Arrhythmia Alliance International Project HRC, 6 th October, 2010 Trudie Lobban MBE Founder and Trustee
Today’s Meeting • Brief overview of A-A to date • New Partners • Global role of A-A – Europe, Asia & Latin America • Establishment & Role of A-A International Medical Advisory Committee (IMAC)
Arrhythmia Alliance The A-A supports and promotes the aims & objectives of the individual groups.
Mission Statement • “Every person affected by an arrhythmia will receive information , support and rapid access to appropriate treatment” • Will achieve this through advancing Awareness Diagnosis & Treatment Improved Quality of Life of those affected
International Partners and Affiliates
Aims of A-A International Project • Provide access to knowledge and skills of health professionals specialising in arrhythmia care • Provide support and education to patients, carers and medical professionals • Improve quality of life for all those affected by cardiac arrhythmias • Share and exchange ideas and best practices
International Partners and Affiliates • A-A in the UK is a coalition of charities, patient groups, patients, carers, medical groups and allied professionals. These groups work together under the A-A umbrella to promote timely and effective diagnosis & treatment of arrhythmias. • A-A International is a platform for unifying best practices in arrhythmia services, and advocating for equal patient access to high quality services in countries around the world.
International Toolkit The Toolkit explained : 1 2 Enlist Leadership Enlist missions 8 3 Strategic Plan Register as charity 8 Steps for Establishing 7 an A-A group 4 Awareness Fundraising WHRW 6 5 Website Outreach
Toolkit Aims and Objectives • Unified approach • Establishing A-A National Partners in other countries • Provides support and information • Acts as a guide – a working document that will evolve
International Website • Tools to support Partners and Affiliates • Patient Medical Area • News and Events • Projects and Campaigns • Secure Area – Forum • Overseas Affiliate Groups
Overview A-A International Partners A-A Portugal – Bate Bate Coracao Is working very hard on raising awareness and has won the 2009 Health Award A-A Sweden – Arythmi Alliansen Is in the process of organising patient meetings - 180 patients attended of which 80 had an ICD implant
Overview A-A International Partners A-A China A-A China was established in 2009 in collaboration with cardiologist from the Peoples Hospital Beijing. Translations have been completed and added the education material to the web. A-A China established the Teleheart Rhythm Monitor Centre and introduced A-A in the SCD and Syncope Prevention Meeting, May 2010. A-A Japan Arrhythmia Alliance Japan celebrated World Heart Rhythm Week 2009 with the launch of their new website. Their partnership to A-A through The Health Policy Institute of Japan has provided a platform for advocacy (Commission on Citizens and Health) and leadership in providing awareness and education on arrhythmias.
NEW A-A International Partners A-A Italy – ANA Aritmie Italy has completed the registration process and will have translations ready by December 2010. The website will be promoted with the emphasis on GPs A-A Argentina – PRONETAC The Rotary Club in Buenos Aires is supporting A-A Argentina who now have their own offices and are translating our materials. Trudie will attend the first anniversary-cocktail party
A-A Argentina Offices
NEW A-A International Partner A-A Australia
World Heart Rhythm Week • Organised by A-A in partnership with the International Cardiac Pacing and Electrophysiology Society • Supporters, organisations and individuals around the globe focus attention on heart rhythm disorders • Participating countries make WHRW an international awareness event • A WHRW Toolkit is available to guide countries participating in this exciting opportunity • WHRW was used as an opportunity to raise awareness of sudden cardiac arrest during the FIFA World Cup
Summary of Results WHRW 334 pieces of coverage generated wor orld ldwi wide de Audience of over 91,013,021 reached 203 203,098 ,098 downloads of the Know Your Pulse online app, to date 1,550 downloads of the Know Your Pulse iPhone app, to date
Results Overview WHRW An audience of over 334 articles generated 91,013,021 reached to date Details of media audience Social media Medical 1% 4% Consumer 95%
Articles Generated Per Country 192 200 180 160 Number of articles 140 120 100 80 53 60 30 35 23 40 1 20 0 Global Portugal Italy UK Spain South Africa Country
World Heart Rhythm Week 2010 Highlights • Organised by A-A in partnership with the International Cardiac Pacing and Electrophysiology Society • WHRW was used as an opportunity to raise awareness of sudden cardiac arrest during the FIFA World Cup PACE South Africa - A-A S Africa : Organised a new world record supported by Lucas Radebe Bate Bate Coracao – A-A Portugal : „Beat Beat of your heart - feel the rhythm‟ was promoted during WHRW and was a big success with more then 5000 people
World Heart Rhythm Week 2010 Overview Pronetac – A-A Argentina : • Representatives from Pronetac with the Minister of Public Health from Buenos Aires. • Press coverage – 24 articles, 9 radio interviews, 5 TV Interviews and organised CPR courses • Endorsement of famous national footballer recommending medical control of „your pulse‟. Alleanza Nazionale contre le aritmie (ANA) – A-A Italy : Launched a successful media campaign with full media coverage across Italy.
A-A Global Coverage Over 192 global media outlets replicated the English press release
Role of A-A MAC A-A International Medical Advisory Committee (A-A MAC) • Who is it made-up of • A-A Medical Partners input • Aims of A-A MAC • Advisory on A-A Literature
Any questions? • Outcomes/Actions • AOB Trudie Lobban MBE www.heartrhythmcharity.org.uk
HEART RHYTHM CONGRESS 2011 • International Roundtable - October 6th • Live Cases • Patient Day • Devices and Intervention Courses www.heartrhythmcongress.com
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