2010 Consumer Needs Assessment Survey Sponsored by the Greater Baltimore HIV Health Services Planning Council Prepared by Funded by the Ryan White HIV/AIDS Treatment Extension Act InterGroup Services, Inc., March 2011 of 2009 through the Baltimore City Health Department
Thank You Greater Baltimore HIV Health Services Planning Council � Planning Council Needs Assessment Committee � Baltimore City Health Department � Interviewers � Providers � Survey Respondents 2
Outline Background & Methodology � Demographic Profile of Respondents � Findings 3
The Survey Sought to Answer Two Questions What are the service needs of PLWH/As within the Baltimore EMA? What barriers exist that prevent PLWH/As from receiving HIV-related services? IGS 2011 4 4
Methodology 813 survey respondents (791 fully completed) Face-to-face interviews with trained interviewers Surveys done at provider locations or IGS Consent forms Incentive used: $20 grocery card Data entry and analysis conducted by IGS IGS 2011 5 5
Outline Background & Methodology � Demographic Profile of Respondents � Findings 6
EMA Respondents 813 respondents were interviewed 791 known to reside in the EMA Accounting for 97.3% of respondents 673 Baltimore City residents 118 counties residents IGS 2011 7 7
Age of Respondents 8 8 IGS 2005, IGS 2007, and IGS 2011
Sex of Respondents IGS 2005, IGS 2007, and IGS 2011 9 9
Race/Ethnicity IGS 2005, IGS 2007, and IGS 2011 10 10
Mode of Exposure IGS 2005, IGS 2007, and IGS 2011 11 11
Jurisdiction IGS 2011 � 12 12
Hot Spot ZIP Codes IGS 2011 13
Housing Type IGS 2011 14 14
Income Level 2010 2007 15 15 IGS 2007 and IGS 2011
Insurance Type IGS 2007 and IGS 2011 16 16
Medication Coverage IGS 2007 and IGS 2011 17 17
Time in Primary Medical Care IGS 2005, IGS 2007, and IGS 2011 18 18
Time Between Diagnosis and Seeking Care ( ʻ 04) � ( ʻ 07) � ( ʻ 07) � ( ʻ 04) � ( ʻ 04) � ( ʻ 07) � IGS 2005, IGS 2007, and IGS 2011 19 19
Outline Background & Methodology � Demographic Profile of Respondents � Findings 20
EMA Service Demand IGS 2011 21 21
Top 10 Most Demanded Services Comparison 2007 2010 1. Primary Medical Care – 100% 1. Primary Medical Care – 100% 2. Case Management – 91.2% 2. Local AIDS Pharm. Assist. – 84.3% 3. Local AIDS Pharm. Assist. – 84.1% 3. Oral Health Care – 79.5% 4. Oral Health Care – 83.4% 4. Medical Case Management – 77.7% 5. Medical Transportation – 70.7% 5. Non-medical Case Mgt. – 68.8% 6. EFA – 61.2% 6. EFA – 64.2% 7. Medical Nutritional Therapy – 59.7% 7. Mental Health – 58.3% 8. Mental Health – 59% 8. Medical Transportation – 55.6% 9. Non-medical Case Mgt. – 57.8% 9. Health Ins. Prem. & Cost Sharing – 53.9% 10. Psychosocial – 57.5% 10. Medical Nutrition Therapy – 51.7% IGS 2007 and IGS 2011 22 22
Unmet Service Demand Unmet service demand is determined by: # of people who needed but couldn’t get a service # of people who needed the service Example: if 5 people needed a service but 4 of them couldn’t get it, then the unmet need would be: 4 /5=0.8 or 80% 80% unmet demand sounds high, but only 5 people needed the service IGS 2011 23 23
EMA Unmet Service Demand IGS 2011 24 24
Top 10 Unmet Services Comparison 2007 2010 1. Permanency Planning – 91.4% 1. Legal – 69.3% 2. Child Care 6+ – 90.0% 2. Hospice Care – 69.2% 3. Child Care <6 – 86.1% 3. Home Health Care – 64.2% 4. Legal – 80.8% 4. Respite Care – 60.0% 5. Respite Care – 77.8% 5. Child Care >6 – 59.5% 6. Linguistic Services – 58.8% 6. Rehabilitation – 59.0% 7. Rehabilitation – 58.6% 7. EFA – 57.9% 8. Temporary Housing – 53.4% 8. Linguistic Services – 57.1 % 9. Home Health Care – 52.5% 9. Temporary Housing – 53.1% 10. Home/Comm. Based Health – 47.1% 10. Child Care <6 – 52.6% IGS 2007 and IGS 2011 25 25 25
Unmet Demand Barriers Not knowing that a service exists Not knowing or understanding how to access that service Not understanding the eligibility process Difficulty navigating the service system IGS 2011 26
Barriers to Seeking Care Barriers to Health Care n of responses Knowing who to call or where to go 150 Knowing about free HIV/AIDS care 141 Knowing how important seeing a doctor or nurse is 139 Having help getting over fear or shame 156 Having help stopping drug or alcohol use 128 Getting care in a private setting 75 Does not apply 369 Other 110 IGS 2011 27
Primary Medical Care Barriers Primary Medical Care Barriers (n=12) n of responses % of respondents I do not need HIV medical care 2 16.7 I do not know how to get HIV medical care 1 8.3 Provider’s office hours did not fit my schedule 1 8.3 I couldn’t afford the co-pay/fee 1 8.3 I use drugs and/or alcohol 1 8.3 Does not apply 3 25.0 Other 4 33.3 IGS 2011 28
Medical Case Management Barriers Medical Case Management Barriers (n=57) n of responses % of respondents I did not need medical case management 14 24.6 I did not want medical case management 2 3.5 I do not know how to get medical case management 21 36.8 Provider’s office hours did not fit my schedule 2 3.5 I was not getting good service 3 5.3 I don’t want anyone to know my HIV status 2 3.5 It was too hard to apply for 1 1.8 I was not eligible 1 1.8 I couldn’t afford the co-pay/fee 2 3.5 I use drugs and/or alcohol 3 5.3 Does not apply 7 12.3 Other 10 17.5 29 IGS 2011
Outreach Barriers Outreach Barriers (n=168) n of responses % of respondents I did not need outreach service 35 20.8 I did not want outreach services 4 2.4 I do not know how to use outreach services 81 48.2 I have never seen outreach or field workers in my area 43 25.6 The outreach hours did not fit my schedule 5 3.0 I was not getting good service 2 1.2 I don’t want anyone to know my HIV status 2 1.2 It was too hard to apply for 6 3.6 I was not eligible 1 0.6 I had no way to get there 1 0.6 Does not apply 8 4.8 Other 23 13.7 30 IGS 2011
Thank You Interviewers! Maria Abasi Antwan Little � �� Terri Davis Judith Millman Jon Gaillard Michelle Muhammad Cheri Jean Garber Kori Pilkins Greg Grenier Janice Sabb David V. Halbeisen Martha Bonds Sayre Kayla Hobson IGS 2011 31 31
Thank You Providers! AIRS (AIDS Interfaith Residential Services) Moveable Feast Anne Arundel County Health Department New Vision House of Hope Baltimore County Health Department Park West Medical Center Bon Secours Imani Center People’s Community Health Carroll County Health Department Queen Anne’s County Health Department Chase Brexton Health Services STAR (Sisters Together and Reaching) Family Health Centers of Baltimore Total Health Care HAVEN Tuerk House Harford County Health Department University of Maryland-Dental PLUS Program Healthcare for the Homeless University of Maryland Evelyn Jordan Center Light Health and Wellness Comprehensive Services University of Maryland Jacques Initiative Johns Hopkins University- Care Plus University of Maryland-Maryland General Hospital Johns Hopkins University-Comprehensive Care WAR (Women Accepting Responsibility) Practice Johns Hopkins University- HALO Johns Hopkins University Moore Clinic Man Alive IGS 2011 32 32
Bibliography Akers: M. A. A. Akers. 2009. Counting Matters: Baltimore Homeless Point-In-Time Census Study (2009). School of Architecture and Planning Morgan State University. Baltimore, Md.: Morgan State University. DHHS 2009: U.S. Department of Health & Human Services, Assistant Secretary for Planning and Evaluations. 2009. “The 2009 HHS Poverty Guidelines.” Internet site (http://aspe.hhs.gov/poverty/09poverty.shtml), downloaded on February 16, 2011. DHMH 2010: State of Maryland, Department of Health and Mental Hygiene (DHMH), AIDS Administration. 2010 Maryland Baltimore Towson Metropolitan Area HIV/AIDS Epidemiological Profile: Fourth Quarter 2009 --- Data Reported Through December 31, 2009 . Baltimore, Md.: DHMH. Internet site (http:// www.dhmh.state.md.us/AIDS/Baltimore-TowsonMSAHIVEpiProfile12-2009.pdf), downloaded on March 11, 2011. IGS 2005: InterGroup Services, Inc. (IGS). 2005. Greater Baltimore HIV Health Services Planning Council Consumer Survey, Baltimore EMA, 2004 . Baltimore, Md.: IGS, March. IGS 2007: _____. 2007. Greater Baltimore HIV Health Services Planning Council Consumer Survey, Baltimore EMA, 2007. Baltimore, Md.: IGS, December. IGS 2011: _____. 2011. Greater Baltimore HIV Health Services Planning Council Consumer Survey, Baltimore EMA, 2010. Baltimore Md.: IGS, March. 33
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