ANNUAL MEETING 2018 Our mission To provide meaningful activity and respite for younger people living with dementia working alongside other statutory provision, across the working week, within Berkshire.
Partners Berkshire Clinical Young Healthcare Banyan Home Commissioning Dementia Sweettree Dementia UK Foundation Care Services Groups Network Trust
Our service We have successfully run 5 day provision across Berkshire through the year, with continuing referrals coming through. • Berkshire west – 289 workshops in the period Workshops: • East Berkshire – 149 workshops in the period • Berkshire west - 65 1:1 support: • East Berkshire - 16
Workshop Themes WEST EAST • Multi-sports • Horse riding • Golf, Brunch and Snooker • Outdoor games • Music and Dance • Walking • Walking with a twist • Art • Gardening and Craft • Reader group • Outdoor games • Green gym • Katakanuing • Cooking & theatre • Reminiscence • Skittles • Tennis • Snooker • Ten Pin Bowling • Badminton • Jealotts Hill • Furniture recycling • Turtle Song • Boccia • Reminiscence • Tennis • Turtle song
Our service “ The psychosocial interventions,” he said, “are really doing a lot better than drug taking for people with the behavioural and psychological symptoms of dementia, which people sometimes call BPSD .” Brodaty, Scientia Professor of Ageing and Mental Health and Director of the Dementia Collaborative Research Centre and Co-Director of the Centre for Healthy Brain Ageing
Outcome Measures Age and cognition scores of attendees Diagnosis Current Age at sMMSE sMMSE Age* onset of In October In March dementia 2017 2018 (n=30) Range 49-69 48 - 65 7 - 27 7 - 29 Average 63 60.0 20.6 21.1
Outcome Measures Neuro Psychiatric Inventory (NPI) scores of attendees NPI-Q NPI-Q NPI-Q Caregiver Caregiver Caregiver March October March Distress Distress Distress 2017 2017 2018 March October March 2018 2017 2017 Range 12 - 0 18 -0 25 - 1 20-0 21 -0 29 - 1 Average 5.6 4.8 5.6 8.3 7 6.5
Key Highlights Moved offices! We introduced a compliance procedure for our policies and procedures to ensure these were appropriate, monitored and kept up to date. Article about the choir published in Journal of Dementia Care November/December 2017 An article on our sustainable model was included on the NHS England website.
Key Highlights Funding from The Big Lottery for two years CCG funding for full-time model in east of Berkshire from April 2017 Carer Support Group goes from strength to strength Continue to be supported by poweredbypie as charity of choice Articles have appeared in Newbury Weekly News about Sainsbury’s adopting us as their charity of the year and about charity challenges for 2018.
Key Highlights Admiral Nurse for the east for one year, working one day a week, then got funds for an Admiral Nurse 3 days/week (hosted by Berkshire Healthcare Foundation Trust). Appeared on Radio Berkshire and South Today to promote the role of the Admiral Nurse
Key Highlights Children’s book and education toolkit (play in May 2017)
Key Highlights An Art Therapy Project was held with children of those with young onset dementia to assist them in coping with this diagnosis in a parent.
Key Highlights A Marketing Consultant was retained to assist us in building a sustainable model for the future. Presented at conferences Participated in the BBC Holding Back the Years programme
Behind the scenes
Our Volunteers We currently have 17 volunteers (including our Trustees) What do they do? They assist on our workshops, undertake administrative support within the office, run fundraising stalls and events. They do amazing things: help with workshops, fundraise, give their time!
Our staff Board of Trustees Caroline Blanchette Charlie Draper Business Support Operations Manager Manager Karen Ive Claire Watts Julie Vernon Project Respite Project Respite Worker Worker Office Administrator (East Berkshire) (Berkshire West) Erin Locke Debbie Lomas Paula O'Connor Sally Loseby James Frecker Jenny Vertigan Phil Redrup Asst Project Respite Asst Project Respite Asst Project Respite Asst Project Respite Asst Project Respite Asst Project Respite Asst Project Respite Worker Worker Worker Worker Worker Worker Worker
Our Trustees Dr Jacqueline Hussey (Chair of Trustees ) Nicholas David Fisher Frances Stradling Kathy Taylor Peter Watson Alain Wilkes Woodthorpe Trustee Trustee Trustee Trustee Trustee Trustee
Analysis of Income 2016 To 2018 £000's 350 300 89 250 83 200 64 150 225 100 160 132 50 0 2016 2017 2018 Grants Donations Other
Analysis of Expenditure 2016 To 2018 £000's Analysis of Expenditure 2016 To 2018 £000's 350 350 300 98 300 98 250 62 250 200 62 34 150 200 237 34 192 100 156 150 50 237 0 192 100 2016 2017 2018 156 Staff Costs Other Costs 50 0 2016 2017 2018 Staff Costs Other Costs
Analysis of Other Expenditure 2016 To 2018 £000's 100 19 90 80 13 70 60 21 14 50 9 40 13 11 30 45 4 20 26 19 10 0 2016 2017 2018 Other Computer Costs Premises Charitable Activities
The future: Our thoughts! 5 year strategy Tailored Pathway Awareness, education and training Meeting changing needs: BAME communities, rarer dementia support groups Research Increased diagnosis and therefore referral rates Income generation
Our Trustees Caroline Blanchette (Chair of Trustees ) Nicholas David Fisher Frances Stradling Kathy Taylor Peter Watson Alain Wilkes Alison Richardson Dr Buchi Reddy Woodthorpe Treasurer Trustee Trustee Trustee Deputy Chair Trustee Trustee Trustee
New Structure Board of Trustees Director Charlie Draper Dr Jacqui Hussey Karen Ive Julie Vernon Service Delivery Project Lead (30 Medical Director Office Manager Manager hours a month) (30 hours a month) Claire Watts Project Respite Manager Erin Locke Debbie Lomas Hayley Noades Jenny Vertigan Phil Redrup Vacancy (full-time) Asst Project Asst Project Asst Project Asst Project Asst Project Respite Worker Respite Worker Respite Worker Respite Worker Respite Worker
The future: Your thoughts!
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