Welcome to Sensitivi-tea What matters most during diagnosis www.youngdementiauk.org/webinars
What people said about receiving a diagnosis… Being Active Meeting in Convenience involved listening person Considerate Time to ask Calm use of Home visits questions approach language Private Reaction to Private discussions diagnosis location
What people said about receiving a diagnosis… Active Being Meeting in Convenience listening involved person Considerate Time to ask Calm use of Home visits questions approach language Private Private Reaction to location discussions diagnosis
‘Believing me that something was wrong and not saying it Active Listening was all down to stress’ ‘The process could have been The clinicians should improved if it could have been diagnosed quicker and again listen to the person if they listened to us as a family’ with dementia and their family as a whole - Quotes from people with young onset dementia
What people said about receiving a diagnosis… Being Active Meeting in Convenience involved listening person Considerate Time to ask Calm use of Home visits questions approach language Private Private Reaction to location discussions diagnosis
Considerate use of language ‘The diagnosis was handled sympathetically and very re- assuring’ Clinicians should be compassionate, ‘Being tactful and careful when ut a diagnosis. discussing how quickly the person's empathic and respectful dementia may deteriorate’ during the assessment and particularly sensitive - Quotes from family supporters when providing information
What people told us about services… GP recognition Contact family Appointment Single point of Avoid of young onset supporters as Using lay terms notice period contact repetition dementia well Referrals to Multi- Enhanced Understanding Follow-up Quick referral specialist disciplinary awareness of all forms of letter services team young onset dementia Improved Explanation of Pleasant MRI Results issued Diagnosis Shorter time to access to assessments experience more quickly explained diagnosis clinics
What people told us about services… GP recognition Contact family Appointment Single point of Avoid of young onset supporters as Using lay terms notice period contact repetition dementia well Referrals to Multi- Enhanced Understanding Follow-up Quick referral specialist disciplinary awareness of all forms of letter services team young onset dementia Improved Explanation of Pleasant MRI Results issued Diagnosis Shorter time to access to assessments experience more quickly explained diagnosis clinics
Referrals to specialist services ‘For referrals to be made to specialist units. Better awareness Referrals should and training in Mental Health Trusts ideally be made to Referrals should ideally be on the issues faced by younger made to specialist YOD specialist young onset people with dementia’ clinicians and services dementia clinicians - Family supporter and services
What people told us about services… GP recognition Contact family Appointment Single point of Avoid of young onset supporters as Using lay terms notice period contact repetition dementia well Referrals to Multi- Enhanced Understanding Follow-up Quick referral specialist disciplinary awareness of all forms of letter services team young onset dementia Improved Explanation of Pleasant MRI Results issued Diagnosis Shorter time to access to assessments experience more quickly explained diagnosis clinics
‘Delivering the diagnosis face-to-face, and providing Follow-up letter a subsequent letter’ - Person living with dementia Providing the person with dementia and Providing the person with ‘…the diagnosis has difficult dementia and their supporters terminology but this was their supporters with with a letter which details the explained and having the follow a letter which details diagnosis. up letter I was able to research the diagnosis and look up the reference’ - Family supporter
Question for the audience… If you are living with young onset dementia or are working in a memory service How would this information that we have gathered about people’s experiences be useful for you? Taking things forward…
Thank you for joining us www.youngdementiauk.org/webinars
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