National Palliative Care Initiatives in Australia Karen Glaetzer - PowerPoint PPT Presentation

National Palliative Care Initiatives in Australia Karen Glaetzer Palliative Care Nurse Practitioner Southern Adelaide Palliative Services Lecturer (B) School of Medicine Flinders University

Southern Adelaide Palliative Services  Specialist Palliative Care Service  Southern Adelaide Metropolitan Area  Population 350,000 (Adelaide 1.3m)  Provides inpatient care, community and consult liaison service to 3 Public Hospitals  Works collaboratively with existing community and home care services  Clinical Care, Education and Research  Coordinates Statewide Service for MND

SA Health

SA Health

The Australian Government's National Palliative Care Program SA Health

Aims  Improve access to and quality of palliative care  The program offers support in four broad areas: • support for patients, families and carers in the community; • increased access to palliative care medicines in the community; • education, training and support for the workforce; • research and quality improvement for palliative care services. SA Health

Specific Programs  National Standards Assessment Programme (NSAP)  Knowledge Network (Caresearch)  Programme of Experience in a Palliative Approach (PEPA)  Palliative Care Clinical Outcomes Collaborative (PCOC)  Palliative Care Clinical Studies Collaborative (PaCCSC)  Palliative Care Curriculum for Undergraduates (PCC4U) SA Health

National Standards Assessment Program National Standards Assessment Program Improving quality in palliative care Improving quality in palliative care NSAP Overview What is NSAP? • Quality improvement program • Funding by the Australian Government and administered by Palliative Care Australia • Aiming to support Australian Specialist Palliative Care Services to develop and implement a quality improvement program based on a reflection against the National Palliative Care Standards • Free to participate • Underpinned by the reflective practice, PDSA and collaborative improvement methodology Who is involved? • Over 90% of Australian Specialist Palliative Care Services are currently participating in NSAP (including 100% of paediatric services) • 20 Peer Mentors (experienced palliative care practitioners trained in quality improvement) • NSAP support team of 5 people based in Canberra and Sydney What are the outcomes of the program • Services are provided a framework to bring the National Palliative Care Standards ‘to life’ • Services receive reports of their self assessment and NSAP cycle results • Services receive support and training from quality improvement and palliative care experts • National and Jurisdictional system-level quality improvement opportunities are identified from aggregated results

National Standards Assessment Program National Standards Assessment Program Improving quality in palliative care Improving quality in palliative care How the NSAP process creates change? NSAP is 2 year cycle with 3 phases: 3. Plan and implement your Continuous 1. Sign up to participate Quality Improvement Program • 2. Self Assess against the National Palliative Develop and implement a quality Care Standards and prioritise a key improvement action plan • improvement area from the standards Receive a peer mentor visit review (optional) to support the quality improvement activities Identify Complete Develop Changes to Key Self Quality improving quality Improvement Assessment Improvement in palliative care Areas Snapshot Action Plan The outcome The process

Knowledge Network www.caresearch.com.au SA Health

Delivering culturally responsive palliative care Janine Brett PEPA Project Officer

Session Overview • What is the Program of Experience in the Palliative Approach (PEPA)? • The PEPA aims • PEPA activities • PEPA website • Evaluation

What is PEPA? • Provides an opportunity for health professionals to improve knowledge, skills and confidence in working with people with palliative care needs and their families • PEPA offers workforce placements in specialist palliative care services • PEPA offers tailored workshops in the palliative approach

PEPA aims • To further improve the skill and confidence of generalist workforce working with people with palliative care needs • To provide opportunities to ensure palliative care providers are aware of and provide appropriate palliative and end of life care and support

PEPA Activities • Placements – Supervised clinical placements in specialist services – Reverse placements • Workshops – Palliative Approach – Palliative Approach in an Aged Care setting – Community Outreach Program for Aboriginal and Torres Strait Islander communities – Culture and Diversity

Who can apply • Placements are available for: – Aboriginal Health Workers – Medical Practitioners – Nurses – Allied Health Professionals – Aged Care Workers – Community Care Workers – Health Professionals servicing culturally and linguistically diverse (CALD) populations

Placements • Placements available in – Community – Hospital – Hospice • Reverse PEPA placement – Palliative professional attends workplace to provide education • Up to four days depending on health profession and availability • Integration of learning into practice • Post placement support . • Linkages and knowledge sharing with specialist palliative care providers

Flexibility and Assistance • Contribution towards backfill and assistance with travel and accommodation • Placements individually or groups • Assistance through Learning Guides given to participants

PEPA website • Information of upcoming workshops • Newsletters • Spotlights on host sites • Participant testimonials and reflection • Online learning modules for GPs, Aboriginal Health Workers, Nurses and Mentors • Guidelines for PEPA facilitators and mentors • Evaluation tools (placement and workshops coming) • Contact details for PEPA managers www.pepaeducation.com

Evaluation Funded by the Australian Government through the National Palliative Care Program • Evaluation of workshops Date of workshop participant to fill this s e ct ion Unique i d e n t ifie r : Date Month Year ( Fi rs t two letters of your mother ’ s maiden name and last two numbers of your year of b i r t h ) assists with improvements of State/Territory: the project Program of Experience in the Palliative A pp r oa c h Workshop Pre-workshop Q ue s t i onna i r e • Thank you for completing Dear Par t i c i p an t , The purpose of this questionnaire is to gather information about your confidence in providing a palliative approach to care and your expectations of this workshop. We will ask you to complete a similar q u e s t i o nn a i re pre-survey at the end of the day, to assess what you have learnt by participating in this workshop. Although ID numbers allow us to compare pre- and post-workshop questionnaires, no individual responses will be reported. Your responses will remain confidential. Filling in the survey is voluntary. The questionnaire should take about 10 minutes to complete. Please tick only one response, unless otherwise i n d i c a t e d. • For the purpose of this evaluation people who have a progressive incurable disease that will limit their life and Important: match unique could benefit from a palliative approach to care will be referred to as ‘ people who have a life-limiting ill ness ’ . 1. PLEASE TICK YOUR HEALTH PROFESSION/DISCIPLINE. identifier Nurse n Nursing Assistant Personal Care Worker n n P h y s i o t h era p i st Die t i ci a n P h ar m ac i st n n n Speech T h era p i s t n C o uns e lo r P s y c h o l og i s t n n • n Aboriginal and Torres S t ra i t Please complete post-survey Other – please state: Occupational T h era p i st n n Islander Health Worker n Social Worker Pastoral Carer n at end of workshop 2. ARE YOU OF ABORIGINAL OR TORRES STRAIT ISLANDER ORIGIN? (PLEASE TICK ONLY ONE BOX): No ( p l ea s e proceed to question number 3 ) Yes, A bor i g i na l n n Yes, Torres Strait I s l a n d er Yes, both Aboriginal and Torres Strait I s l a n d er n n 3. PLEASE TICK ONE THAT BEST DESCRIBES YOUR ETHNIC GROUP: Australian Other ( p l ea s e des cr i be ) n n

Palliative Care Outcomes Collaboration PCOC Funded under the National Palliative Care Program and is supported by the Australian Government Department of Health

What is PCOC?  Voluntary program for specialist palliative care services  Provides an evidence based , multi-dimensional, quality improvement initiative  Supports continuous improvement through routine clinical outcome measurements, periodic surveys and benchmarking  Contributes to the international evidence on how to measure palliative care quality and outcomes 22

Standardising Palliative Care Assessment PCOC is a national approach towards the routine assessment in palliative care practice using standardised assessment tools.

Assessment Tools Phase (Eagar et al, 2004¹) RUG-ADL (Fries et al, 1994) AKPS (Abernethy et al, 2005) PCPSS (Eagar et al, 2004²) SAS (Kristjanson et al, 1999)

Benefits of Standard Assessments Assessments Consistent, A common drive the focus of formal language is care approach to established documentation of assessments

Benefits of Standard Assessments Benchmarking Needs based Resource care Requirements