Act Early Forum Webinar Series Stories from Act Early State Systems Grantees What works, what doesn’t, and why Thursday, February 13 2:00-3:30 pm ET
Act Early State Systems Grants-Overview Moderator Camille Smith, EdS, MS, Behavioral Scientist National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
Act Early State Systems Grants-Overview • Act Early State Systems Projects are 1-year grants • Awarded on a competitive basis to state teams • Projects work to… strengthen their state and community systems for the early identification and linkage to services for children with signs of autism spectrum disorders or other developmental delays.
Act Early State Systems Grants-Overview • Grantees are involved in public awareness, education and training, collaboration, and coordination at the state and local level • For more information: • visit www.amchp.org search “ambassadors” • visit www.aucd.org/actearly
Stories from Act Early State Systems Grantees What works, what doesn’t, and why Chris Smith, Maryland Center for Developmental Disabilities Sara DiRienzo and Canyon Hardesty, Wyoming Institute for Disabilities Gina Guarneri, Center for Excellence in Developmental Disabilities (CEDD), MIND Institute – California Caroline Coffield, Boggs Center on Developmental Disabilities at Rutgers Robert Wood Johnson Medical School – New Jersey
MARYLAND EARLY INTERVENTION AND SCREENING CONSORTIUM Accomplishments Christopher L. Smith, Ph.D. Director, Maryland Center for Lessons Developmental Disabilities Sustainability Learned 6
CONSORTIUM MEMBERS Kennedy Krieger Institute (various departments) Johns Hopkins University (various departments) Maryland State Department of Education (2 departments) Maryland Office of Genetics (Title V) Maryland Infants and Toddlers (Baltimore City and Montgomery County) Various public school districts from around the state 7
PROJECT OVERVIEW AND IMPLEMENTATION Developing and sustaining statewide partnership that improve collaboration, Specific Disseminatio n Activities Developing and disseminating information, Regular Shared Consortium and Development Meetings Improving collaborative funding for early Maryland Consortiu intervention and screening. m 8
ESTABLISHING THE PARTNERSHIP Partn tner ership hip: The e Maryla land d Earl arly Inter ervention tion and Scree reenin ing Consortiu tium (The The Consor ortiu ium) ) will ll continu inue e effor orts ts to develop lop and d solid idify fy its new w emer erging ing Consor sortium ium. . These ese effor orts ts will ll includ lude: e: • Regular lar (qu quar arterl rly) ) plannin ing meetin tings. • Occurring monthly (Accomplished) Main inten enanc ance e of an indep epen ende dent t websit bsite e Occurring, updated monthly (Accomplished) • • (www ww.m .mar aryla landea dearly lysc screen enin ing.c .com om). ). • Develop lop multi-year ear sustainabi ainability lity models dels for • Models still in development as the fundin ing and colla ollabor oratio ation. Consortium meets monthly (still in progress) • Initial ial and ongoi oing evaluat aluatio ion of the • No model for assessing partnership has partner ersh ship ip using partn tner ersh ship ip asses sessm sment t been adopted as of this final report. tools. ls. 9
PRIMARY DISSEMINATION ACTIVITIES Conference was held in Prince George's County on March 23, 2013. About 135 participants from various counties attended, including healthcare professionals, childcare providers, parents, and advocates. Attendees received training on monitoring early childhood development and were encouraged to use Act Early Materials for outreach or -- for parents -- as means of checking up on development on their own. Act Early materials (among others) were disseminated in all the participant’s conference packets. Conference Follow-Up: Physicians who came later in the day received an office visit where we gave them a “starter kit” to show them how to display developmental information in their offices using the CDC materials. Child care providers were offered additional training in small groups to teach them how to use the CDC developmental milestones guidelines to guide their conversation with parents when a delay is suspected. 10 10
CONFERENCE ATTENDEES Regist ister ered ed Discipline line 65 Child Care Providers 25 Health Care Providers (7 pediatricians, rest were nurses, PA’s, etc.) 25 Parents/caregivers 20 “Other” (home visiting, public school staff, nonprofit) 135 Total 11 11
EVALUATING THE IMPACT OF THE DISSEMINATION As a result of attending this conference, I am better able to articulate the importance of developmental screening. 88.52 52% Agreed or Strongly Agreed This conference increased my knowledge: 96.7% said yes. s. This conference increased my competence: 79 79% said yes. This conference improved my performance: 73.77% said yes. As a result of participating in this conference, do you intend to incorporate developmental screening in your child care setting? 74 74% said yes. 12 12
LESSONS LEARNED Small group of leaders. Be responsive and quick. Ensure group ownership. Both real-life dissemination and broader large-group reflection and planning. Develop different roles based on existing or potential strengths. 13 13
SUSTAINABILITY As indicated, the partnership has undertaken a number of new funding efforts since its conception including NIH grant submission for statewide screening and referral system. Application for 2 nd Act Early grant to support development of technology infrastructure for the Consortium (improved website, web-based data systems and contact management systems). Monthly meetings, development and implementation of specific dissemination activities, and collaborative funding and support efforts that continue to be pursued. 14 14
CONTACT INFORMATION Christopher L. Smith, Ph.D. Director, Maryland Center for Developmental Disabilities (MCDD) 7000 Tudsbury Road, Gwynn Oak, MD 21244 Email: smithchr@kennedykrieger.org MCDD Phone: 443-923-9555 15 15
Stories from Act Early State Systems Grantees What works, what doesn’t, and why Sara DiRienzo and Canyon Hardesty Wyoming Institute for Disabilities
Stories from State Systems Grantees: What works, what doesn’t, and why Wyoming Act Early Wyoming Institute for Disabilities (WIND) February 2014
Who we are Sara DiRienzo Canyon Hardesty, MS, CHES Information Specialist Coordinator of Community Education
Wyoming Demographics General • 97,093.14 sq. miles • Population: 582,658 • 84.6% White/Non Hispanic Target population : • Under the age of 5: 6.7%- 39,038 kids • Births in 2012: 7,576
Wyoming Institute for Disabilities • University Center for Excellence in Developmental Disabilities Education, Research and Service (UCEDD) • Initial funding in 1994 • Academic unit within the University of Wyoming College of Health Sciences
Wyoming Act Early • Project period: January – December 2013 • Funding Amount: $14,747.00 • Project Goal: Educate parents, health care professionals and child care providers about developmental milestones and the early identification of autism spectrum disorders and other developmental disabilities.
Act Early Project Objectives 1) Create a Wyoming Act Early website appropriate for parents and professionals 2) Facilitate developmental milestone awareness among first time parents through dissemination of customized LTSAE materials: 1) Milestone moments 2) Amazing me 3) Early signs of autism video tutorial 4) Family to Family (F2F) developmental milestones video 3) Create a document describing the pathway to diagnosis of autism or other developmental disability
Act Early Resources • Milestone Moments – English – Spanish • Wyoming Family to Family Health Information Center (WY F2F HIC) • Amazing Me
Partnerships • Department of Family Services – Foster Parent Program – Case workers
Partnerships • Wyoming Public Health Nursing- 30 offices in 23 Wyoming counties – Home visiting – Lactation consultation – Children with special health care needs consultation – Immunization
Partnerships • Wyoming Department of Health (WDH)- Maternal Family Health Unit – Statewide Screening Initiatives • Early Comprehensive (ECCS) grant • Statewide Autism Planning Grant -WIND • Early Childhood- Part B and C – Child Development Centers
Partnerships • Family to Family Health Information Center – Family engagement and awareness
Challenges and Barriers • Short timeframe of funding: (April – December 2013) • Limited scope of activities supported – Materials distribution • Initial buy-in and timing of funding – Wyoming working on collaborating with other agencies to support systems for early screening
Ongoing efforts • Evaluation of materials use • Wyoming Family to Family Health Information Center (WY F2F HIC) collaboration – Developmental screenings – Medical home initiative • Statewide screening initiatives – PHN – Home visiting – Child Development centers
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