Young Onset Dementia (YOD) Worcestershire Consultation and Review Event 23 rd March 2017
Plan for the afternoon: - Young Onset Dementia in Worcestershire – Where are we now? (Jo Scarle – YOD Development Officer – Worcestershire) - Talks from people living with YOD and family members (Marji Plowright, Ashley Little, Jane Twigg) - The Young Dementia UK Network (Sarah Plummer) - Group Work - Feedback
Young Onset Dementia in Worcestershire – Where are we now? Jo Scarle (Young Onset Dementia Development Officer)
Awareness Raising/Education/Training Dementia St Richards Dementia Care Studies Hospice Trainer (WHCT) Foundation Degree Psychiatrists Dementia Lunchtime Teaching Training – GP’s Awareness Session Week Upton Surgery (WHCT) Care Navigators Training – South GP’s
Training Package – Local MH Teams/ Learning Disability AHP’s and dementia Supporting with the Occupational review of Alzheimer’s Therapy Students Society Publication Young-Onset Trust Youth Board Dementia Conference
Special Interest Group - Young-Onset Dementia • Supporting children when a family member is living with YOD • Supporting people experiencing communication difficulties • Driving • What’s it like to live with dementia at a younger age – a review of the literature • Behavioural variant frontotemporal dementia • Learning disability and dementia
A Website: Information for people living with young onset dementia and their families http://www.hacw.nhs.uk/our-services/young-onset-dementia- new
Services and Support • Connection Point
• Dementia Voice - A group for younger people living with dementia which meets once a month. We have just secured a free venue (Community Room, Waitrose, Worcester) and are using Sharelink Transport. • Family Voice - A group for family members/ friends of someone who is living with YOD. Meets 6 times a year during Connection Point Meetings.
• Al’s Café’s Worcestershire Alzheimer’s Society run 3 evening café’s for people living with YOD and their families/ friends – Worcester, Redditch and Kidderminster. These groups provide advice, information and an opportunity to build peer support networks. • Rare Dementia Support Although not specifically for people living with YOD; it is recognised that rarer types of dementia occur more commonly at a younger age. Alzheimer’s Society have built on the success of groups they ran last year to establish 4 meetings which will run during 2017 to support people living with types of Frontotemporal dementia, Logopenic Aphasia and Posterior Cortical Atrophy. • Meeting Dem (Droitwich) Which is open 3 Days a week is currently providing support to a number of younger people living with dementia and their families/ supporters.
• Dementia Advice Service The Dementia Advice Service offers information and advice to people who are living with dementia, as well as their family and friends. This service is also currently piloting a scheme in some GP surgeries in the south of the county where a Memory Loss Advisor is linked with some surgeries to support people who may be living with dementia. ConnectED Service Offers 1-1 support to people living with YOD – helping people to maintain or find new interests and activities to be involved in.
Worcestershire Health and Care NHS Trust “Young - Onset Dementia Champions” Early Older Adult Intervention Adult Mental Mental Health Dementia Health Services Services Service Learning Speech and Admiral Disability Language Nursing Service Services Therapy Links with Worcestershire Acute NHS Trust
Employment Benefits Advice Network Worcestershire Disability Employment Advisor Service
Other local services currently supporting or keen to look at options for supporting people living with YOD Adult Care Home Social Care Care Farms Fire Service Providers (WCC) Health Home Care Link Headway Walks Providers Nurseries Shared Worcs Lives Association (WCC) of Carers
Sharing Information Database Newsletter Website
What are the Benefits of Delivering Support in this way? Although we have no dedicated clinical team working with people who are living with young-onset dementia in Worcestershire, the role of Young-Onset Dementia Development Officer does provide a local voice and supports in raising awareness about young-onset dementia. Having the opportunity to provide training and to work alongside other colleagues in health, social care and the voluntary sector to look at how we can all come together to better meet the needs of younger people living with dementia and their families is key to this role.
A final thought My personal feeling about what helps things to work in Worcestershire is team work (in the widest sense). People living with young-onset dementia, their families, health and social care staff and colleagues in the voluntary sector all need to work together to review what is needed, what is working and what needs to change, being realistic of financial constraints and making the best of the resources that we have available to us.
Marji
Ashley
Jane
Film https://www.youtube.com/watch?v=KXSrfKe-c1s Young Onset Dementia “Simply Life Giving”
Group Work
Next Steps • A draft report about today’s meeting will be sent out to you all by 7 th April • A final report will be issued by the end of April – this will be shared with The Young Onset Dementia Steering Group, Worcs Health and Care Trust Dementia Steering Group and the group currently looking at the redesign of Older Adult Mental Health Services in Worcestershire • Outcomes will be used to inform the work going forward • If anyone hasn’t been involved to date, but is interested in supporting the work in some way please let us know! • We welcome the support
Contact Jo Scarle Young Onset Dementia Development Officer Early Intervention Dementia Service Worcestershire Health and Care NHS Trust F Block Kidderminster General Hospital Bewdley Road Kidderminster DY11 6RJ Tel : 01562 828894 Mobile: 07776992349 Email: joanne.scarle@nhs.net
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