Pain in palliative care, do we care? Christoph Ostgathe, M.D. Professor for Palliative Medicine Vice President European Association for Palliative Care (EAPC) European Association for Palliative Care
The European Association for Palliative Care Mission Statement The EAPC brings together many voices to forge a vision of excellence in palliative care that meets the needs of patients and their families. It strives to develop and promote palliative care in Europe through information, education and research using multi-professional collaboration, while engaging with stakeholders at all levels. 32 countries ---- 56 organisations --- more than 50.000 collective members European Association for Palliative Care
Moderate – severe symptoms PCU n=203 / n=248 Overburden family n=109 n=215 / n= 265 Organisation care n=74 n=26 n=57 / n=283 Desorientiertheit n=108 / n=298 n=59 Tension n=53 / n=362 n=25 Anxiety n=58 / n=234 Feeling depressed n=33 n=304 / n= 346 n=161 Need for support ADL n=16 n=42 / n=173 Wounds / pressure sores Symptomlinderung n=173 / n=304 Tiredness n=97 keine Veränderung n=111 n=208 / n=270 Loss of appetite erhöhte Symptomlast n=325 / n=356 n=186 Weakness n=30 n=75 / n=202 Constipation n=56 n=88 / n=338 Dyspneo n=22 n=37 / n=330 Vomiting n=26 n=46 / n=322 Nausea n=78 n=131 / n=348 Pain 100% 50% 0% 0 50 100 0% 50% 100% 0% 50% 100% European Association for Palliative Care
EAPC White papers White paper Lead Published Journal White paper on sedation in palliative care Nathan Cherny; 2009 Palliative Medicine Lukas Radbruch White paper on standards and norms for Lukas Radbruch; 2011 EJPN hospice and palliative care in Europe Sheila Payne; White paper on improving support for Shiela Payne; 2012 EJPN family carers in palliative care Peter Hudson Core competencies in pallaitive care: an Claudia Gamondi 2013 EJPC EAPC white paper on palliative care Sheila Payne; (in two parts) education Phil Larkin; White paper on dementia in palliative Jenny Van der Steen; 2014 Palliative Medicine care Cees Hertogh White paper on education curricula in Julia Dowling; 2014 EJPN children’s palliative care Julie Ling White paper in advance care planning in Judith Rietjens; 2015 In Press palliative care Ida Korfage White paper on palliative care and Lukas Radbruch; 2015 Palliative Medicine euthanasia Paul Vanden Berghe; Carlos Leget European Association for Palliative Care
EAPC Recommendations e.g. 2001 2012 European Association for Palliative Care
The perfect future • Every patient in a palliative care situation with pain has access to • generalist pain and palliative expertise (education!) • pain and palliative care specialist, if needed (timely, early) • multi-professional support • pain and further symptom management including necessary drugs European Association for Palliative Care
Pain in palliative care, do we care? European Association for Palliative Care
European Association for Palliative Care
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