Controlling Children’s Pediatric Asthma Care Asthma in Chicago’s South Side in Communities | iDX Workshop | Spring 2015 | Community Team | IxD Workshop | Spring 2015 | Community Team Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 1
Asthma is a substantial problem in impoverished communities. 130,000 1,500+ Children sufgering with asthma in Chicagoland Number of CHWs needed to serve all asthmatic children in Chicagoland ~ 30 Nearly 60% of Chicago children had a severe Nearly 60% of asthmatic children in Chicago Number of dedicated CHWs working with asthmatic children in Chicagoland had a severe attack in the last year Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 2
Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 3
Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 4
Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 5
Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 6
The CHW’s perspective Thu Jessica Madeline Rhonda Supervisor Supervisor CHW CHW “During the baseline visit our “I think it is really about having “ Gang violence in the neighbor- “In a typical day our CHWs go on CHWs, (...), they do some sort key players working together . hood is the biggest issue. You one or two visits a day . We of magic and through their The better the partnership, the must stay watchful, mindful, typically just restrain it to at interaction the participant are better help we can give to pa- prayerful. ” most three visits because able to build that trust and tients. Having both of those, more tan three is a lot to handle relationship . That is all because that is the key.” in one day.” of the qualities that they posses.” Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 7
Insights BACKGROUND They are from the same RESPONSIBILITIES neighborhood as the They collect data and participants, so they have expertise and feel their hardships. hands-on knowledge. CHW QUALITIES COMMUNICATION They wear many hats: educator, There are many difgerent therapist, advisor. Helping stakeholders to reach out, families with more than just but limited time and tools. asthma, but other life issues . Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 8
Pediatric asthma care teams SCHOOL TEAM school staff teachers secondary coaches caregivers HOME/NEIGHBORHOOD TEAM school nurse asthmatic parents CHW child nurse neighbors extended familly primary physician pharmacist MEDICAL TEAM Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 9
Pediatric asthma care teams SCHOOL TEAM school staff teachers secondary coaches caregivers HOME/NEIGHBORHOOD TEAM school nurse asthmatic parents CHW child nurse neighbors extended familly primary physician pharmacist MEDICAL TEAM Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 10
Mismatched priorities school performance & awareness SCHOOL TEAM school staff teachers secondary coaches caregivers HOME/NEIGHBORHOOD TEAM school nurse asthmatic parents CHW child time, nurse neighbors extended familly communication & time & money primary trust physician pharmacist MEDICAL TEAM Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 11
Biggest challenge There is a lack of communication between difgerent stakeholders. As a result, people are not on the same page working against asthma. Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 12
Current solutions are ineffjcient SCHOOL TEAM school staff teachers secondary coaches caregivers HOME/NEIGHBORHOOD TEAM school nurse asthmatic parents CHW child nurse neighbors extended familly primary physician pharmacist MEDICAL TEAM Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 13
Looking forward Could there be a future where all parties communicate with each other? Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 14
We found an underutilized resource in the community: experienced caregivers—parents of asthmatic children that have had hands-on knowledge about asthma care. T Y T Y R I R I O O C C H H O O T T N N U U A A N N E E C C T T E E D D E E U U L L A A T T V V R R U U S S T T Community Experienced E E D D Health Worker Caregiver S S L L O O O O T T D D A A T T A A Y Y T T I I N N U U K K M M N N M M O O O O W W C C L L E E D D E G E G Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 15
How might we unlock the knowledge of experienced asthma caregivers in order to create a self-sustaining network? Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 16
Introducing Radius is a platform enabling experienced caregivers to become mentors and connect Radius them with families in need. 8:08 AM 100% Sign up I am here to... Seek help Radius Sign up Provide help I am here to.. Seek help OR I am a.. Provide help Community Health Worker OR I am a.. 12 Community Health Worker 163 163 Aug 15 Aug 15 22 22 29 29 Sep 5 Sep 5 12 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 17
First emergency department visit Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 18
CHW’s fjrst home visit and primary mentor selection iPad 75% 75% Profile Linda Age: 45 About I am a 30 year old single mom with one son. I have experience dealing with Asthma and would like to help. I have been living in Engelwood for the last 20 years. I have had Asthma myself as a kid. It is under control now. Feel free to contact me. Expertise Management of Asthma with Sickel cell disease. Early Asthma care and prevention. HELPED LEVEL iPad 8:08 AM 75% 75% Profile Linda Age: 45 About I am a 30 year old single mom with one son. I have experience dealing with Asthma and would like to help. I have been living in Engelwood for the last 20 years. I have had Asthma myself as a kid. It is under control now. Feel free to contact me. Neighbourhood Expertise Management of Asthma with Sickel cell disease. Early Asthma care and prevention. HELPED LEVEL Engelwood Neighbourhood Engelwood 13 Reviews Linda was very helpful when my son had an attack. She arrived home in 10 minutes and gave me instructions on how to handle the situation. I realy panicked and was planning to tke my son Carlos to the ED. She gave me clear instructions about how the use the inhaler. March 2015 Susan connected me with Linda a couple of months ago. We met once and spoke a lot about our lives and Linda shared her experiences with her son’s Asthma and how she handles it. Her story is very inspiring and motivated me and my family to get more serious about Asthma prevention. 13 Reviews Linda was very helpful when my son had an attack. She arrived home in 10 minutes and gave me instructions on how to handle the situation. I realy panicked and was planning to tke my son Carlos to the ED. She gave me clear instructions about how the use the inhaler. March 2015 Susan connected me with Linda a couple of months ago. We met once and spoke a lot about our lives and Linda shared her experiences with her son’s Asthma and how she handles it. Her story is very inspiring and motivated me and my family to get more serious about Asthma prevention. Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 19
Primary mentor home visit 8:08 AM 100% 2 Library 100% 8:08 AM Inhaler use Videos 8 4 : 3 - Step by step inhaler tutorial for beginners 2 0 : 0 Other videos Triggers Action plan Asthma symptoms Posted 10 days ago. 163 163 Best practices Posted 20 days ago. 2 1 5 5 Community Other e e p p S S 9 9 2 2 Contacts information 2 2 2 2 5 5 1 1 g g u u A A Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 20
Crisis happens 8:08 AM 100% Request Cancel Calling for help.... Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 21
Crisis happens 8:08 AM 100% 8:08 AM 100% Request Cancel Request Mentor Amanda has accepted your request Calling for help.... Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 22
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