All of Us – Reaching Communities Tuesday, August 13, 2019 12:00 – 1:00 PM ET
Housekeeping • All participants will be placed in listen-only mode for the duration of this webinar. • We will take questions at the end of all presentations today. You may submit your questions as we go along through the online platform using the Q&A feature at any time. • The webinar will be recorded and available online after today. We will also share the slides from today's presentations as permitted by the speakers.
Agenda • NACCHO overview of the All of Us Research Program and the role of local health departments • Gayle Simon from Scripps Research Translational Institute – The Participant Center • Staci Lofton from Harris County Public Health – Engaging the Community to Advance Equitable and Innovative Health Opportunities • Question and Answer segment • Adjourn
Mission There’s value in belonging NACCHO is comprised of nearly 3,000 local health departments across the United States. Our mission is to serve as a leader , partner , catalyst , and voice with local health departments. Learn more by viewing a short video available on our website.
The All of Us Research Program #joinallofus
What is the NIH All of Us Research Program? The All of Us Research Program is a historic, longitudinal effort to gather data from one million or more people living in the United States to accelerate research and improve health . By taking into account individual differences in lifestyle, “ All of Us is among the most socioeconomics, environment, and biology , ambitious research efforts researchers will uncover paths toward delivering that our nation has precision medicine – or individualized undertaken!” prevention, treatment, and care – for all of us . NIH Director Francis Collins, M.D., Ph.D. 6 The All of Us Research Program is part of the broader Precision Medicine Initiative.
What is the promise for participants? An opportunity to help fight disease and ⦿ improve the health of future generations. A chance to learn about your own health , ⦿ including personalized risk factors or exposures. The ability and choice to access your own ⦿ data , including increasingly rich health records. An opportunity to ensure that your community ⦿ is included in the studies that lead to new understanding and new treatments. A chance to learn about additional research ⦿ opportunities that may interest you. The choice to meet others like you , perhaps ⦿ even joining some of them to propose & do research. This is a long-term relationship and the value to participants (and researchers) will grow over 7 time.
What is the promise for providers? Over time, increased scientific evidence and ⦿ improved guidelines to enable precision medicine opportunities for more people and conditions: • Better understanding of the impact of environment and lifestyle factors on health. • Increased knowledge of differences in risk factors and response to treatments among diverse populations . • More information on the development of conditions that will allow for earlier detection . • Deeper understanding of different conditions that may allow for better stratification . Innovations that may make it easier to share electronic ⦿ health records with other providers and patients. New knowledge to help address health disparities , ⦿ increase patient engagement , and understand the usefulness of consumer health devices and apps . 8 Help accelerate medical breakthroughs by sharing information about All of Us with your patients!
The Participant Center (TPC) All of Us Research Program Gayle Simon, MPH 8.13.19 NACCHO Webinar
Two Ways to Enroll DIRECT VOLUNTEERS HEALTH CARE PROVIDER ORGANIZATIONS 10
The Direct Volunteer Mission Making it as easy as possible for interested individuals anywhere in the US to join and remain enthusiastic participants. 11
Supported by a nationwide infrastructure Spread the word Collect samples
How do we build interest? JoinAllofUs.or oinAllofUs.org Corporate Partners Multi-lingual Marketing JoinAllofUs.org 13
Community building and events Two National Mobile Tours: Partner with existing ⦿ community events Visit rural areas ⦿ Provides education ⦿ Offers full enrollment ⦿ opportunities Mobile Engagement Asset Tours We partner with trusted organizations to bring All of Us to the community. 14
The Pathway to Enrollment Physical Primary Register EHR Consent Surveys (3+) Measurements Consent & Biosample ⦿ Basics (demographics) ⦿ EHR transfer ⦿ Overall Health ⦿ Picnic Health ⦿ Lifestyle ⦿ Health Care Access & Utilization ⦿ Family Medical History ⦿ Personal Medical History 15
. . . and more Bring Your own Device Now: FitBit ⦿ Future: more devices ⦿ 16
What to expect at the All of Us Exam Participants in the All of Us Program are asked to: ⦿ Have height and weight ⦿ Confirm identity (first/last measured name, DOB, email address or ⦿ Have waist circumference mobile number) ⦿ Have heart rate measured measured ⦿ Provide a urine sample ⦿ Have blood pressure ⦿ Provide a blood sample measured three times 17
DV $25 Payment Process Flow Delivered electronically or via SMS ⦿ after the PM&B appt. Take about 3-5 days to arrive ⦿ Process is still managed manually ⦿ by Scripps staff Once process is automated we ⦿ want to offer other options and welcome feedback
DV Sites 19
DV Salivary Pilot Study Allows for truly nationwide ⦿ biosample collection. Collecting saliva does not mean ⦿ never collecting blood/urine or performing physical measurements in-person. 13K DV participants with no PM&B ⦿ clinic within 50 miles will be invited.
Thank you! Questions? Email: gsimon@scripps.edu Phone: 858-784-7987
Engaging the Community to Advance Equitable and Innovative Health Opportunities NIH’s All of Us Staci T. Lofton , J.D., M.P.H. Senior Policy Planner – Health Equity Harris County Public Health (HCPH) Houston, TX HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
EVERYTHING IS BIGGER IN TEXAS HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
Harris County is the third most populous county with over 4.7 million people spread over 1,778 square miles . HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
Ev Even Our Challenges: en Our Challenges: Mosquitoes, Mosquitoes, Obesity and Ev Obesity and Ever erything In ything In-Betw Between een HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
Our Road to Health HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
Our “Formula” for Success Sets Us Apart Innovation Equity ▪ Innovation ▪ Engagement (I + E) x E = PH X ▪ Equity Engagement HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
Equity HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
All of All of Us Us : Advancing : Advancing Equity Equity Health Equity in Harris Cou nty 1. Every individual and community has what they need – access to the goods, services, resources, and power – to be as healthy as possible; and 2. nobody is denied this possibility because of their social or economic status HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
All of Us : Advancing Equity HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
All of Us : Advancing Equity in Medicine and Science ➢ Changing the narrative ➢ Building and sharing power ➢ Refining structures and systems HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
Engagement HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
HCPH Engages Residents ▪ Where they L ive ▪ Where they L earn ▪ Where they W ork ▪ Where they W orship ▪ Where they P lay Where Health Happens HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
Enga Engagement gement at HCPH t HCPH Reference: International Association for Public Participation HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
“Taking Public Health to the Public” HCPH Priority Public Health Issues for 2013-2018 Selected for the magnitude of the issue and our ability to make progress in Harris County
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