WHAT DATA SHOULD BE ACCESSIBLE TO WHOM AND WHEN BBMRI-ERIC - PowerPoint PPT Presentation

Jan 26, 2024 •160 likes •262 views

WHAT DATA SHOULD BE ACCESSIBLE TO WHOM AND WHEN BBMRI-ERIC EXPERIENCE ERIK STEINFELDER WHO WE ARE in order to facilitate the use of BBMRI-ERIC is a research European sample collections and infrastructure of biobanks and data for the benefit

WHAT DATA SHOULD BE ACCESSIBLE TO WHOM AND WHEN BBMRI-ERIC EXPERIENCE ERIK STEINFELDER
WHO WE ARE in order to facilitate the use of BBMRI-ERIC is a research European sample collections and infrastructure of biobanks and data for the benefit of human biomolecular resources that health. provides expertise and services
BBMRI-ERIC ACCESS POLICY HARMONISING ACCESS TO BIOBANKING DATA & SAMPLES MEMBERS OF BBMRI-ERIC Austria OBSERVERS OF Belgium BBMRI-ERIC Bulgaria Czech Republic Switzerland Estonia Cyprus Finland Turkey France IARC Germany Greece Italy Latvia Malta Netherlands Norway Poland Sweden United Kingdom
BUILDING TRUST OUR STAKEHOLDER FORUM
SHOULD INDIVIDUAL RESEARCH RESULTS BE RETURNED TO PATIENTS/CITIZENS? Before the debate After the debate
GOAL OF THE NEW BBMRI-ERIC STRATEGY MOVE FROM RESEARCH-ORIENTED ORGANISATION TO SERVICE ORIENTED ORGANISATION
WHAT WE OFFER EUROPEAN COLLECTION OF 10,000 COLORECTAL CANCER COHORT DATASETS SOON AVAILABLE VIA ADOPT BBMRI-ERIC PROJECT
IN SUM Our Access Policy gives a common ground for the organized/harmonized sharing of biobanking data Our Stakeholder Forum ensures that the BBMRI-ERIC community keeps building trust with all the biobanking stakeholders This is crucial to make sure BBMRI-ERIC is not only a provider of data, but helps bridging science and  society expectations We do not work for academia only : we need to move from pure research to SERVICES , including access to samples and data ADOPT CRC as an example
THANK YOU! contact@bbmri-eric.eu www.bbmri-eric.eu @BBMRIERIC BBMRI-ERIC

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