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Cancer Registration and Cancer Registration and Statistics in Korea Statistics in Korea Sohee Park Division of Cancer Registration and Surveillance National Cancer Center, Korea APAN Healthcare2 Session August 11, 2010 Contents Cancer

  1. Cancer Registration and Cancer Registration and Statistics in Korea Statistics in Korea Sohee Park Division of Cancer Registration and Surveillance National Cancer Center, Korea APAN Healthcare�2 Session August 11, 2010

  2. Contents Cancer Registration System in Korea � Korea Central Cancer Registry � Regional Cancer Registries Cancer Statistics in Korea

  3. Korea ranks high in cancer burden Global (2008) Korea (2007) Population: 6,750 M Population: 49 M (0.73% of world) Incidence: 12.7 million Mortality: 7.6 million Incidence: 161,920 Mortality: 67,561 Source: GLOBOCAN 2008, IARC, 2010 Korea Central Cancer Registry, 2010 (ICD�O2) Cause of Death, NSO, 2010 (ICD�10)

  4. Causes of Death (%) Cancer CVA Heart Dis. Liver Dis. DM �� �� 27.6% �� 12.3% �� �� �� � � ��� �� ��� ��! ��" ��� ��# �#� �#� �#� �#� �# �#� �#! �#" �#� �## ��� ��� ��� ��� �� ��� ��! �" Year of death ��������������������������������������������������

  5. Cancer is the leading burden of disease ������ �������������� ������� ����������������� ����������������� ����������� ������� ����������������� ���������� ���������������� YLL ������� YLD �������������� ����������������� � ��� 400 600 800 1,000 1,200 1,400 1,600 1,800 � !"������#��$�������������� $���������������%��������

  6. The Korea Central Cancer Registry Cancer Registry

  7. History of The Korea Central Cancer Registry &� �#�� '���(����������������������)%���* +(���,�-�������.�%���/���/� �������/�-%��%� �������%�����0�/%���������� ��� ���� (����1�2�/����1��������%�����0�/%���������������������%������������ ������ 0�*����� �����%���%�� ���'��������������+��-� .��%���������������)%�����%��, 0������ '��������� ������� 3�- +4��5�����������������%����1��%�� %�� ����%.%��/6,� � /%��%����*�%�����%��������������)%�����%�� ������� 4(����������������������)%���*6���/�4�������%��7.���/���)%������������ ��)%���%��6�-����/��%)����/����%�%���* ���%������ ����������������%������������%��%/�����/������/������%������������%������ ���%������������%��%/����������������)����������������*� ��� %���! ��2%�%������'������������� +�������%�����/�1���)�1���������������� %����1��%����������1%���/��������%��������������)%�����%��, ��)����" 8�.�%���%������������ %��%/���������%��%���%������ �������� 8�.�%���%�����������������%��%���+&��%/����� ���2%2��,�%������7���� �������# 8�.�%���%�����������������%��%���+&��%/����� ���2%2����8��2������,�%�� ���!7���"

  8. Cancer Registry System in Korea Regional Cancer Hospital Cancer Registries Hospital Cancer Registries Registries population�based hospital�based since 1980 11 Regional Cancer ���� ���� ���� ���� Registries Registries headquarter : headquarter : Busan �� �� NCC Daegu / Gwangju ��� ��� coverage: Incheon / Daejeon 90% of all cancers Ulsan / Jeju Chungbuk, etc Site�specific Cancer Registries Academic Societies: breast, uterine, cervix etc.

  9. Cancer Registration System in Korea Cancer (��� KCCR Billing Claims NHIC � Data collection � Data management � Quality assurance NSO Death data � Data dissemination � Develop manual / training Data process and Passive Passive Active Active dissemination � Cancer statistics Chart Busan, Daegu, reviewing Daejeon, B.. Regional Regional Others Active � Data collection for the region MR review from � DB construction small hospital � Collaboration with KCCR � DB management Regional Cancer Registry � Regional cancer Incidence

  10. Information in Cancer Registry Data Personal : Name, PIN (sex, age), Address, Occupation Case information: Diagnosis date, Primary site, Morphology, Behavior, Method of diagnosis, Treatment method Treatment method Outcome: Death date, Cause of death Others: Summary Staging (SEER), TNM stage (optional)

  11. Korean Personal Identification Number Birth place 730101� 1 1111 1 1 Random no. YYMMDD Register order SEX Magic !!

  12. Korean Personal Identification Number Korean Personal Identification Number Med Ins DB (ID: 2212011 **** 10) Korea Central Cancer Registry DB (ID: 2212011 **** 10) Death Certificate DB (ID: 2212011****10)

  13. Korean Personal Identification Number Medical Cohort DB Insurance DB Death Cancer Certificate DB Certificate DB Unique PIN Unique PIN Registry DW 9��%/ �������� Incidence, Mortality, Prevalence, Survival

  14. (��������%����� (��������%����� Academic Societies ;0�8�� ; 0�8�� + +���%/���%��� ����%��%�������%�� ����%��%�������%�� (Relevant cancer �: , �//������: +�������0�����%�*��: , +�������0�����%�*��: registration) Collection & feedback of Collection & feedback of Collection of resident Cancer Mortality DB Cancer registration DB registration address DB Cancer registration data Korea Central Cancer Registry Korea Central Cancer Registry Participating Participating Hospitals Hospitals Result report Data quality & feedback Korea Central Cancer Registry �: Korea Central Cancer Registry Registration Of Cancer patient Registration Of Cancer patient �: Cancer registration DB per hospital Cancer registration DB per hospital Cancer incidence survey & result Billing claims Generate list of potential cancer Incidence cases (using medical billing claims data and death certificate data) 0%�%���*����<������=�>������� 0%�%���*����<������=�>������� * NHIC * NHIC ������� ������� +0���)�1����=�8�.�%���%��� +0���)�1����=�8�.�%���%��� Relevant cancer incidence DB ���%��� ���%��� ���������� ����������%��%/����������,� %��%/����������,� 8��%���������������/%�)���%��=�2%�%�� 8��%���������������/%�)���%��=�2%�%�� /����=� /����=� Catastrophic Diseases DB Catastrophic Diseases DB National and Regional Result DB Cancer Statistics Billing claims Medical Record Review Regional Cancer Registry Regional Cancer Registry Non- Non - Participating Participating Hospitals Hospitals Send Review Results Result report Regional Cancer Registry Regional Cancer Registry �: Cooperation Of cancer incidence Survey Cooperation Of cancer incidence Survey �: Cancer patients DB in hospital Cancer patients DB in hospital Medical Record Review ;�0�8�����0%�%���*������.�%���/1%�%�����%�����/������%�* ;��<&�������%�����<������&�����������������%��

  15. Quality Control of Cancer Registry Data Standardization: Software, Manual Check for Multiple Primary 1988�2001 Training Courses for Cancer Registrar Constant check with Death data� National Statistic Office

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