9/11/2018 Disclosure I have no relevant financial relationships with any companies related to the content of this course. Lasting Legacy of Black Lives in Organ Donation Jack D. Lynch University of California, San Francisco Director, Community Affairs Our Vision Our Mission To save and enhance the lives That every opportunity for of as many people as possible organ and tissue donation through organ and tissue is successful. donation. 1
9/11/2018 Our Values Donation is Critical • More than 121,000 people in the U.S. are waiting for a We work to achieve lifesaving organ transplant. our mission and vision through a commitment to • More than 5,400 people are waiting for an organ transplant organizational values: in our donation service area. • Honor the Gifts • Strive for Excellence • Last year, nearly 300 people in Illinois died while waiting for • Build a Dedicated Team a lifesaving organ transplant. • Inspire Our Communities • Of those waiting for a lifesaving kidney transplant, more than 39,000 are African American Cultural Issues that lead to Organ Donation Challenges to Donation Participation by AA’s • Mistrust of healthcare professionals • Due to high rates of diabetes, high blood pressure and heart disease, African‐Americans have increased risk of developing kidney • Belief in myths and misconceptions: failure • Healthcare professionals won’t save my life to save a rich white person’s life • God wants me to take my organs with me • African‐Americans are largest group of minorities in need of organ transplants at 30.1% • Lack of access to healthcare before it’s too late • Low income is linked to higher levels of kidney disease in African • Identity crisis: Registration vs. Gift of Hope. Americans • Community needs to understand what comes next: Process of Donation • Kidney disease in African Americans goes undetected until the latest stages • Lack of understanding of the awesome responsibility of being an organ, tissue, and eye donor 2
9/11/2018 Organ Donation – Creating a Social Norm for Our Approach: What You Can Do Helping Black Lives Matter • We find people where they congregate whether • The organ donation conversation still centers around talking with and not at families. at Work, Play, Church, or School: • The conversation still centers around that fact that there will always be chaos in • Micro approach communities. There are still going to be victims and there is no way around it. • Ambassadors for Hope (volunteers) aligned with Gift of Hope’s strategic goals to educate community • The tenor should still remain with treating families with respect while having very real • Campaigns aligned to incorporate HIP (Hospitals, Influences honest dialogue with minorities, whether 16 or 60, you don’t pull punches. and Partners), i.e., Mayors for Hope, Churches for Hope, Beauty/Barbershop for Hope, Legislators, Community • The conversation must become the social norm whether at church, play, home or school Leaders • Macro approach • Organ donation offers those minority families the opportunity to turn senseless tragedies • Recommitted to minority communities into triumphs. • Developed community events in unlikely places GOH assists in creating lasting legacies out of Black Lives, in life and death! • Established Tragedy to Triumph Award Available Resources Last, But Not Least . . . • Jack Lynch, Director Community Affairs • 630‐758‐2600, jlynch@giftofhope.org Help us carry out our mission: • Gift of Hope website (GiftofHope.org) • • In‐services, workshops, conferences Encourage friends, family to become organ and tissue donors • Newsletters, e‐mail alerts, fact sheets • Register to be a donor yourself at GiftofHope.org 3
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