Carolyn Penstein Rosé Language Technologies Institute Human-Computer Interaction Institute School of Computer Science With funding from the National Science Foundation and the Office of Naval Research 1 And in partnership with the Cancer Care Community and the American Cancer Association
Special Thanks to My Collaborators • Miaomiao Wen • Dong Nguyen • Elijah Mayfield • Robert Kraut • John Levine • Yi-Chia Wang * 2012 CMDA BCO team: Miaomiao Wen, Zeyu Zheng, Kenneth Huang, William Wang * 2013 CMDA BCO team: Zhou Yu, Shou-I Yu, Yajie Miao, Yuchen Zhang, Lu Jiang 2 * Special thanks to David Adamson and Philip Gianfortoni for work on Stretchy Patterns
Developing technology capable of shaping conversation and supporting effective participation in conversation to achieve positive impact on… 3
Developing technology capable of shaping conversation and supporting effective participation in conversation to achieve positive impact on… Human learning 4
Developing technology capable of shaping conversation and supporting effective participation in conversation to achieve positive impact on… Human learning Health 5
Developing technology capable of shaping conversation and supporting effective participation in conversation to achieve positive impact on… Human learning Health Wellbeing 6
Developing technology capable of shaping conversation and supporting effective participation in conversation to achieve positive impact on… 7
Automatic Positive Analysis Conversational Psycho-Social Of Interventions Outcomes Conversation 8
Many cancer patients and survivors participate in online health support groups (Chou et al., 2009; Chou et al., 2011) Online support groups decrease depression and increase self-efficacy and quality of life (Rains & Young, 2009) One benefit is just-in-time interaction Participants don’t need to wait until their next doctor’s appointment or weekly support-group meeting to get the support they need Our goal: Understand how online health support communities work and what the current problems are so we can design interventions to make them better 9
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Defined a new event extraction task Interesting because of informal temporal references Created an annotated corpus Coding manual and annotated data will be made publically available Developed a technical approach to event extraction with informal temporal references Builds on earlier work on structured feature induction (Gianfortoni, Adamson, & Rosé, 2011) Results: Temporal resolution beats state of the art (Ji et al., 2011; McClosky & Manning, 2012; Garrido et al., 2012) 11
Cancer trajectory Kuang-Yi Wen et. al. 2011 12
Extracting Cancer Histories (Wen & Rosé, 2012) 13
Can we increase the extent to which participants receive the targeted support they need when they need it?
• Emotional support = 5.2/ Informational support = 3.3 • Hello! First off I want to say that I am sorry you have been diagnosed with breast cancer and I know how you feel today. I know how scared and how over whelming it all is. We are here to help walk you through… • Lumpectomy vs. mastectomy is a very personal decision and not one that can be made by anyone but you. Of course, you may get advice from your medical team. In my case I had a 4 cm. tumor so lumpectomy was not an option for me BUT that being said, I would have chosen mastectomy anyway. For a variety of reasons but those reasons were my reasons…God comfort you and lead you as you go...... 15
Commmunities of practice (Lave and Wenger, 1991 ) • Socialization begins with observing community norms • Users may choose to adopt these norms if they share community values and goals • Level of adoption reflects commitment and identification • But what if goals are changing over time?
Outline • Technical Contribution: Getting Higher Resolution on Participation Trajectories by Extracting Cancer Histories • Modeling the Problem: General Decline in Offered Support Over Time • Understanding Effect of Experience: Modeling Changes in Posting Behavior over Time Relative to Cancer Events • Looking to the Future: Interventions for Increasing Support Exchange 17
Outline • Technical Contribution: Getting Higher Resolution on Participation Trajectories by Extracting Cancer Histories • Modeling the Problem: General Decline in Offered Support Over Time • Understanding Effect of Experience: Modeling Changes in Posting Behavior over Time Relative to Cancer Events • Looking to the Future: Interventions for Increasing Support Exchange 18
Cancer Event Extraction Task • Forum: Breastcancer.org • Task: For each user, identify which events have occurred in their history and associate them with a month and year • Related prior tasks include the TAC-KBO 2011 (Ji et al., 2011) and the timelining task (McClosky & Manning, 2012) • 3 types of events • Status change event: breast cancer Diagnosis, Metastasis and Recurrence. • One-day event: Mastectomy, Lumpectomy, Reconstruction. • Event with a temporal bound: Chemotherapy and Radiation. • Annotated Corpus • Developed a reliable coding scheme (Kappas at least .9) • 601 extracted temporal expressions from one post each of 1000 users • Complete posting history of 300 users • 509 cancer events paired with event dates
<11/15/2008> I only have a mast on my left side, but I have noticed some pulling recently and I won't start rads until March[Underspecified] . <11/20/2008> It is sloowwwly healing, so slowly, in fact, that she said she HOPES it will be healed by March[Underspecified] . when I am supposed to start rads . <1/13/2009> I still have one last chemo to go on the 19th[Underspecified] and then start rads in 5 wks[Relative] . <1/31/2009> I go for my first meeting with the rad onc on 2/10[Underspecified] (my 50th birthday[User-specific] !). <2/23/2009> I had my first rad today[Relative] . <3/31/2009> Tomorrow[Relative] will be my last full rads , then I will start the boosts. <4/2/2009> I started rads in Feb[Underspecified] . I just did #29 today[Relative] . <4/8/2009> The rad onc wants to see me again next week[Relative] for a skin check and I am on antibiotics since I am at risk of getting cellulitis since I have had it twice since August[Underspecified] . <6/21/2010> My friend Lisa had her port put in last week[Relative] and will begin 2 weeks[Relative] of radiation on Tuesday[Underspecified] . 20
<11/15/2008> I only have a mast on my left side, but I have noticed some pulling recently and I won't start rads until March[Underspecified] . <11/20/2008> It is sloowwwly healing, so slowly, in fact, that she said she HOPES it will be healed by March[Underspecified] . when I am supposed to start rads . <1/13/2009> I still have one last chemo to go on the 19th[Underspecified] and then start rads in 5 wks[Relative] . <1/31/2009> I go for my first meeting with the rad onc on 2/10[Underspecified] (my 50th birthday[User-specific] !). <2/23/2009> I had my first rad today[Relative] . <3/31/2009> Tomorrow[Relative] will be my last full rads , then I will start the boosts. <4/2/2009> I started rads in Feb[Underspecified] . I just did #29 today[Relative] . <4/8/2009> The rad onc wants to see me again next week[Relative] for a skin check and I am on antibiotics since I am at risk of getting cellulitis since I have had it twice since August[Underspecified] . <6/21/2010> My friend Lisa had her port put in last week[Relative] and will begin 2 weeks[Relative] of radiation on Tuesday[Underspecified] . 21
<11/15/2008> I only have a mast on my left side, but I have noticed some pulling recently and I won't start rads until March[Underspecified] . <11/20/2008> It is sloowwwly healing, so slowly, in fact, that she said she HOPES it will be healed by March[Underspecified] . when I am supposed to start rads . <1/13/2009> I still have one last chemo to go on the 19th[Underspecified] and then start rads in 5 wks[Relative] . <1/31/2009> I go for my first meeting with the rad onc on 2/10[Underspecified] (my 50th birthday[User-specific] !). <2/23/2009> I had my first rad today[Relative] . <3/31/2009> Tomorrow[Relative] will be my last full rads , then I will start the boosts. <4/2/2009> I started rads in Feb[Underspecified] . I just did #29 today[Relative] . <4/8/2009> The rad onc wants to see me again next week[Relative] for a skin check and I am on antibiotics since I am at risk of getting cellulitis since I have had it twice since August[Underspecified] . <6/21/2010> My friend Lisa had her port put in last week[Relative] and will begin 2 weeks[Relative] of radiation on Tuesday[Underspecified] . 22
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