11/15/2019 Virtual Reality: Life and Death Through a Hospice Patient’s Eyes Daryl Cady CEO, Hospice of Southern Maine 1 What is Virtual Reality? A believable , interactive 3D computer-created world that you can explore so you feel you really are there, both emotionally and physically . 2 History Carrie Carrie Shaw Founder, Embodied Labs, with her mom 3 1
11/15/2019 4 48-Hour Immersion @ Gosnell Memorial Hospice House 5 A Collaboration was Born 6 2
11/15/2019 The “Labs” The Alfred Lab MACULAR DEGENERATION & HEARING LOSS The Beatriz Lab A JOURNEY THROUGH ALZHEIMER'S DISEASE (AD) The Clay Lab END OF LIFE CONVERSATIONS 7 Why Virtual Reality? Embodied Learning allows viewer to: ➔ Speed up the learning process ➔ Go inside and outside the body ➔ Visit unique perspectives ➔ Trick their brain into living “real experiences” 8 VR Education Model 9 3
11/15/2019 VR Education Model 10 VR Education Model 11 VR Education Model 12 4
11/15/2019 VR Education Model 13 Preparing Viewers for the Clay Lab Lessons Learned by HSM ● Take time to explain the equipment that will be used ● Present a Content Advisory - Content may not be suitable for all viewers. ● Make sure the environment feels safe and secure and that participants know they can stop the experience at any time ● Provide psycho-social support via the presence of a social worker, chaplains, or trained staff 14 The Clay Lab End-of-Life Conversations You , the viewer, will “embody” Clay Crowder, a 66-year old Veteran with stage IV, incurable lung cancer. 15 5
11/15/2019 Part 1: Receiving a Terminal Diagnosis As Clay, you go with your family to your oncologist, and receive the news that there are no longer effective curative treatments for your cancer. 16 Part 2: Transitioning to Home Hospice As Clay, you experience a fall related to your disease, visit the ER, interacts with a compassionate nurse, decide with your family to start home hospice, and interact with members of the home hospice team. 17 Part 3: Last Days As Clay, you enter your final days, and receive care from your home hospice team and your family. You will virtually experience the end of life, and observe how your body is transported to the funeral home as an honored veteran. 18 6
11/15/2019 The Clay Lab End-of-Life Conversations Let’s take a look! 19 20 21 7
11/15/2019 22 Let’s pause for a minute… 1) Educate community and referral sources Increases understanding of EOL and hospice care 2) Educate staff Allows them to “stand in the shoes of” the patient, family, and doctor, especially for understanding the entire experience prior to entering hospice care 23 How We Use it... 1) Educate community and referral sources Increases understanding of EOL and hospice care 2) Educate staff Allows them to “stand in the shoes of” the patient, family, and doctor, especially for understanding the entire experience prior to entering hospice care 24 8
11/15/2019 Hospice Training Points ★ Models serious illness conversations ★ Falls/ER visits often precede hospice ★ Care is patient and family centered ★ Family dynamics ★ Coming on to hospice sooner means better quality of life , longer life , and the likelihood that EOL wishes will be respected . 25 Pre and Post Surveys 1) I am comfortable talking about issues related to the end of life. 2) I feel confident in my ability to provide care to someone in the last months of that person’s life. 3) What is your view of hospice care? 4) You are about to embody a man with a terminal cancer diagnosis. Think about how you might feel if you were told that you have a disease that is incurable. I would feel… (check all that apply) 5) What, if anything, will you do differently as a result of watching Clay 26 Is it Working? After completing Clay, learners report: ✓ 36% feel less helpless ✓ 34% feel less fear ✓ 9% feel less sadness ✓ 34% feel more peacefulness ✓ 18% feel more empowerment 27 9
11/15/2019 What people are saying... “New virtual reality helps hospice “I felt emotionally workers see life and involved from the death through a start. It gave me patient's eyes.” good perspective “Virtual reality on the last few enlightens medical days to hours of students about end- life." of- life care.” UNE Medical Student 28 55 Stories …across 20 states reaching nearly 50M people 29 Thank you! For more information or to make an appointment: Hospice of Southern Maine (207) 289-3640 info@HospiceofSouthernMaine.org Acknowledgements Hospice of Southern Maine’s VR project was funded by the Rev. Anne E. Hunter, MD Endowment Fund and developed in collaboration with Embodied Labs and University of New England. 30 10
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