 3 8 m i n e h x a s e ) e a l t E U o n a h 0 % a t i b y ( ≥ 5 W / S o r m t e d g h I n f m p l e H i % h i l d c o N a t C b e C m e s t o c o o n i 3 8 O u t e c t i e s s U s T h i C / S W C n a l 3 8 % s i o N a t 3 o f e s e 6 p r e / s C c o m a m O u t A e n N 38 e o n G i v U s m a t i 0 y ' s o r 1 0 B a b e E C I n f a m h i l d l y N 38 C C a m i 25 y ' s F a m e 1 0 0 a b Maternal Information C s N B b y ' y B a c i l i t A / S 25 h F a Address W B i r t 7 5 % Mother's Given Name o f Baby's Blood Group N a t C m e e N a C o m 13 O u t c t h 75 e Mother's Family Name f B i r U s E e o D a t C E 13 t h 75 B i r 38 E e o f i m Maternal Information Father's Name 25 T E Sex (Male) / S 38 Mother's Date of Birth C W % Mother's Home & Mobile Phone 25 a t E Sex (Female) N o m e Anti D Given 38 E u t c O Labour Complications U s e E MRN (medical record number) 25 38 C E 6 3 Type of Birth (Home) E 25 n 38 a t i o A Type of Birth (write) T o r m I n f 3 Type of Birth (Other) E 13 n a l 6 Type of Birth (Other, Specify Details) a t e r 38 M E Type of Birth (water) E e N a m 25 r ' s 6 3 t h e n s M o a t i o W/S Delayed cord clamp E p l i c A % o m a t 13 c y C 63 Postpartum issues N n a n Outcome r e g u p Birth Complications E P G r o A o d U s e B l o 3 1 3 Jurisdiction Baby Books e r ' s 6 Labour (Spontaneous) o t h A Maternal GBS Status n ? E M A i v e c s g b i o t i 1 3 6 3 n t i i e d T - A n t i f a t u s E d ) A I d e e s S S t u c e h o p a m G B 1 3 I n d 7 5 r k s l y N n a l u r ( n ) W o a m i A a t e r R E a b o a s o & F M T I T / L - R e A v e n e l l a M V c e d G i r u b y ( C n d u a l ) 5 h e r s n a l a n c r ( I g i n 7 F a t t e r e g n b o u / V a M a n p r L a m a l A d i N o r e r s h a t h ( O t h r h a B i r 7 5 e x h e l l a e o f S M o t u b e T y p c h ) t / R r e e A r e n Baby’s Name o s i s h ( B r P a a s m i r t 7 5 t h e o p l o f B O T o x p e s ) T y r c e p A ( F o r t h 5 f B i 7 e o a n ) T y p s a r e C a e h ( B i r t o f y p e x t ) T a c E ( V Date of Birth i r t h o f B p e T y Paper Record Harmonisation Agreed (Include) AA Agreed for ATSI Legend Type of Birth Core Data C A To be Agreed Exclude E T Out of Scope O Birth Facility
Clinical Information Model • Working with the Australasian College of Health Informatics (ACHI) Internal Identify clinical reviews, Clinical information Tiger Team, and specifications clinical for the record engagement Clinical Informatics Endorsement Committee (peak bodies and colleges)
FHIR - Australian National Child Digital Health Implementation Guide
Conceptual Architecture Jurisdictional Systems National Infrastructure 5 4 My Health CIS HI Service Record Web Portal SMART on FHIR 3 8 2 National Interoperability APIs Health Provider Dashboard Digital Child Health APIs Web Portal SMART on FHIR 7 CIS Repository Orchestration Business Logic Consumer Processing Apps 1 6 CHILD DATA HUB Other Provider Systems (GPs, AMS, Specialists)
Agile Delivery Method • Health Interaction Analysis Stage Epic Development Testing & Showcases Business Requirements PSAF Assurance Path to Production Component Assurance Requirements
Child Digital Health Record – Trial Test clinical & Trial will seek Dubbo consumer to enrol 300 Results will Coonamble utility, and babies and inform future Blacktown functionality of children, and roadmap Mount Druitt digitised baby will run for 6 book months
Evaluation of Trials Murdoch Children’s Research Institute has partnered with UNSW to evaluate the Child Digital Health Record Trial The University of Queensland has been commissioned to evaluate the Digital Pregnancy Health Record trial Researchers will assess the clinical and consumer utility of the solutions, and provide continuous feedback into the product delivery & implementation process
National Infrastructure Transition & Roll-out Business Case National jurisdictional scoping exercise underway Assessing how deployment can be staged across jurisdictions and nationally Defining product roadmaps
Thank You – Questions? www.childrenscollaborative.com.au
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